Cerebral Palsy Health

Jen Lyman
  • 4,3 (7)
  • MÉDECINE
Cerebral Palsy Health

Cerebral Palsy is a complex health condition that impacts each individual differently. As a result, finding information about what might help improve function, increase participation, and achieve health and lifestyle goals can be difficult. This podcast is a place for conversations with experts about issues related to cerebral palsy that affect health, fitness, function and participation. We will cover a range of topics including: treatments and therapies, nutrition, neuroplasticity, genetics, exercise and fitness, adaptive sports, accessibility, and new trends.

  1. Coffee Talk with Nathalie Maitre, MD, PhD: Sleep

    -2 J

    Coffee Talk with Nathalie Maitre, MD, PhD: Sleep

    On this episode of Coffee Talk with Nathalie, we discuss sleep and the complexities of the sleep issues that we have experienced over the years. Nathalie offers insights and advice as both a parent of a young man with CP and a pediatrician.

    43 min
  2. Coffee Talk with Nathalie Maitre, MD, PhD

    22 NOV.

    Coffee Talk with Nathalie Maitre, MD, PhD

    In this new series within Cerebral Palsy Health, Jen sits down with Nathalie Maitre, MD, PhD to talk about parenting, our shared experiences raising sons with CP and more!

    42 min
  3. Nathan Rosenberg, MD - Talking Participation

    18/11/2023

    Nathan Rosenberg, MD - Talking Participation

    On this episode I am talking with physiatrist Nathan Rosenberg about participation, helping parents (and me) make decisions about treatments and sorting through when treatment is worth it or not.  Nathan Rosenberg, MD, is a Pediatric Rehabilitation Physician (Pediatric Physiatrist) at Nationwide Children's. He is the medical director of the rehabilitation inpatient consultation service. Additionally, he participates in outpatient clinics caring for children with cerebral palsy, brain injury, spinal cord injury and a host of additional conditions that impact how a child functions. He is a member of the neuro-oncology and cerebral palsy comprehensive care clinic teams.

    51 min
  4. Nathalie Maitre, MD, PhD - Early Detection, Early Intervention and the Wonders of Baby Brains

    10/03/2023

    Nathalie Maitre, MD, PhD - Early Detection, Early Intervention and the Wonders of Baby Brains

    On this episode of Cerebral Palsy Health, Jen talks with neonatologist and researcher Nathalie Maitre about her work with Cerebral Palsy Foundation to create an early detection and intervention network, what this means for babies and their families and how this is being scaled to meet needs in more and more places. Nathalie talks about how babies learn, how CP can interrupt this process and how interventions can help.  She also talks about her motivation and why she is so passionate about helping babies at such a young age.   Nathalie's Bio: Dr. Nathalie Maitre MD, PhD (Emory University and Children’s Healthcare of Atlanta, Atlanta, Georgia). Dr. Maitre is a practicing clinician and NIH-funded neuroscientist with a focus on neurodevelopment in high-risk newborns and developmental interventions after neural injury. She is the Director of Early Development & Cerebral Palsy Research at Emory University School of Medicine and Children's Healthcare of Atlanta. She is the co-PI with Rachel Byrne of the CPF-funded US Early Detection and Intervention Network, and the Strategic Officer of the Georgia Alliance for Cerebral Palsy.  Dr. Maitre is a member of the international IMPACT for Cerebral Palsy workgroup and has developed caregiver-based motor learning programs for UNICEF and the World Health Organization. She is also the mother of a teenage son with cerebral palsy Resources and Research: www.cpresource.org https://cpresource.org/apples-tele-study https://cpresource.org/3-under-3 https://georgiaallianceforcerebralpalsy.org

    1 h 5 min

  5. 29/03/2022

    Lisa Kenyon, PT, DPT, PhD - Ins and Outs of Powered Mobility

    On this episode, Jen talks with physical therapy professor and researcher, Lisa Kenyon, PT, DPT, PhD about powered mobility for individuals with cerebral palsy. They discuss early powered mobility and the impact on learning and function, powered mobility standing devices and the impacts on participation and the barriers related to insurance coverage. Resources to help with letters of medical necessity are also discussed. Enjoy the show!

