85 episodes

Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.

Schizophrenia: Three Moms in the Trenches Randye Kaye

    • Health & Fitness
    • 4.7 • 75 Ratings

Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.

    Ambiguous Loss - Living with grief caused by SMI (guest: Jerri Clark) (Ep. 85)

    Ambiguous Loss - Living with grief caused by SMI (guest: Jerri Clark) (Ep. 85)

    We’re  delighted to welcome a return guest, Jerri Clark.
    Jerri first joined us on Episode 32, “Channeling Grief and Anger into Advocacy and Acceptance”, and is now working with TAC (Treatment Advocacy Center-, see Episode 71 with Kathy Day. Episode 31  with Lisa Dailey, Episode 35 with Sabah Muhammad ), ) as Family Resource and Advocacy Manager. She has a fellowship as TAC’s DJ Jaffe Advocate this year. Jerri is a family member whose son with SMI died from suicide.


    The six coping strategies (not linear)
    Normalize AmbivalenceFind MeaningAdjusting MasteryReconstruct IdentityRevive AttachmentDiscover New Hope

    We Ask:


    1. Tell us a bit about your story, Calvin and how you came to your present job at TAC.


    2. Tell us about your fellowship as TAC's DJ Jaffe Advocate


    3. Who coined the term Ambiguous Loss, and what does it mean?


    4. How does one process this complex form of grief when there is little recognition of its impact?


    5. How are you developing strategies for dealing with Ambiguous Loss? - what is the  
    ambiguous loss family training project ? 




    Links:
    https://www.treatmentadvocacycenter.org/


    help@treatmentadvocacycenter.org


    Dr Pauline Boss books


    Facebook: TAC Family Support Group:
    https://www.facebook.com/groups/tacsupport




    Mindy and her book: https://mindygreiling.com/
    Randye and her book: https://www.randyekaye.com/
    Miriam and her book: https://www.miriam-feldman.com/



    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman

    • 49 min
    From Bedlam to the Business of Helping Others: Returning Guest, Eric W. T. Smith, (Ep. 84)

    From Bedlam to the Business of Helping Others: Returning Guest, Eric W. T. Smith, (Ep. 84)

    We’re  delighted to welcome a return guest, Eric W.T. Smith. He was also interviewed  in Season 1 of 3 Moms (episodes 15 and 16, an AOT Success Story)
    In Eric’s words:
    “There are peers and supports in large numbers for depression, anxiety, eating disorders, and a host of other diagnoses, but nothing much available in the world of anosognosia and psychosis where a person in recovery and/or their parents/caregivers can regularly reach out and schedule a meaningful block of time to discuss their individual and/or family needs related to anosognosia and psychosis with a person who successfully went through all of that.


     I'm here for people to connect with and help them accomplish what meaningful recovery means to them, and to build a bridge of trust and communication between them and treatment providers, within their own families, and with me as someone who lived much of what they are going through or have gone through. That should be part of what we do for appropriate policy and practice, but it isn't.”
    Over the years Eric Smith has spoken publicly about his journey through mental illness and addiction to a wide variety of audiences. Now he is a nationally recognized mental health advocate, public speaker, and consultant. 
    He is a Commissioner at Texas Judicial Commission on Mental Health and owner of Eric WT Smith Consulting LLC
    Part of his story is written about in Bedlam, authored by Peabody Award-winning Kenneth Paul Rosenberg, MD. 
    Part of Eric’s journey is included in the book You Are Not Alone: The NAMI Guide to Navigating Mental Health
    Eric also wrote a chapter about being incarcerated without treatment for severe mental illness in the 2022 anthology Navigating Bipolar Country -  and was featured in People magazine in 2023.


