196 episodes

Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.

The Michael J. Fox Foundation Parkinson's Podcast The Michael J. Fox Foundation for Parkinson’s Research

    • News
    • 4.0 • 177 Ratings

Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.

    Considering Deep Brain Stimulation: What to Know and Expect (Webinar Audio)

    Considering Deep Brain Stimulation: What to Know and Expect (Webinar Audio)

    The decision-making process around deep brain stimulation (DBS) to treat Parkinson’s motor symptoms can be a complex and emotional journey. People often have questions about when – and whether – to have the procedure and what the experience is like, from the months of evaluation pre-surgery to surgery day to life with the device. In audio from this Third Thursdays Webinar, our panel of people living with Parkinson’s disease (PD) and a movement disorder specialist share their DBS stories and answer audience questions about their choices and experiences.   
    Learn more about deep brain stimulation and download our free guide on our website: https://bit.ly/4cTOT52
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your community.  
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 56 min
    Building on the Biomarker Breakthrough: What We’re Working on Now

    Building on the Biomarker Breakthrough: What We’re Working on Now

    Just over a year ago, there was a major breakthrough in Parkinson’s disease (PD) research – a tool that could detect abnormal alpha-synuclein protein in the spinal fluid of people living with PD even before onset of symptoms. This discovery is already impacting the ways scientists conduct and think about Parkinson’s research. Tune into this episode of our award-winning “Parkinson’s Science POV” series to learn  how researchers are using the test to better understand disease biology and what the future holds.    
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0 
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 34 min
    You Want to Volunteer for Parkinson’s Research: Now What? (Webinar Audio)

    You Want to Volunteer for Parkinson’s Research: Now What? (Webinar Audio)

    You might be interested in stepping forward for science to play a role in the next breakthrough in Parkinson’s research, but still have questions about how to actually participate. How do you pick the right study for you? How do you balance your life logistics and your medical care considerations? What rights do you have when you participate in a study? In audio from this Third Thursdays Webinar, our panel of people living with Parkinson’s and research experts discuss the practicalities and benefits of volunteering for research.  
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0 
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 58 min
    When Parkinson’s Hurts: Treatments for Managing Pain (Webinar Audio)

    When Parkinson’s Hurts: Treatments for Managing Pain (Webinar Audio)

    Many people living with Parkinson’s disease (PD) experience pain as a non-motor symptom. Pain can arise from stiff muscles, dystonia, nerve pain and even the disease progression itself. It’s a symptom that some find difficult to talk about, but there are options for people to find relief. In audio from this Third Thursdays webinar, listen to our expert panel of people living with PD, movement disorder specialists, and an integrative pain specialist discuss pain and Parkinson’s – why it happens, treatments to reduce it, and practical tips you can start incorporating today.  
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0 
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 57 min
    What I Wish I Had Known at Diagnosis

    What I Wish I Had Known at Diagnosis

    In this episode, hosted by Larry and Rebecca Gifford, members of The Michael J. Fox Foundation’s Patient Council and their care partners share their honest reactions to their diagnosis — from panic and denial to sadness and loneliness. This group of men and women of different ages and backgrounds offers words of wisdom about what to consider, what they’ve lost and what they’ve gained – and you’ll be surprised to hear how, for some, what they’ve gained is more than what they lost. 
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0    
    If you or a loved one was recently diagnosed and you’re wondering where to start, visit https://www.michaeljfox.org/newlydiagnosed to find helpful resources, including an educational guide, support groups and videos. 
    Whether you’ve been newly diagnosed or have been living with Parkinson’s for many years, The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org.  
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 36 min
    Real Talk from Women Living with Parkinson’s

    Real Talk from Women Living with Parkinson’s

    In this raw and emotional conversation, four women with Parkinson’s living in four different countries discuss the challenges faced because of delayed diagnosis, hormonal changes, lack of information and treatment, research inequity and gender biases. They share how they live better with the disease by advocating for themselves with their health care team and how they empower other women through awareness and activism. 
    Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0    
    Connect with other women who share your experiences with Parkinson’s. The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org. 
    The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi. 

    • 44 min

Customer Reviews

4.0 out of 5
177 Ratings

177 Ratings

Jelibean46 ,

Very informative!

Fantastic informative episodes. I love that they are constantly letting people (with PD and without) know about the studies available and how you can participate!

Sometimes the webinar audio is a bit garbled, but it doesn’t take away from the content.

Keep it up guys! You ROCK! 🤗

qwqwwqww ,

Excellent podcast

Great information, complex issues explained in a simple manner

Livingco ,

Short pithy information

This is an important source of education for sharing. My support group can listen for 10-15 minutes and learn a lot with this easy to listen to format. Please keep it up in the digest form. There are fewer this year and that worries me that you are quitting. I send links to family as well. They don’t have an hour to listen.

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