5 episodes
The CARRA Podcast Childhood Arthritis and Rheumatology Research Alliance (CARRA)
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- Health & Fitness
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5.0 • 14 Ratings
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If you’re a rheumatologist, a pediatric rheumatologist, a researcher or a patient/caregiver living with a pediatric rheumatic disease, you need to know about the Childhood Arthritis and Rheumatology Research Alliance (CARRA). We are doctors, researchers and patients all working together to prevent, treat and cure pediatric rheumatic diseases and related autoimmune diseases.
In each episode, we will interview a member of the CARRA community to hear research updates, explore new ideas and learn how we can all work to create a world free of limitations for children with pediatric rheumatic diseases and related autoimmune diseases.
The CARRA Podcast is hosted by Claudette Johnson.
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The View from a High Schooler
Have you ever wondered what it’s like to be a kid with a rare autoimmune disease? In this special episode, the host of The CARRA Podcast, who is a teenager living with a rare autoimmune disease, interviews another teenager who has a rare autoimmune disease about their experiences with school, sports, friends, and medical treatments. They also share their frustrations, hopes and new perspectives on life.Spencer Ableman shares his journey with vasculitis, from a terrifying and unexpected h...
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Mental Health Part Two: Exploring Solutions
Kids with rheumatic and autoimmune diseases rates are at greater risk of developing anxiety and depression. In a special two-part series on mental health and mental health awareness, The CARRA Podcast explores how kids living with autoimmune diseases can face additional mental health issues. In this second episode on mental health, we explore how researchers are working to provide better support to children and teens living with rheumatic and autoimmune diseases.The CARRA Podcast ho...
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Mental Health Part 1: Understanding the Problem
It's no secret that mental health challenges are on the rise for children and teenagers, but imagine being a kid with a complex, chronic health condition. In a special two-part series on mental health, The CARRA Podcast explores how kids living with autoimmune diseases can face additional mental health challenges. The first episode takes a look at this pervasive problem, and in the second episode, we’ll have a conversation about solutions and examine what is being done to help kids and t...
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What is a Registry?
In this episode, you will learn what a registry is, the roles that registries play in research, and how patients and families can help support them. In the second episode of The CARRA Podcast, Claudette Johnson talks with Dr. Mary Beth Son, who is the Co-PI of the CARRA Registry. Dr. Son is Clinical Chief of the Division of Immunology and Section Chief of the Rheumatology Program at Boston Children's Hospital, as well as an Associate Professor of Pediatrics at Harvard Medical School.&nbs...
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What is the Childhood Arthritis and Rheumatology Research Alliance (CARRA)?
Meet a pediatric rheumatologist who helped pioneer collaborative research in pediatric rheumatic and related autoimmune diseases. Dr. Yukiko Kimura helped create a collaborative research network called the Childhood Arthritis and Rheumatology Research Alliance (CARRA) with a small group of dedicated physicians working in pediatric rheumatology. From the very beginning, they partnered with patients and families at every stage of research. Learn about the growth of this pediatric rheu...
Customer Reviews
CARRA Podcast Series
This is a very well thought out podcast that shares various perspectives from doctors, researchers and patients about living with a chronic autoimmune disease and how we can make advancements by working together through research. Highly recommend this podcast it to anyone interested in making a difference through research.
CARRA Podcast
This is a well done podcast led by a wonderful host, who happens to be a teen with a complex rheumatic disease. She is a natural pro at leading a high level, interesting and educational podcast with various experts featured on this program to address many topics that need more attention. The two part mental health series really impressed me on taking on this very serious and all-too-common challenge for patients of all ages with rheumatic diseases, but it is extremely challenging for young people that are still developing, having to go to school, deal with life amongst the majority of people in their age group having no understanding of rheumatic disease, including their teachers and others. Thank you for this podcast! I will share this with others, especially patients and their families.
Great podcast for autoimmune families!
This podcast and its very talented producers and host do an amazing job of highlighting the latest research in pediatric rheumatic and autoimmune diseases. More importantly, this podcast makes research more accessible and relatable by explaining it a way that kids and families can understand. The mental health episode was fantastic! Keep up the fabulous work!