    1 h 7 min
  6. Sarah Storck and David Stoner - Disability and Employment

    27/10/2021

    Sarah Storck and David Stoner - Disability and Employment

    On this episode, Jen talks with Sarah Storck, a Vocational Rehabilitation Counselor and Work Incentives Practioner, and David Stoner, a writer and an individual with Cerebral Palsy who has utilized the services discussed. They talk about the process of working with vocational rehabilitation, support during employment and mechanisms to help ensure that you can keep your benefits even while earning an income.   Sarah is the founder and CEO of Next Step Success, LLC, an organization whose main purpose is to help underserved populations, specifically individuals with disabilities, achieve employment and financial success through a variety of services.  At Next Step Success, LLC, Sarah works one on one with clients as a Vocational Rehabilitation Counselor and Work Incentives Practitioner. Prior to starting Next Step Success, LLC, Sarah worked as an Employment Specialist (job coach) for seven years and a Work Incentives Practitioner for four years through private and non-profit employment services organizations as well as for state vocational rehabilitation agencies. She has extensive experience in providing case management, guidance and counseling, job readiness skills, Social Security benefits planning and financial education.  She currently provides employment and benefits counseling services through the Social Security Administration’s Ticket to Work Program and State Vocational Rehabilitation agencies.   She holds a Bachelor of Arts degree in both Criminal Justice and Psychology and a Master of Science degree in Clinical Rehabilitation and Mental Health Counseling. Sarah is a Certified Work Incentives Practitioner through Cornell University and a Certified Rehabilitation Counselor through the Commission on Rehabilitation Counselor Certification (CRCC). Sarah is the current President of the Virginia chapter of the National Rehabilitation Association and is an active member of NABWIS, the National Association for Benefits and Work Incentive Specialists.   David Stoner received his bachelor's degree in Journalism and Digital Communications from the University of South Florida in 2018. His love for media came hand in hand with his love for story-telling and his belief that the best stories come from the world we live in. David was born with cerebral palsy and has used a wheelchair along with other adaptive technology to make sure he remains active and lives life to its fullest. His fiancée, Shelby, who also has CP, is his biggest supporter. Together, they are a very driven team and are looking forward to tying the knot in May of 2022. Hailing from the Tampa Bay Area, David has a strong passion for its beautiful surroundings, beaches, and especially for the many college and professional sports teams. David's writing interests include sports journalism, mainly about Tampa Bay sporting teams, however he has written a number of articles on various topics and remains focused on sharing his experiences in the world as a disabled person. His passion for life is equalled by the love he has for his family.

    40 min
  7. Noam Platt: Makers Making Change Assistive Technology

    25/05/2021

    Noam Platt: Makers Making Change Assistive Technology

    In this episode, Jen talks with healthcare architect Noam Platt about Makers Making Change, an organization that is creating affordable assistive technology for individuals with disabilities. They discuss how this program works, types of assistive tech that are being made to order, as well as tech designs that can be downloaded and made at home.  Resources Discussed:  https://www.makersmakingchange.com/ https://tomglobal.org/ https://jenmadeit.com/ Additionally, mentioned in the podcast, they discuss 3D printing and generative design, for those interested in learning more about how this process works, check out the courses offered by https://classroom.weareprintlab.com/.

    38 min
  8. Theresa Sukal Moulton, PT, DPT, PhD and David Black: Frame Running - A cerebral palsy adaptive and recreational sport

    17/05/2021

    Theresa Sukal Moulton, PT, DPT, PhD and David Black: Frame Running - A cerebral palsy adaptive and recreational sport

    In Episode 6, Jen talks with physical therapist and cerebral palsy researcher Theresa Sukal Moulton and Frame Runner manufacturer/vendor David Black of RAD Innovations about the recreational and adaptive sport of Frame Running. A relatively new recreational sport in the US, a Frame Runner is an adaptive running frame that looks similar to a bike without pedals which allows individuals with CP run or walk with minimal to no assistance. It has become popular internationally and is included as a sport in the World Paralympics. David, Theresa and Jen discuss the history of Frame Running, who can participate, how it works, research to support it and how to get involved.  Frame Running/ Race Running Research https://bmjopen.bmj.com/content/10/7/e036469 https://bmcmusculoskeletdisord.biomedcentral.com/articles/10.1186/s12891-020-03202-8 https://core.ac.uk/reader/161924354?utm_source=linkout Frame Running/ Race Running Clubs International: Cerebral Palsy International Sport and Recreation Association https://cpisra.org/ https://www.cpsport.org/sports/racerunning/racerunning-clubs-and-sessions/ US: https://www.racerunningusa.org/frame-running-clubs.html https://www.rad-innovations.com/racerunning.html

    46 min
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Notes et avis

4,3
sur 5
7 notes

À propos

Cerebral Palsy is a complex health condition that impacts each individual differently. As a result, finding information about what might help improve function, increase participation, and achieve health and lifestyle goals can be difficult. This podcast is a place for conversations with experts about issues related to cerebral palsy that affect health, fitness, function and participation. We will cover a range of topics including: treatments and therapies, nutrition, neuroplasticity, genetics, exercise and fitness, adaptive sports, accessibility, and new trends.

Informations

  • Création
    Jen Lyman
  • Années d’activité
    2020 - 2024
  • Épisodes
    13
  • Classification
    Tous publics
  • Copyright
    Copyright © 2020 Jennifer Lyman
  • Site web de l’émission
    Cerebral Palsy Health

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