48 episodes

Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.

Schizophrenia: Three Moms in the Trenches Randye Kaye

    • Health & Fitness
    • 4.5 • 39 Ratings

Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.

    Help! I Don’t Understand SSI/SSDI - Ep 50, guest: Dani Page, JD

    Help! I Don’t Understand SSI/SSDI - Ep 50, guest: Dani Page, JD

    SZ 3 moms Ep 50: Help! I Don’t Understand SSI/SSDI


    Guest: Dani Page 
    §  SOAR (SSI/SSDI, Outreach, Access and Recovery) certified Retired attorney. Instructor on implicit bias in the space of disability.


    §  Juris Doctorate
    §  Certified Family to Family facilitator for National Alliance on Mental Illness
    §  SOAR (SSI/SSDI, Outreach, Access and Recovery) certified—for individuals with behavioral health challenges who are homeless or at risk
    §  Presenter and facilitator on implicit bias in the space of disability 
     
    We ask:
    Clarification:
    Dani would like to clarify something from the podcast in which I participated. The maximum a disability attorney or non-attorney advocate can charge is 25% of an applicant's backpay, up to a maximum of $6,000.
    SSI/SSDI/SSA - please explain the differences!
    Who makes the disability determination? (DDS)
    What are the myths about SSI? Will my loved one have to stop working?
    How to apply - steps
    Do I need an attorney?
    What is SOAR? Can they help? How much does it cost?
    What materials/records do I need to gather/create?
    And more



    Want us to cover a topic? comment to share?
    Facebook page @Schizophrenia3Moms
    @SZ3MomsTrenches -  twitter
    Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
    Miriam Feldman – Artist, Mom, Author “He Came in With It”
    Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)

    • 1 hr
    Pete Earley: A Father’s (and son’s) Search Through America’s Mental Health Madness

    Pete Earley: A Father’s (and son’s) Search Through America’s Mental Health Madness

    Pete Earley is a storyteller whose books include four New York Times bestsellers, likeThe Hot House and the 2007 Pulitzer Prize finalist Crazy: A Father’s Search Through America’s Mental Health Madness.His years as an investigative journalist include six years at The Washington Post. Pete is a tireless advocate for mental health system reform.
    Many listeners ask: What about the Dads? Pete Earley knows. He was most recently seen on the PBS documentary “Hiding in Plain Sight” with his son Kevin Mike Earley.
    In today’s episode we hear their family story, and many thoughts on what we’d like to change about the system - including NAMI. We also touch on the new 988 system, and once again Judge Stephen Leifman in Florida, who envisioned a reform program that would help people reintegrate into society by helping them with housing, relationships, and health care—especially mental health care. 


    We ask:
    Tell us your story, and Kevin’s story - how have things changed since you wrote “crazy”?988 is rolling out - comments?What has been your experience as a “Dad in the Trenches”? Do you think it’s different from the way Moms tend to handle mental illness in the family?Did your book, Crazy, inspire any changes in the mental illness/prison system?What are your thoughts on the recent direction of NAMI? Are there other organizations who are more about SMI (serious mental illness)?Tell us about Hidden in Plain sight and what that experience meant for Kevin - and for you.What are the most pressing issues today that you are fighting for?What would you most like other Dads to know?


    Links: http://www.peteearley.com/
    Judge Leifman speech:
    https://www.youtube.com/watch?v=UFbyI6I0Mlk
    The Lifeline and 988 - https://988lifeline.org/current-events/the-lifeline-and-988/ 

    NPR 988 story:
    https://www.npr.org/sections/health-shots/2022/07/15/1111316589/988-suicide-hotline-number




    Want us to cover a topic? comment to share?
    Facebook page @Schizophrenia3Moms
    @SZ3MomsTrenches -  twitter
    Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
    Miriam Feldman – Artist, Mom, Author “He Came in With It”
    Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
     
     

    • 52 min
    “Our Son Died with His Civil Liberties Intact” - and What We Did Next

