Uncommon Lungs: Perspectives From the CF Community

Everyday CF by Vertex Pharmaceuticals
Uncommon Lungs: Perspectives From the CF Community

Everyone’s experience with cystic fibrosis (CF) is unique. Listen along as different individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey.

集數

  1. 11月5日 · 附贈內容

    Supporting Every Breath

    Tune in for a bonus episode with Carissa! She's back, and this time, she's diving even deeper into very relatable topics about caregiving for a loved one with CF. This time, she’ll cover vulnerability, navigating your child’s dating and love life, and tackling negative self-talk as a caregiver.

    42 分鐘

  2. 11月5日

    Learning How to Cope

    Raising a little one with cystic fibrosis (CF) is complicated. Carissa gets vulnerable about how she copes through the hardships of caregiving, revels in the joys of being a mother to a child with CF, and makes space for both things to be true at once.

    38 分鐘

  3. 3月26日

    Finding a Flow That Fits You

    Get to know opera singer, yoga teacher, community leader, and entrepreneur Katie as she explains the unique experiences that led her to where she is today and shares how she incorporates mindfulness and joy into her routine on a daily basis.

    27 分鐘

  4. 3月26日

    Take a Mindful Moment

    Find a quiet space and follow along with this relaxing mindfulness meditation led by yoga teacher, Katie Malik.

    10 分鐘

  5. 2023/11/29

    Embracing Your Personal Journey with CF

    From leaving Guatemala with her family in search of crucial CF care to getting her masters and becoming a bilingual speech-language pathologist, Maria shares how her positive outlook and strong support system helped her stay true to herself every step of the way.

    23 分鐘

  6. 2023/10/19 · 附贈內容

    Reflecting on Past Conversations

    Reminisce on highlights from previous podcast episodes and get some hints about future episode topics with host, Julia Rae.

    6 分鐘

  7. 2022/09/27

    Making Your Career Work For You

    Finding a career you enjoy can be so fulfilling. John and Julia discuss how they’ve each cultivated a work-life balance that fits their lifestyle and HR expert, Susan, gives examples of workplace accommodations and job search tips.

    35 分鐘

  8. 2022/09/13

    Facing Finances

    Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.

    28 分鐘

  9. 2022/08/29

    Building Body Awareness

    Belle talks through her relationship with her body and how her experience as a student athlete has affected that relationship. Dietitian, Molly, provides a few methods for listening to your body and making sure it’s getting the nutrition it needs.

    31 分鐘

  10. 2021/07/22

    Coming Of Age Stories

    A conversation between Julia Rae & Tara.

    21 分鐘

  11. 2021/07/22

    Caregiver Experiences

    A conversation between Julia Rae, Jen, & Michael.

    24 分鐘

  12. 2021/07/22

    Staying On Track & Making Time For Hobbies

    A conversation between Julia Rae & Grace.

    19 分鐘
  • 共 12 集

5
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8 則評分

簡介

Everyone’s experience with cystic fibrosis (CF) is unique. Listen along as different individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey.

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