The Grace, Grief and Grit Podcast

Dee Daniels Media Podcast Network
  • 5.0 (8)
  • EDUCATION
The Grace, Grief and Grit Podcast

Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.

  1. MAY 22

    Countdown to the 4th Annual Hallie Grace Memorial Butterfly Ball for EB

    In this heartfelt episode of the 'Grace, Grief, and Grit' podcast, producer Dee Daniels joins Anne and Joe Davis as they prepare for the fourth annual Hallie Grace Memorial Butterfly Ball for EB.  Anne and Joe discuss their journey with Heroes for Hallie Grace, their nonprofit organization founded in memory of their daughter, Hallie Grace. --- They talk about the impactful initiatives they have launched, including the Butterfly Bundle Welcome Boxes, Wings of Care, and the Forever in Flight Memorial Boxes, emphasizing the personalized care and support provided to families affected by EB. The episode also highlights the upcoming ball's new venue at the Morris Center, the planning that goes into the event, and the excitement surrounding the community's participation and contributions. Listeners are encouraged to support the cause and experience the inspiring stories of families within the EB community.   GRAB YOUR TICKETS TO THE BALL HERE   We are officially a 501(c)(3) organization, and our Mission is three-fold: 1. Raise Awareness 2. Fund vital research and 3. Aid children with EB and their families in any way we can. We take in donations for the following purposes: Put on Fundraisers or other Events to further support our cause and raise awareness Partner with and donate to other well-known EB-related foundations and medical professionals/researchers working hard to support EB families and find treatments/an eventual cure Send free, customized "Butterfly Bundle" Welcome Boxes to support new EB families with bamboo clothing, special blankets, self-care and family-building items, books, and resources/support for all members of the family, including siblings Meeting the needs of individuals and their families still living with EB by filling any gaps with our "Wings of Care" initiative (examples include providing emotional support, finding resources, or providing much needed medical supplies, special clothing, equipment, etc. depending on what the individual or family needs in that moment) Support families that have lost a loved one to EB with free, specially curated "Forever in Flight" Memorial Boxes, resources in their area, and ongoing support as well Work with the EB Community as a whole to develop educational materials for doctors and families based on patient/family experiences to help make navigating EB at least somewhat easier for everyone involved and presenting these materials at conferences and other related events to reach as many people as possible. LEARN MORE AND HELP IN THE FIGHT

    39 min
  2. Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson

    APR 2

    Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson

    In this poignant episode of the Grace, Grief, and Grit podcast, hosts Dee Daniels and Joe Davis engage in a heartfelt conversation with Krista Isaacson, a wife, mother of six, and author of 'Unbearable Burden.' --- Krista shares the devastating experience of losing her daughter Elora to a cancerous brain tumor and the emotional journey that followed. Through vivid storytelling, Krista recounts moments from Elora's life, the sudden discovery of her illness, and the difficult decision to remove her from life support. The discussion also touches on Krista's subsequent pregnancy, the healing process, and the impact of Elora's memory on her family. This episode is a profound exploration of love, loss, and the enduring strength of a grieving mother. Learn more about EB and the voices in this episode: MEET Krista Isaacson READ 'Unbearable Burden' Tap HERE to become a HALLIE HERO Tap HERE to connect with Hallie's Story EB in depth Meet the family behind Heroes for Hallie Grace Donate and Join the Fight Proudly hosted and produced by Dee Daniels Media: Podcast Production, High-Quality Editing, Content Coaching, and Show Promotion

    1h 6m

  3. MAR 20

    Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity

    In this episode of the Grace, Grief and Grit podcast, producer Dee Daniels and host Anne Davis welcome their special guest, Ariana Covarrubias.   Ariana, a 25-year-old from Los Angeles living with Recessive Dystrophic Epidermolysis Bullosa (EB), shares her inspiring journey of resilience and authenticity. She discusses the challenges and personal growth stemming from her condition, the importance of mental health and vulnerability, and her passion for makeup and content creation.   Ariana's story is a powerful testament to the strength of the human spirit and the impact of sharing one's true self. Listeners will find valuable insights into living with a rare condition, the evolution of resources and community support, and the significance of open conversations about difficult topics. Learn more about EB and the voices in this episode: MEET Ariana Covarrubias Reclaiming Beauty: Ariana Covarrubias and the ONE/SIZE Campaign SUBSCRIBE and MEET Ariana on YouTube Tap HERE to become a HALLIE HERO Tap HERE to connect with Hallie's Story EB in depth Meet the family behind Heroes for Hallie Grace Donate and Join the Fight Proudly hosted and produced by Dee Daniels Media

    47 min

  4. MAR 13

    Season 3 Kickoff: Sippin' on Grace, Grit, and Community

    In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Anne Davis talk with Marianne Ganem Poppell, owner of Savannah Master Calendar and local business advocate, about the importance of connections and community. --- The conversation highlights Marianne's diverse roles in supporting local businesses and nonprofits, including her work with Savannah Master Calendar, Simply Savannah Marketing, and various local boards. They discuss the successful 'Sips at the Station' networking events at Ardsley Station, benefiting different nonprofits monthly. --- The episode also covers the upcoming events, including a Sips at the Station night on March 18th benefiting Heroes for Hallie Grace, and plans for further community engagement. Learn more about EB and the voices in this episode: Meet Marianne & Savannah Master Calendar Tap HERE to become a HALLIE HERO Tap HERE to connect with Hallie's Story EB in depth Meet the family behind Heroes for Hallie Grace Donate and Join the Fight Proudly hosted and produced by Dee Daniels Media

