The Blood Cancer Experience

LLSC
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The Blood Cancer Experience

A podcast by the Leukemia & Lymphoma Society of Canada. This podcast is produced for people affected by a blood cancer. We will speak to experts about current topics such as treatments, diagnosis, and research. We will also hear personal stories from people affected by a blood cancer. Please note that this podcast should not be taken as medical advice.

  1. JAN 16

    "I'm still here." Living with multiple myeloma for 12 years

    "I'm an example of what can be done for someone with multiple myeloma," says David Johnson, of B.C., first diagnosed with the disease in 2012 in his early 50s. Having had 2 relapses, 2 stem cell transplants, and participated in a clinical trial for CAR T-cell therapy, David is in remission today. He helps others in the blood cancer community by volunteering for couple of programs at The Leukemia & Lymphoma Society of Canada. Also in this podcast, Dr. Anthony Reiman, a medical oncologist at St. John Regional Hospital in New Brunswick, talks about advances in recent years in treatment for and longevity of people with multiple myeloma. For more information about this form of blood cancer, please visit:https://www.bloodcancers.ca/i-have-blood-cancer/myeloma/multiple-myeloma

    19 min

  2. 10/16/2024

    Graft vs Host Disease (GvHD): Lived experience + medical expertise

    Graft vs Host Disease, known as GvHD, is a side effect of a life-saving procedure. People who undergo an allogeneic stem cell transplant - where a donor's stem cells are transplanted into the recipient - can experience either acute or chronic GvHD. Listen to blood cancer survivor Libby Goszer who shares her coping strategies for living with chronic GvHD, a condition she describes as "a continual rollercoaster ride that has both expected and unexpected twists and turns." The B.C. resident has lived with cGvHD for 16 years; she's learned to enjoy the 'ride' of her life as a mom, wife, professional, and volunteer. Also in this episode, a Canadian hematologist-oncologist and a specialist in GvHD, Dr. Kirk Schultz talks about chronic as well as acute GvHD, symptoms, and advances in medical treatments. Read more about GvHD from The Leukemia & Lymphoma Society of Canada (LLSC) with these easy-to-understand, short factsheets: Understanding GvHD - https://www.bloodcancers.ca/sites/default/files/2024-10/lls1768-f-fs-gvhd-understand-e03.pdf Treating GvHD - https://www.bloodcancers.ca/sites/default/files/2024-10/lls1769-c-fs-gvhd-treating-e02.pdf If you have any questions about your blood cancer experience, or that of a loved one, please reach out for personalized support from a trained LLSC community worker in your region. Find their contact information at: https://www.bloodcancers.ca/i-have-blood-cancer/how-we-can-help/access-one-one-personalized-support You are not alone.

    27 min

  3. 07/18/2024

    Lending an ear, with heart: Personalized support at any time in a blood cancer experience

    It may be the first time you've talked about your blood cancer, since your diagnosis, with anyone outside immediate family, or it may be after years of living with cancer... Either way, the LLSC community services lead in your region is ready to listen and support you in any way you need. Geoffrey Molle, one of those leads, talks about the confidential, safe space he creates for anyone impacted by a blood cancer, in this podcast episode. Access one-on-one personalized support with the community service lead in your region; details at: https://www.bloodcancers.ca/i-have-blood-cancer/how-we-can-help/access-one-one-personalized-support

    23 min

  4. 06/06/2024

    Psychosocial care for kids, teens and their parents going through blood cancer

    Tziona Lugasi, clinical psychologist in the hemato-oncology department at CHU Sainte-Justine, talks about the impact of cancer on children, teens and their parents, and the transition from pediatric care to adult health care. Are you a parent of a child with a blood cancer? Find more resources on the LLSC website at: https://www.bloodcancers.ca/i-care-someone-blood-cancer/blood-cancers-kids-teens-young-adults/childhood-blood-cancers#for-parents-and-caregivers

    28 min

  5. 04/18/2024

    Chronic anxiety: Mothering a toddler with acute myeloid leukemia

    Maura C. had recently returned to work after maternity leave when her daughter, then 15 months old, was diagnosed with acute myeloid leukemia (AML) and immediately admitted to the oncology ward. “This is a nightmare I’m not waking up from,” Maura thought over the 5 months her toddler was in the hospital. She says she and her husband moved from their initial “fight-or-flight” mode, to chronic anxiety – both over the treatment period and afterwards when “we felt anxiety about the cancer coming back.”  Maura acknowledges that support for mental health was important for her. "Our family doctor was an ally and a resource,” she says, “and I had an "amazing therapist" to deal with marriage strain challenges as well, and support from close friends and her parents.  Are you a parent of a child with blood cancer? Find resources and support here: https://www.bloodcancers.ca/i-care-someone-blood-cancer/blood-cancers-kids-teens-young-adults/childhood-blood-cancers#for-parents-and-caregivers

    22 min

  6. 03/26/2024

    'Getting my husband back': A caregiver's story

    The emotional cost of caregiving when a loved one has a blood cancer is no small matter – as Saskatchewan’s Lori Galbraith can attest. The mother of four was the caregiver of her husband Jim, who was diagnosed with acute myeloid leukemia (AML) and underwent a stem cell transplant. “The hardest part was providing positive emotional support [to my husband] when I was worried and wondering if I’d ever get back the husband I had prior to AML... I’m trying to support him through it all – but what do I do with my thoughts?” Lori says in this podcast. Are you caring for someone with a blood cancer? The Leukemia and Lymphoma Society of Canada has support, services, and resources for caregivers, including a peer-to-peer support program. Visit:⁠ https://www.bloodcancers.ca/i-care-someone-blood-cancer⁠

    13 min

  7. 02/20/2024

    Palliative approach to care: Healthcare experts

    The term, “palliative approach to care” refers to a person-centered, holistic approach including emotional, spiritual, social and psychological care, offered by a larger team of healthcare professionals (beyond doctors and nurses) and introduced earlier in a cancer experience for full integration into an individual’s care plan. Valerie Fiset, director of the Champlain Hospice Palliative Care Program at the St-Vincent Hospital in Ottawa hopes individuals and their families shift their perspective on palliative care "from being afraid they’re coming to the end of life, and start to feel that palliative care is going to support their well-being and quality of life."

    15 min

  8. 02/08/2024

    Diffuse large B-cell lymphoma (DLBCL): Researcher interview

    Researchers are focused on maintaining an excellent cure rate in diffuse large B-cell lymphoma (DLBCL) and minimizing some of the treatment individuals receive – reduce the number of cycles of chemotherapy or avoid radiation, and looking at new drugs to improve the cure rate for others with DLBCL. Join us as we chat with Dr. John Kuruvilla, working as a hematologist-oncologist for 20 years (currently at the Princess Margaret Cancer Centre in Toronto) including as a researcher in DLBCL, which is the largest form on non-Hodgkin lymphoma. Learn more about DLBCL at:  https://www.bloodcancers.ca/diffuse-large-b-cell-lymphoma-dlbcl

    18 min
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About

A podcast by the Leukemia & Lymphoma Society of Canada. This podcast is produced for people affected by a blood cancer. We will speak to experts about current topics such as treatments, diagnosis, and research. We will also hear personal stories from people affected by a blood cancer. Please note that this podcast should not be taken as medical advice.

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