    “Our Son Died with His Civil Liberties Intact” - and What We Did Next

     Episode 48: “Our Son Died with His Civil Liberties Intact” - and What We Did Next 
    One Story of Bedlam - and Activism - in America’s Mental Health Crisis
    Guests: Norm Ornstein and Judy Harris
    You are about to meet a couple - Norm Ornstein and Judy Harris - who tragically lost their son Matthew in 2015. Matthew had struggled with mental illness for over a decade, and , as listeners of this podcast well know - that means the entire family was affected. 
    After Matthew’s death, Norm and Judy (along with their son Danny), created a foundation in his name, which you’ll learn about in the second half of the podcast. Another project of theirs is the PBS documentary film, The Definition of Insanity looks at one judge’s innovative efforts in Miami to prevent people with mental illness from being treated like criminals…narrated by Norm’s longtime friend Rob Reiner. 
    First, we ask them about Matthews’ story, and, as you will hear, these highly successful activists still live with the feelings that all similar families face - guilt, confusion, anger, and grief. Hear their story…and how they are working to find ways of “taking a tragedy and trying to make something positive,”




    Links:
    The Matthew Harris Ornstein Memorial Foundation


    https://www.mornstein.org/


    The Definition of Insanity Documentary:
    https://www.pbs.org/show/definition-insanity/



    Book :Bedlam: An Intimate Journey Into America's Mental Health Crisishttps://www.amazon.com/Bedlam-Intimate-Journey-Americas-Mental/dp/0525541314/ref=tmm_hrd_swatch_0?_encoding=UTF8&qid=1656544912&sr=8-1



    https://www.washingtonian.com/2020/04/30/the-deeply-personal-story-behind-the-pbs-documentary-the-definition-of-insanity/




    Want us to cover a topic? comment to share?
    Facebook page @Schizophrenia3Moms
    @SZ3MomsTrenches -  twitter
    Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
    Miriam Feldman – Artist, Mom, Author “He Came in With It”
    Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
     
     

    • 47 min
    You Are Not Alone: On Grief, Guilt, Tough Choices…and Hope (Ep. 47)

    You Are Not Alone: On Grief, Guilt, Tough Choices…and Hope (Ep. 47)

    Just the Moms, addressing Q’s and giving updates


    We talk about:
    Our recent advocacy (legislation and keynote speeches)SEARCH: what families need (Support, Education, Acceptance, Respect, Communication Skills, Hope)Updates 
    …and address e-mails and facebook comments likeWill I ever feel "normal" again? The grief and anger still take my breath away some days. I'm sorry to vent. I will start listening to the podcasts soon. Thank you!


    How do you all prepare for when your sons get discharged from the hospital but you can tell they aren’t stable yet? I’ve listened to a ton of your podcasts and they are so enlightening- but I’d be interested to hear more of the technical details of transitioning a loved one out of or into the hospital and out of/into group homes for someone not yet familiar with navigating the patchwork of mental health services. 



    What would we tell providers if we could?



    Want us to cover a topic? comment to share?
    Facebook page @Schizophrenia3Moms
    @SZ3MomsTrenches -  twitter
    Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
    Miriam Feldman – Artist, Mom, Author “He Came in With It”
    Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)

    • 44 min
    An Emotional Response to the Hearing Voices Network: Anti-Medication ? (ep 46)

    An Emotional Response to the Hearing Voices Network: Anti-Medication ? (ep 46)

    Guest:Freddie de Boer
    On May 17th, the NY Times Magazine published an article by Daniel Bergner, based on his book The Mind and the Moon. 
    The article reports on psychosis , from the point of view of Caroline, who is beset by the hallucinations of psychosis. 
    Daniel Bergner explores how to seek a deeper engagement with ourselves and one another—and how to find a better path toward caring for our minds.
    Or - does he leave out a huge piece of the picture?
    So many comments about the article, which seemed biased toward the Hearing Voices Network. One such response, from Freddie deBoer, has generated over 7,000 YouTube views so far.
    Links:
    NYTimes article:
    https://www.nytimes.com/2022/05/17/magazine/antipsychotic-medications-mental-health.html

