Airing Pain

Airing Pain
Airing Pain

Airing Pain is the online radio programme and podcast from Pain Concern (http://painconcern.org.uk/) . Each edition we bring together people with chronic pain and top specialists to talk about resources that can help. You can listen to Airing Pain every Tuesday via Able Radio (https://www.able.wales/) , with all episodes available on demand here and on our website (http://painconcern.org.uk/airing-pain/) . Or subscribe via Apple Podcasts, Spotify or your favourite podcast app to get the latest podcasts delivered straight to your mobile or tablet. We welcome feedback - rate on your device or fill in our survey (https://painconcern.org.uk/airing-pain-survey/) . Pain Concern is a charity registered in Scotland SC023559.

  1. Exploring the links between hypermobility and neurodivergence

    2일 전

    Exploring the links between hypermobility and neurodivergence

    Airing Pain 148: Links between hypermobility and neurodivergence Released on: 5/3/2025 This Airing Pain episode explores how neurodivergent individuals experience pain, potential links to hypermobility, and the need for better education to support conditions like autism and ADHD.  Neurodiversity refers to the different ways a person’s brain processes information.  It is an umbrella term used to describe a number of conditions including Autism or Autism Spectrum Conditions; ADHD; Dyscalculia; Dyslexia; Dyspraxia, or Developmental Coordination Disorder (DCD), and more. In this episode:  Dr. Clive Kelly discusses research on co-occurring conditions in neurodivergence, highlighting varied symptoms and how pain perception differs among individuals. Dr Jessica Eccles talks about her research into the relationship between joint hypermobility and neurodevelopmental conditions like ADHD and autism.  We hear from Ren Martin, an autistic learning disability nurse and mother of three neurodivergent children, and Ceri Reid of Parents Voices in Wales, advocating for better neurodiversity and mental health services. Throughout the episode, we hear from Imogen Warner, whose writings are featured in the Autistic Girls Network, and who highlights the reality of being a young autistic person. Contributors:  Dr. Clive Kelly, Consultant Physician and Rheumatologist, James Cook University Hospital and University of Newcastle-upon-Tyne.  Dr Jessica Eccles, Reader in Brain-Body Medicine at Brighton and Sussex Medical School.  Ren Martin, neurodevelopmental specialist.  Ceri Reid, neurodivergent mother and founder of Parents Voices in Wales. Imogen Warner, student with lived experience of autism and chronic pain.  Jane Green MBE, founder of SEDSConnective We are immensely grateful to The British Humane Association and The Heather Hoy Charitable Trust whose generous grants made this podcast possible. Time Stamps:  00:43 Understanding Neurodivergence and Pain 04:46 The Relationship between Hypermobility and Neurodivergence 12:06 Gender Differences in Diagnosis and Pain 13:49 Ren Martin’s Personal Experience 32:27 Diagnosis for Neurodivergent Individuals 35:18 Challenges in Education for Neurodivergent Children 42:40 Training for Educators and Healthcare Workers Links Referred to in this Episode:     School toolkit for JHS and EDS - School Toolkit for EDS and JHS Parents Voices in Wales: Resources & Key Documents – Parents Voices in Wales CIC Autistic Girls Network: https://autisticgirlsnetwork.org/ Ehlers-Danloss Society: https://www.ehlers-danlos.com Hypermobility Syndrome Association. - The HMSA | The Hypermobility Syndromes Association Healios: https://healios.org.uk/ SEDSConnective: https://www.sedsconnective.org/  If you have any feedback about Airing Pain, you can leave us a review via our Airing Pain survey

    51분
  2. Person-Centred Care

    2024. 12. 04.