    Links:
     
    www.ericwtsmith.com  -- my consulting business, Eric W. T. Smith Consulting, LLC

    https://www.youtube.com/watch?v=um-Zb-xr9Bc  -- a link to a presentation about my consulting services with relevant background info that lead to the creation of my consulting business
    https://www.texasjcmh.gov/about-us/commissioners/smith-eric/  -- here is a link to my Commisioner bio for the Texas Judicial Commision on Mental Health
    https://www.texasjcmh.gov -- here is a link to the main page for the Texas Judicial Commision on Mental Health
    eric@ericwtsmith.com -- people can email me directly if they would like to do so
     https://www.facebook.com/groups/www.teamdanielrunningforrecover.org 


    Eric on Linkedin:
    https://www.linkedin.com/in/ewsmith/


    -CURESZ has a new book available for purchase (as of 2/9/24 on Amazon, although it may also be for sale elsewhere), and I cont
    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman

    • 54 min
    What Do I Do Now?: THE Handbook for SZ Caregivers: guest, Nicole Drapeau Gillen (Ep. 83)

    What Do I Do Now?: THE Handbook for SZ Caregivers: guest, Nicole Drapeau Gillen (Ep. 83)

    Schizophrenia, a complex and harrowing illness, presents an ongoing challenge for caregivers. In this groundbreaking book, discover the missing links that empowers you to navigate the labyrinth of decisions and actions required to provide the best care for your loved one.
    Nicole Drapeau Gillen is a mother who recognized that caregivers like herself often find themselves thrust into this challenging, complex and stressful situation with little clear guidance on how to help a loved one with a serious mental illness.
    Her goal is to create a practical and actionable handbook that offers valuable insights into caring for your loved ones facing this formidable condition.  With a 35-year background in the business world as a former IT executive and Chief Marketing Officer (CMO), NIcole now aims to channel her skills into a more meaningful endeavor - supporting fellow caregivers.
    She lives in Virginia and loves teaching fitness, taking care of her family and learning how to be a better caregiver.
    This book addresses everything from setting up disability support, to legal support (guardianship, conservatorship, or power of attorney), to financial support (Supplemental Security Income, Social Security Disability Insurance), to insurance (Medicaid), to estate planning and trusts. It further provides resources on the role of the government, jails, rehabilitation, housing and homelessness.


    What was your motivation for writing this?3 moms - what are your favorite sections?Nocole - What's happened since the book has been released?Is there anything I would have done differently, now that it is released?What kind of response have I received, and from whom?What has surprised you most in the responses?What's next?Links:
    Schizophrenia and Related Disorders: A Handbook for Caregivers: https://www.amazon.com/Schizophrenia-Related-Disorders-Handbook-Caregivers/dp/B0CQMM889H


    Schizophrenia and Other Related Disorders. Handbook For Caretakers 
    Nicole’s 
     Website,
     Facebook page; and 
    Tiktok.
    Mindy and her book: https://mindygreiling.com/
    Randye and her book: https://www.randyekaye.com/
    Miriam and her book: https://www.miriam-feldman.com/



    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman

    • 1 hr
    Ending the Criminalization of Mental Illness: Judge Steve Leifman (Ep. 82)

    Ending the Criminalization of Mental Illness: Judge Steve Leifman (Ep. 82)

    Ending the Criminalization of Mental Illness: Guest Judge Steve Leifman(Ep. 82)

    It is estimated that more than two million arrests in the United States each year involve people with Serious Mental Illnesses (SMI) – half of which are homeless at the time of their arrest.
    Jails have become places where a disproportionate number of people with SMI spend significant amounts of time; their ties to the community severed, their treatment needs unmet, and their illnesses made worse. 
    But it doesn't have to be that way - This episode dives into a system that works, saves money, and helps those it used to harm.

    Judge Steve Leifman is the Associate Administrative Judge of the Miami-Dade County Court Criminal Division.
    He will discuss his journey into the mental health system, the legal and medical history that led to America’s mental health crisis and the essential elements necessary to create an effective system of care that ultimately will transform the mental health and criminal justice systems and make jail the last option for people with serious mental illnesses, not the first.