    Freddie deBoer’s response:
    https://youtu.be/yKB6F_VYuZY


    https://freddiedeboer.substack.com/p/my-response-to-daniel-bergners-new?s=r


    Want us to cover a topic? comment to share?
    Facebook page @Schizophrenia3Moms
    @SZ3MomsTrenches -  twitter
    Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
    Miriam Feldman – Artist, Mom, Author “He Came in With It”
    Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
     

    • 41 min
    Mental Health Crisis on Campus: Steps to Student Support (Episode 45)

    Mental Health Crisis on Campus: Steps to Student Support (Episode 45)

    According to NAMI, there is an undeniable and growing mental health crisis that demands both attention and action. 
    Covid-19 has only made things worse.
    Nearly 2 in 5 adults struggled with mental health issues in 2020, compared to about 1 in 5 adults before the pandemic. Among adults with mental illness, only 46% received treatment in 2020, a number that is far lower among Black Americans (37%), Hispanic/Latinx (35%) and Asian Americans (21%).
    The crisis is especially acute among youth and young adults, as trends that had already predated the pandemic have turned even more ominous. 
    In 2020, 75% of people aged 18–24 reported at least one mental health or substance use concern. 
    In 2021, emergency department visits for suspected suicide attempts were 51% higher among adolescent girls than in 2020.
    Today's guests are working to make things better for their fellow students who have mental illness issues.
    They are Mindy’s cousin's daughter, Claire Orth, who just graduated from the University of North Dakota, and Taylor Keane, her granddaughter, who will graduate from high school in Washington D.C. in two weeks. 


    1.Please introduce yourself and share how you became interested in mental illness.
    2. What do you see on your respective campuses so far as fellow students experiencing mental illnesses? Could you give a specific example?
    3. How have those observations/experiences inspired you to help? (Claire took some training at her school so she could better help fellow students and chose schizophrenia for her senior capstone projects. Taylor also chose mental illness for a school project and for her Youth In Government legislation. She's currently doing an internship at the Treatment Advocacy Center where she is focusing on youth.)
    4. All of us wrote in our books about missing early signs of our sons' illnesses. Do you think your friends' parents today are doing any better? 
    5. What would you say to parents whose children are in high school or college and experiencing signs of mental illness? 
    6. Are your friends aware that young people who smoke marijuana are five times more likely to have psychosis? 
    7. Have you noticed anything that your schools have done that have helped students? Is mental illness part of the curriculum? School support staff?

    Links:

    https://www.mentalhealthfirstaid.org/



    Want us to cover a topic? comment to share?
    Facebook page @Schizophrenia3Moms
    @SZ3MomsTrenches -  twitter
    Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
    Miriam Feldman – Artist, Mom, Author “He Came in With It”
    Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
     
     

    • 41 min

Customer Reviews

4.5 out of 5
39 Ratings

39 Ratings

carolineas13 ,

Thank you

Gracias por hablar sobre este tema🥺💕

KarenPJNJ ,

Community and Caring

I have listened to your podcast from its inception. “Trenches” is an apt word as battling Schizophrenia feels like war, for the patient and for the family. Thank you so much for providing a strong sense of community and caring. It’s hard to have hope throughout the numerous and continuous ups and downs of this horrible illness. My 29 year old son is so low functioning and lives in a delusional state for much of the time. We mourn the incredible person that he was, and still is, though hidden and unreachable. It’s been a long torturous path for over 8 years now and it truly helps to not feel so alone. I so appreciate all of your time, attention and advocacy. I encourage you to monetize your podcast and get sponsors. You all deserve to be paid for what you do!

livieitup ,

Schizophernia

I'm so grateful to have found your show as a mother with an adult send a schizophrenia we've been dealing with the ups and the downs of this disease and your show gives me hope

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