Talk Fragile X

Talk Fragile X
  • 5.0 (15)
  • NON-PROFIT
Talk Fragile X

Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.

  1. JUL 5

    An Update on our Fragile X Journey!

    During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!

    21 min

  2. JUL 1

    An Important Message from Talk Fragile X

    It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!

    22 min

  3. MAY 31

    Talk Fragile X is Back with News!

    It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!

    17 min

  4. 11/06/2023

    Why Should We Advocate for Inclusion in the Workplace and in the Community?

    October got away from me, but I still wanted to share this important episode with you all! After all, Disability Employment Awareness shouldn’t just be focused on for one month out of the year, but rather every day! It’s an ongoing effort that needs our support!

    21 min

  5. 10/12/2023

    Special Guest: Rob Snow, Director of the CEO Commission for Disability Employment

    The CEO Commission for Disability Employment was created to increase opportunities for individuals with disabilities to obtain and/or maintain employment. The CEO Commission for Disability Employment focuses on three main goals: Policy, Practice and Culture! Tune in to learn more about CEO Commissions purpose, current focuses, and what Disability Employment Awareness Month means to them! You don’t want to miss this opportunity to hear from such a kind and mission driven Director, Rob Snow!

    56 min

  6. 10/05/2023

    Disability Employment Awareness Month 2023

    This month is Disability Employment Awareness Month! I'm SO passionate about this very topic! As an Employment Specialist who sees and experiences firsthand the challenges and difficulties of promoting inclusion in the workplace for our neurodiverse peers, I share my experiences, encouragement and support! Tune in and share with your friends, family members, educators and even your boss!

    22 min

  7. 08/12/2023

    An Update from FRAXA Research Foundation’s Katie Clapp & Holly Roos!

    I had the pleasure of welcoming Katie Clapp and Holly Roos from FRAXA Research Foundation on this weeks episode of Talk Fragile X! Katie and Holly talked all things World Fragile X Day 2023, as well as FRAXA’s significant research advancements that have been made this year, and what they look forward to in 2024. You don’t want to miss this episode!

    25 min

  8. 06/30/2023

    Fragile X Awareness Month & A Suprise Announcement!

    Fragile X Syndrome is the leading genetic cause of Autism. It's caused by a mutation of the FMR1 gene responsible for cognitive and behavioral development. Fragile X is often passed on unknowingly. The month of July is Fragile X Awareness Month! An opportunity to continue to spread more awareness of Fragile X, and celebrate the organizations like FRAXA Research Foundation and The National Fragile X Foundation and their efforts to support and find effective treatments for individuals living with Fragile X. It's also an important opportunity to spread awareness of Fragile X to those who may not have otherwise heard of it. In this week's episode, I talk about the importance of awareness month, as well as an EXCITING special announcement! Tune in to find out more!

    27 min
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5
out of 5
15 Ratings

About

Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.

Information

  • Creator
    Talk Fragile X
  • Years Active
    2020 - 2024
  • Episodes
    67
  • Rating
    Clean
  • Copyright
    © Talk Fragile X
  • Show Website
    Talk Fragile X

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