193 episodes

Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.

The Michael J. Fox Foundation Parkinson's Podcast The Michael J. Fox Foundation for Parkinson’s Research

    • News
    • 4.0 • 171 Ratings

Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.

    When Parkinson’s Hurts: Treatments for Managing Pain (Webinar Audio)

    When Parkinson’s Hurts: Treatments for Managing Pain (Webinar Audio)

    Many people living with Parkinson’s disease (PD) experience pain as a non-motor symptom. Pain can arise from stiff muscles, dystonia, nerve pain and even the disease progression itself. It’s a symptom that some find difficult to talk about, but there are options for people to find relief. In audio from this Third Thursdays webinar, listen to our expert panel of people living with PD, movement disorder specialists, and an integrative pain specialist discuss pain and Parkinson’s – why it happens, treatments to reduce it, and practical tips you can start incorporating today.  
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0 
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 57 min
    What I Wish I Had Known at Diagnosis

    What I Wish I Had Known at Diagnosis

    In this episode, hosted by Larry and Rebecca Gifford, members of The Michael J. Fox Foundation’s Patient Council and their care partners share their honest reactions to their diagnosis — from panic and denial to sadness and loneliness. This group of men and women of different ages and backgrounds offers words of wisdom about what to consider, what they’ve lost and what they’ve gained – and you’ll be surprised to hear how, for some, what they’ve gained is more than what they lost. 
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0    
    If you or a loved one was recently diagnosed and you’re wondering where to start, visit https://www.michaeljfox.org/newlydiagnosed to find helpful resources, including an educational guide, support groups and videos. 
    Whether you’ve been newly diagnosed or have been living with Parkinson’s for many years, The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org.  
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 36 min
    Real Talk from Women Living with Parkinson’s

    Real Talk from Women Living with Parkinson’s

    In this raw and emotional conversation, four women with Parkinson’s living in four different countries discuss the challenges faced because of delayed diagnosis, hormonal changes, lack of information and treatment, research inequity and gender biases. They share how they live better with the disease by advocating for themselves with their health care team and how they empower other women through awareness and activism. 
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0    
    Connect with other women who share your experiences with Parkinson’s. The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org. 
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 43 min
    Let’s Talk Taboos: Hard-To-Discuss Parkinson’s Symptoms (Webinar Audio)

    Let’s Talk Taboos: Hard-To-Discuss Parkinson’s Symptoms (Webinar Audio)

    Living with Parkinson’s comes with a variety of symptoms, some of which can be unexpected, and frankly, embarrassing. Drooling, bladder issues and sexual dysfunction are hard to talk about, even with loved ones or your doctor – and can affect your self-image,  your intimate relationships or the way you move through the world.  In audio from this Third Thursdays webinar, listen to our expert panel of people living with Parkinson’s, a care partner and a movement disorder specialist discuss Parkinson’s taboo topics and ways that you can navigate hard conversations and embarrassment.  
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0 
    Whether you’ve been newly diagnosed or have been living with Parkinson’s for many years, The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org.  
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 51 min
    Everyday Exposures to Parkinson’s: Environmental Connections to the Disease (Webinar Audio)

    Everyday Exposures to Parkinson’s: Environmental Connections to the Disease (Webinar Audio)

    The biology behind what causes Parkinson’s is complex, with only about a quarter of cases with clear genetic drivers. The environment – where you live, the air you breathe, the food you eat, the world around you – plays a key role in PD. Emerging research is showing environmental exposures to things like pesticides and pollution may interact with a person’s genetics and contribute to the disease. And there’s a myriad of other factors still being investigated, from the forces that drive your access to neighborhoods with clean air and water, good doctors and healthy living opportunities to psychosocial factors like stress and discrimination. In audio from this Third Thursdays Webinar, listen to our expert panel discuss the latest research and ways you can get involved to end preventable exposures and advocate for Parkinson’s policy.  
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0   
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 58 min
    Therapies for Tomorrow: How Better Clinical Trial Design Leads to Better Treatments (Webinar Audio)

    Therapies for Tomorrow: How Better Clinical Trial Design Leads to Better Treatments (Webinar Audio)

    The drug development pipeline is key to bringing new therapies to people with Parkinson’s disease (PD). With major breakthroughs in research in the past year, including a new biomarker for PD, The Michael J. Fox Foundation’s Parkinson’s Progression Markers Initiative (PPMI) study and other initiatives can be leveraged to create better designed trials. This audio from our Third Thursdays Webinar features a conversation about all the ways clinical trial design is changing, and why leaders in the space believe those changes will lead to better treatments. The webinar includes contributions from a person with PD, a researcher and an industry leader.     
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0   
    Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi. 

    • 58 min

Customer Reviews

4.0 out of 5
171 Ratings

171 Ratings

RealTomP ,

Good content, but far too long

Always good information, but the episodes are way too long.

Jelibean46 ,

Very informative!

Fantastic informative episodes. I love that they are constantly letting people (with PD and without) know about the studies available and how you can participate!

Sometimes the webinar audio is a bit garbled, but it doesn’t take away from the content.

Keep it up guys! You ROCK! 🤗

qwqwwqww ,

Excellent podcast

Great information, complex issues explained in a simple manner

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