    Person-Centred Care

    This episode of Airing Pain focuses on person-centred care. Person-centred care is based on the individual rather than on a generic group of patients.   In this episode:  Vicky Sandy-Davis, Lead Nurse of Independent Health and Social Care, talks about the importance of recognizing the value of person-centred care, specifically for people with intellectual or learning disabilities  Ian Taverner and Sarah Harrisson discuss the importance of involving people living with chronic pain in research studies so that researchers can be guided by those with experience of chronic pain  Professor Nicole Tang and Jenna Gillett share findings from their research on mental defeat.  For people living with chronic pain, mental defeat can be a way of characterizing how the pain impacts a person's perceived loss of autonomy which can lead to a loss of identity when experiencing repeated episodes of pain.   The interviews were recorded at the British Pain Society’s Annual Scientific Meeting, 2024.  Contributors:   Vicky Sandy-Davis, Lead Nurse for Independent Health and Social Care, West Midlands  Ian Taverner, Chair of the Public Advisory Group of CRIISP (Consortium to Research Individual, Interpersonal and Social Influences in Pain)  Sarah Harrisson Research Associate in Applied Health Research at Keele University, Specialist Pain Physiotherapist with the IMPACT Community Pain Service (Midlands Partnership NHS Foundation Trust) in Stoke-on-Trent  Professor Nicole Tang, Director of the Warwick Sleep and Pain Laboratory, Academic Co-Lead for the Warwick Health Global Research Priority Mental Health Theme  Jenna Gillett, PhD student at Warwick University and Lecturer in Psychology at the University of Buckingham.  If you have any feedback about Airing Pain, you can leave us a review via our Airing Pain survey

    36분
  3. Irritable Bowel Syndrome & Inflammatory Bowel Disease

    2024. 10. 09.

    Irritable Bowel Syndrome & Inflammatory Bowel Disease

    Airing Pain 146: Irritable Bowel Syndrome & Inflammatory Bowel Disease       This edition of Airing Pain focuses on two conditions affecting the gut: Irritable Bowel Syndrome (IBS) and Inflammatory Bowel Disease (IBD). Both affect the digestive system, and both cause pain. In this episode we learn about what separates these outwardly similar sounding conditions, how they are diagnosed, and what treatments might be available.     Dr David Bulmer discusses the key differences and distinguishing features of IBS and IBD, the latest research into these conditions, and potential medicinal treatments for managing the pain they cause.   Professor Rona Moss-Morris sheds light on remission, pain, and symptom management for IBS and IBD, and the challenges these conditions present. We hear about research into the use of Cognitive Behavioural Therapies designed specifically to help manage IBS and IBD symptoms. The interviews were recorded at the British Pain Society’s Annual Scientific Meeting, 2024.  Contributors:  Dr David Bulmer, Associate Professor at Cambridge University, specialising in visceral pain and gastrointestinal disease, with a special interest in IBS, IBD, and pain.   Prof. Rona Moss-Morris, Professor of Psychology as Applied to Medicine and Head of the Department of Psychology at the Institute of Psychology, Psychiatry and Neuroscience, King’s College London. Lead for Digital Therapies at the NIHR Maudsley Biomedical Research Centre. She has a special interest in factors that affect symptom experience and adjusting to chronic medical conditions.  Time Stamps:  01:29 Paul Evans introduces Dr David Bulmer, Associate Professor at the Department of Pharmacology at Cambridge University.  01:46 Dr David Bulmer explains the difference between Irritable Bowel Syndrome and Inflammatory Bowel Disease and how they are diagnosed.  02:50 Bulmer discusses research into the potential causes of IBS and IBD, including localised allergic response and potential genetic markers.  06:18 Bulmer describes a study into the use of antidepressants for the treatment of IBS.   07:29 Bulmer discusses new treatments for Inflammatory Bowel Disease, and how far these impact the actual pain experienced.  12:17 Bulmer explains the ‘Low FODMAP’ diet treatment.  14:17 Evans introduces Professor Rona Moss-Morris, Professor of Psychology as Applied to Medicine and Head of the Department of Psychology at King’s College London.  14:22 Moss-Morris explains the term ‘remission’ and how it is applied to IBS and IBD.  16:33 Moss-Morris discusses clinical trials using Cognitive Behavioural Therapy (CBT) for those with IBS and IBD symptoms.  18:53 Moss-Morris explains what CBT is and how it is used.  23:16 Moss-Morris discusses the use of apps and digital approaches to treatment.  27:55 Moss-Morris gives a final message on pain.   If you have any feedback about Airing Pain, you can leave us a review via our Airing Pain survey

    29분
  4. Rethinking Pain: Pain Management in the Community

    2024. 08. 14.