    37 min

  5. FEB 6

    Finding Strength in Vulnerability: A Father's Journey Through Grief

    Welcome to the Grace, Grief and Grit Podcast Season 2 Finale. Join host Dee Daniels as she sits down for an emotional and inspiring conversation with Joe Davis, a father who has bravely shared his journey of losing a child.   ---   In this reflective episode, Joe opens up about the progress he's made since his last appearance, his struggles with vulnerability, dealing with triggers and grief, and the complexities of maintaining his faith. Joe also discusses the importance of being a vulnerable sounding board for others, the difficult balance of recalling certain memories as time goes on, and the hopeful advancements in EB research.   ---   This episode honors the strength and resilience it takes to navigate life's most profound losses while still finding moments of connection and joy.   Thank you for listening! Please rate and review this podcast - and share the episode with others to help spread awareness of the continuous work to find a cure for EB. Learn more about EB and the voices in this episode: Tap HERE to become a HALLIE HERO Tap HERE to connect with Hallie's Story EB in depth Meet the family behind Heroes for Hallie Grace Donate and Join the Fight Proudly hosted and produced by Dee Daniels Media

    1h 3m

  6. JAN 30

    A Night of Stars and Strength: The LA "Rock4EB" Experience

    In this episode of the Grace Grief and Grit podcast, producer Dee Daniels interviews Anne and Joe Davis about their impactful trip to Los Angeles for the Rock4EB event. --- They discuss the significance of the event, designed to raise awareness and funds for Epidermolysis Bullosa (EB), and their personal experiences meeting notable celebrities like Brad Pitt and Courteney Cox. --- The Davises share stories of kindness and generosity from the attendees, the emotional connections made, and the impressive sum of over a million dollars raised for EB research. They reflect on the importance of unity among EB organizations and how events like these inspire further growth and collaboration. Thank you for listening!  Learn more about EB and the voices in this episode: Learn more about EBMRF Tap HERE to become a HALLIE HERO Tap HERE to connect with Hallie's Story EB in depth Meet the family behind Heroes for Hallie Grace Donate and Join the Fight Proudly hosted and produced by Dee Daniels Media

    38 min

  7. JAN 9

    From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse

    Welcome to the 'Grace, Grief and Grit' Podcast!  In this episode, producer Dee Daniels and co-host Joe Davis welcome a very special guest - educator and author, Dennis Vanasse. Dennis shares his journey of writing inclusive children's books, focusing especially on his book 'Everyone Belongs' which discusses Epidermolysis Bullosa (EB). --- The conversation delves into Dennis's inspiration, the impact of his work, and the importance of acceptance and awareness in education. Dennis's background in special education and his personal experiences shape a compelling narrative around inclusivity and understanding. The episode also highlights advancements in EB treatments and the ongoing efforts to foster a supportive community for individuals with EB.   Thank you for listening!  Learn more about EB and the voices in this episode: Find Dennis on Instagram Tap HERE to see all of Deniss Vanasse's books Tap HERE to become a HALLIE HERO Tap HERE to connect with Hallie's Story EB in depth Meet the family behind Heroes for Hallie Grace Donate and Join the Fight Proudly hosted and produced by Dee Daniels Media

    38 min

  8. 12/03/2024

    Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday

    In this special episode of the Grace Grief and Grit podcast, producer Dee Daniels hosts a full house featuring Jenny Brewster, Tyler Cobb, and Megan Mason, all board members of Heroes for Hallie Grace. The group shares personal stories about how they became involved with the nonprofit and discusses the crucial mission of supporting families affected by Epidermolysis Bullosa (EB). --- They highlight various ways the community can contribute, including becoming a Hallie's Hero through monthly donations, participating in the annual Butterfly Ball, and supporting the organization's fundraising efforts. The episode emphasizes the importance of Giving Tuesday and aims to inspire listeners to donate and assist in the fight against EB. Key actions include visiting the website HallieFlies.com, following Tiny Butterfly Warrior on social media, and spreading the word about the organization's impactful work.   Thank you for listening!  Learn more about EB and the voices in this episode: Tap HERE to become a HALLIE HERO Tap HERE to connect with Hallie's Story EB in depth Meet the family behind Heroes for Hallie Grace Donate and Join the Fight Proudly hosted and produced by Dee Daniels Media

    52 min
See All (28)

Ratings & Reviews

5
out of 5
8 Ratings

About

Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.

Information

  • Creator
    Dee Daniels Media Podcast Network
  • Years Active
    2023 - 2025
  • Episodes
    28
  • Rating
    Clean
  • Copyright
    © Copyright 2023 All rights reserved.
  • Show Website
    The Grace, Grief and Grit Podcast

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