    Links:
    The 11th Judicial Circuit Mental Health Project was featured on the cover of Governing Magazine - August 2015 edition.
    http://www.governing.com/topics/public-justice-safety/gov-miami-mental-health-jail.html

    The Definition of Insanity – PBS Documentary (April 14, 2020)
    https://doifilm.com/

    Miami Center for Mental Health and Recovery Website:
    https://miamifoundationformentalhealth.org/
     
    https://www.cbsnews.com/miami/news/miami-center-for-mental-health-and-recover-on-the-verge-to-opening-its-doors/ 
     
    Conference of Chief Justices (CCJ)/ Conference of State Court Administrators (COSCA) National Judicial Task Force to Examine State Courts’ Response to Mental Illness Report and Recommendations
    https://www.ncsc.org/__data/assets/pdf_file/0031/84469/MHTF_State_Courts_Leading_Change.pdf


    Mindy and her book: https://mindygreiling.com/
    Randye and her book: https://www.randyekaye.com/
    Miriam and her book: https://www.miriam-feldman.com/
    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman

    • 1 hr 9 min
    Turning the Tables: Young Journalists Ask the Moms about Mental Illness Issues (Ep. 81)

    Turning the Tables: Young Journalists Ask the Moms about Mental Illness Issues (Ep. 81)

    Youthcast Media Group (formerly Urban Health Media Project) trains high school students from under-resourced communities to report, write, and broadcast stories about health and social issues that affect their neighborhoods and cities. 
    The goal is to help students better understand and communicate about health issues and disparities that directly affect them, and to foster a generation of diverse journalists that will enter and enrich news organizations across the country.
    The students learn to harness the power of their voices as journalists to share the rich experiences of their communities in a way that honors, informs and empowers.
    And today, they turn the tables to ask the 3 Moms the questions that matter to them - as youth, and as journalists.
    The founder Jayne O’Donnell, is on a plane and couldn’t join us, but we do have producer/instructor Marianne O’Hare .
    O’Donnell  won numerous awards in her nearly 30 years as an investigative reporter (broke the story on how early airbags were harming small children - which led to the industry standard changing) and later health care journalist at USA Today. She founded Youthcast Media Group about 6 years ago, understanding that people in underserved communities are more impacted by the social determinants of health. And that it was important to provide the tools of journalism to inspire young people from these communities to shine a light on issues impacting their lives and their futures.

    Our High School Journalists:
    1)     Carmah Owen: Freshman at Herndon High School, Herndon Virginia. Recently joined as a student contributor to YMG. She is just embarking on her journalism training journey. 
     
    2)     Safa Janjua: She is a sophomore at Herndon High School in Herndon, Virginia. She recently joined the Youthcast Media Group and is producing social media posts on topics around mental health and distracted driving. She’s not sure what her college major will be yet. But she thinks her dream job would be in photography. 
     
    3)     Kayla Johnson – is a Senior at Christo Rey High School in Philadelphia. She loves to read, write, cook and do art – anything that allows her to showcase her creativity. She has been producing content for the Youthcast Media Group on topics such as distracted driving and the decriminalization of mental illness. She is the president of several clubs at her high school and is looking forward to studying broadcast communications or public relations in college.  She’s applied to several colleges including Howard University and Princeton.
    They ask:
    1)    Could you help us understand what that diagnosis really means - and why it’s so devastating?
     2)   What’s it like from their perspective? How do they describe what it feels like to them? Delusions. Voices. It must be so terrifying for them. 
    3)    And what you think is wrong about how our system responds to mental illness? How do we ‘decriminalize’ it?
     4)     You all write about how you had to deal with the fact that sometimes, during psychotic episodes – when they were having delusions - your sons have threatened violence, against you, or themselves, or others. How have you learned to handle that phase of the illness?  It must be so frightening. How do you protect yourselves as well as them? 
    5)     You all talk about the fact that the laws have to change to better support families going through this. Mindy – as a state lawmaker – you actually DID change some law
    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman

    • 58 min
    Hope for Troubled Minds -Tributes to Courage and Love . Guest: Tony Roberts (Ep. 80)

    Hope for Troubled Minds -Tributes to Courage and Love . Guest: Tony Roberts (Ep. 80)

    Tony is a man with an unquiet mind who delights in the One who delights in him. He is diagnosed with rapid cycling bipolar disorder with psychotic features. With a lot of professional and spiritual help, he has published three books — Delight in Disorder: Ministry, Madness, Mission; When Despair Meets Delight: Stories to Cultivate Hope for Those with Mental Illness. And, Hope for Troubled Minds: Tributes to Those with Brain Illnesses and Their Loved Ones.
    (contributors to Hope for Troubled Minds include friends of the podcast Katie R. Dale (associate editor), Jerri Clark,  Laura Pogliano, Charla Collins, Leslie Carpenter,Kevin “Earleybird” Earley, Catherine J. Rippee-Hanson and Randye Kaye)
    Q; What are the 3 top things you hope listeners will take away from your personal journey/ story? - many accomplishments, yet in your own words, a “mental health disability”
    Q: What are the top 3 things you want people to take away from your latest book?
    Q; All net proceeds from the sale of this book will be evenly distributed to three vital mental health causes: the National Alliance on Mental Illness (NAMI), the Treatment Advocacy Center (TAC), and Delight in Disorder Ministries (DiDMin). - can you say more about these choices?
    Q;“It is impossible to read this collection without a moist eye, an overwhelming anger at the cruelty of brain diseases, exasperation at society’s failure to help, and a deep admiration for the undaunted spirit of those who speak out and advocate for their fellow travelers on such a difficult path.” - Pete Earley, author of CRAZY: A Father’s Search Through America’s Mental Health Madness, finalist for the 2007 Pulitzer Prize


    Book TOC:
    Part I. Letters
    Chapter 1. To the Children
    Chapter 2. To the Parents
    Chapter 3. To the Partners
    Chapter 4. To God, Self, and Others


    Part II. Song Lyrics and Poetry
    Chapter 5. Song Lyrics
    Chapter 6. Poetry
    SZ 3 moms Episodes referenced:
    Clubhouses - Episode 30




    One excerpt:
    He’s Still in There - 
    Gibby
    He is still in there. From time to time, I get to see my sweet, loving son. We get a few words that remind me of the son he once was. Then the creature that has taken up residence in my son’s brain realizes he is gone and comes for him. Then we are back in the land of conspiracy and I know he is gone again. Let the worry begin again. Till the next time, my son. I'll be waiting.


    Links:
    Tony’s Website:
    https://delightindisorder.org/
    Hope for Troubled Minds book:
    https://a.co/d/5aLk5jf



    Mindy and her book: https://mindygreiling.com/
    Randye and her book: https://www.randyekaye.com/
    Miriam and her book: https://www.miriam-feldman.com/



    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman

    • 50 min

Customer Reviews

4.7 out of 5
75 Ratings

75 Ratings

LeeAnn~M ,

We are not alone

Thank you for this podcast! Thank you for bringing the issues that surround having a loved one with SMI, to the open to be talked about. Helping to reduce the stigma. Thank you ladies for being so honest and open to help all of us relate and not feel so alone. This is the first podcast that has really helped me step outside and talk about in the open about the difficult difficulties that’s around trying to care for our son.~ LeeAnn

flowfrustrate ,

Very helpful

Love the podcast. Makes me feel less alone. I have an adult daughter with bipolar, OCD, (and likely borderline personality disorder, too). So although it’s not schizophrenia, I totally relate to everything you all talk about. I appreciate your broadening the topic to SMI since it’s all so debilitating to our adult children.

Flair7777 ,

Anosognosia

I learned this term today listening to the podcast. Thank you for this lifeline! This is so important!

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