    Rethinking Pain: Pain Management in the Community

    Airing Pain 145 Rethinking Pain: Pain Management in the Community  This edition of Airing Pain centres on rethinking the traditional clinician-patient relationship in pain management and exploring alternative approaches to bringing pain management back into the community.   Dr Barbara Phipps, GP and Lifestyle Medicine expert, discusses the development and benefits of group consultations for pain management.  Dr Jackie Walumbe sheds light on the pervasive inequalities in chronic pain services, highlighting the value of communities and member-led collaboratives in building and shaping self-management.  Prof. Mark Johnson, Dr Kate Thompson, and Kerry Page talk through the benefits of de-medicalising pain management, shifting the focus to a community setting.  We hear about the fantastic work of Rethinking Pain, a community-based pain support service in Bradford and Craven, and the inspiration this can serve for future chronic pain services and self-management initiatives.  The interviews were recorded at the British Pain Society’s Annual Scientific Meeting, 2024.  Contributors:  Dr Barbara Phipps, Practising NHS GP and Teaching Fellow at the University of Edinburgh, currently running a community based Chronic Pain management service within the NHS. Barbara has a special interest in Lifestyle Medicine, and is a trustee of the British Society of Lifestyle Medicine.  Dr Jackie Walumbe, Clinical Academic Advance Practice Physiotherapist in the Complex Pain Team at University College London Hospitals NHS Foundation Trust and Honorary Research Fellow at University of Oxford.  Professor Mark Johnson, Professor of Pain and Analgesia and Director of the Leeds Beckett Pain Team (Centre for Pain Research) at Leeds Beckett University.  Dr Kate Thompson, Senior Lecturer and Researcher at Leeds Beckett University, with a background in physiotherapy and special interest in pain research.  Kerry Page, Programme Lead for Rethinking Pain, the chronic pain community service based in Bradford District and Craven.  Time Stamps:  01:58 Paul introduces Dr Barbara Phipps, Practising NHS GP and Teaching Fellow at the University of Edinburgh, currently running a community based Chronic Pain management service within the NHS. Barbara has a special interest in Lifestyle Medicine, is and is a trustee of the British Society of Lifestyle Medicine.  02:27 Dr Barbara Phipps discusses the development of group consultations for people with long-term primary pain.  07:28 Paul and Barbara discuss the importance of people being believed about their pain, perception of pain experiences, and detection on functional MRI scans.  10:41 Paul draws upon issues the funding in pain management services and who decides whether a treatment programme is value for money or not.  10:53 Paul introduces Dr Jackie Walumbe, Clinical Academic Advance Practice Physiotherapist in the Complex Pain Team at University College London Hospitals NHS Foundation Trust and Honorary Research Fellow at University of Oxford.  11:04 Dr Jackie Walumbe discusses her research on understanding how the term and practice of Self-Management is understood and acted on by people living with chronic pain, particularly those who don’t have ongoing contact or access with specialist pain services, and the relationship between this and policy makers’ decisions.  14:42 Paul and Jackie discuss key findings regarding issues of inequality, and a report by Versus Arthritis (Unseen, Unequal and Unfair: Chronic Pain in England), reflecting issues of policy and politics and the importance of other communities in filling the gaps.   18:09 Paul introduces Rethinking Pain, a community-based service for adults living with long-term pain, in Bradford District and Craven.   18:28 Paul introduces Dr Mark Johnson, Professor of Pain and Analgesia and Director of the Leeds Beckett Pain Team (Centre for Pain Research) at Leeds Beckett University.   18:37 Paul introduces Dr Kate Thompson, Senior Lecturer and Researcher at Leeds Beckett University, with a background in physiotherapy and special interest in pain research.  18:40 Paul introduces Kerry Page, Programme Lead for Rethinking Pain, the chronic pain community service based in Bradford District and Craven.  18:47 Kerry Page discusses the Rethinking Pain service, its background, services, and success.  19:57 Dr Kate Thompson explains how Rethinking Pain’s approach differs from other community pain management programmes  20:58 Dr Mark Johnson talks about how pain is a context driven experience, and the importance of understanding how the narrative matters when it comes to managing pain.  25:49 Kerry Page recalls the importance of giving time to listen to the pain community and those living with chronic pain, and the way that Rethinking Pain’s initiative provides this through Health Coaches.   35:53 Kerry page discusses how pain management services can help to reach more people and connect people and organisations from across the pain community.   Additional Resources:  Rethinking Pain   Inequalities in Chronic Pain Report - Versus Arthritis  If you have any feedback about Airing Pain, you can leave us a review via our Airing Pain survey   _______________________________________________________________________________________________

