Signalise: a Dazzle4Rare Podcast

Kimberly Thomas-Tague
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Signalise: a Dazzle4Rare Podcast

The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages. We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.

  1. 1월 5일

    EP39 Rare and Relevant News Stories of 2023 TL;DR and Update

    Welcome to the first 2024 episode of Signalise: a Dazzle4Rare podcast! Remember, we’re now airing on Fridays. In this episode, we’re looking at your rare and relevant TL;DR for 2023 with some of the rare disease stories and news that had the most eyes on in 2023.

    18분

  2. 1월 3일 · 보너스

    Bonus: 2024 Podcast Schedule Change

    A quick ”bonus” episode to drop to let you know that we’ll be making some scheduling changes and 2024 will hopefully fingers crossed be a year of positive changes. But first, a big thanks to our faithful listeners for tuning in today and to this bi-monthly podcast. From this month, January 2024, we’re shifting our podcast schedule to Fridays, keeping the podcast bi-monthly.

    2분

  3. 2023. 12. 06.

    EP37: Four Paediatric Holiday Cheer Stories and UHC Day 12th December

    In this festive episode, Kimberly shares a little holiday spirit by with heart-warming stories of children with rare conditions and their families finding hope.

    8분

  4. 2023. 11. 21.

    EP36: Rare and Relevant TL;DR and an Update on ”Take Care of Maya”

    Please note there are audio issues with this episode. I’ll be working to upload an improved version later on release date. In this, Kimberly shares a range of awareness events including International Epilepsy Awareness Day and World Pneumonia Day.

    26분

  5. 2023. 11. 08.

    EP35: November TL;DR Feat. a Message for Menkes Awareness

    In this episode, Kimberly shares several important awareness events happening in November.

    20분

  6. 2023. 10. 25.

    EP34: 2023 Halloween Special: Reel Struggles On and Off Screen for Rare Heros in Media, Feat. Original Spooky Jokes by Kimberly

    In this episode Kimberly talks about actors with rare or less commonly understood conditions in sci-fi and horror media. The discussion begins with Bruce Willis, who has recently been diagnosed with a rare form of dementia. She also describes three fictional rare conditions we’re all very familiar with.

    25분

  7. 2023. 10. 11.

    EP33: Kimberly Speedruns an October Rare and Relevant TL;DR Plus Network Good News

    Please come back later today for links to the articles and social media profiles Kimberly mentioned in today’s episode. We’ll be making updates and corrections as needed.

    11분

  8. 2023. 09. 26.

    EP32: September Rare and Relevant TL;DR and Returning Guest Daniel De Fabio on Global Genes Rare Week 2023

    This week, we wrap up September, share October awarenes events, and feature some of Kimberly’s conversation with Daniel De Fabio of The Disorder Channel as they discuss the recent Global Genes Rare Week in San Diego, California.

    21분
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예고편

소개

The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages. We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.

정보

  • 제작진
    Kimberly Thomas-Tague
  • 방송 연도
    2022년 - 2024년
  • 에피소드
    41
  • 등급
    전체 연령 사용가
  • 저작권
    © Copyright 2023 All rights reserved.
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    Signalise: a Dazzle4Rare Podcast

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