    38분
  5. Trail - Airing Pain 145: Rethinking Pain: Pain in the Community

    2024. 08. 07.

    Trail - Airing Pain 145: Rethinking Pain: Pain in the Community

    Coming 14th August: This edition of Airing Pain centres on rethinking the traditional clinician-patient relationship in pain management and exploring alternative approaches to bringing pain management back into the community.   Is the 1-to-1 doctor-patient consultation the best we can do? How can we help people to feel more empowered in managing their own pain? Our contributors are experts in pain management, research, and community engagement; find out what they have to say in the latest edition of Airing Pain, coming soon.   The interviews were recorded at the British Pain Society’s Annual Scientific Meeting, 2024.  Contributors:  Dr Barbara Phipps, Practising NHS GP and Teaching Fellow at the University of Edinburgh, currently running a community based Chronic Pain management service within the NHS. Barbara has a special interest in Lifestyle Medicine, and is a trustee of the British Society of Lifestyle Medicine.  Dr Jackie Walumbe, Clinical Academic Advance Practice Physiotherapist in the Complex Pain Team at University College London Hospitals NHS Foundation Trust and Honorary Research Fellow at University of Oxford.  Professor Mark Johnson, Professor of Pain and Analgesia and Director of the Leeds Beckett Pain Team (Centre for Pain Research) at Leeds Beckett University.  Dr Kate Thompson, Senior Lecturer and Researcher at Leeds Beckett University, with a background in physiotherapy and special interest in pain research.  Kerry Page, Programme Lead for Rethinking Pain, the chronic pain community service based in Bradford District and Craven.  If you have any feedback about Airing Pain, you can leave us a review via our Airing Pain survey

    1분
  6. Dilemmas in Pain Research

    2024. 06. 12.

    Dilemmas in Pain Research

    Airing Pain 144: Dilemmas in Pain Research  This episode of Airing Pain focuses on the challenges that researchers must overcome when researching pain and developing new treatment approaches. Many questions remain unanswered in the field of pain research. For example, we might know that a treatment works for some people living with pain, but we might not know how it works or why some people benefit and some do not.  So, there is a lot of research being done to try to better understand pain. This leads to another problem: how to cope with the amount of new information emerging from research and trials? It is important that new research data is made more accessible for clinicians, healthcare workers, patients, and researchers. Data is no use unless it can be assessed and summarized so that doctors can understand how to use it to benefit their patients.  Our contributors for this edition are leaders in this field and they discuss some of the issues they have encountered whilst conducting their research into pain and how to treat it.  The interviews were recorded at the British Pain Society’s Annual Scientific Meeting, 2023.  Contributors:  Professor Robert Brownstone, Brain Research UK Chair of Neurosurgery, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology.  Dr Neil O'Connell, Reader in Physiotherapy, Brunel University, Chair of the International Association for the Study of Pain (IASP) Methods, Evidence Synthesis and Implementation Special Interest Group. He is an advisor to Pain Concern.  Dr Kirsty Bannister, Neuroscientist and Associate Professor at King’s College London.  Time Stamps:  1:22 Paul introduces Professor Robert Brownstone, Brain Research UK Chair of Neurosurgery at University College London.  1:32 Prof. Brownstone explains what a spinal cord stimulator is, the lack of progress made with this form of treatment, the varied results the treatment gets, and why some people experience long-term pain following back surgery.  7:40 Paul talks about Cochrane, a global independent network of health practitioners, researchers, and patient advocates who review research findings to provide a more precise estimate of the effects of a treatment.  7:54 Paul introduces Dr Neil O’Connell, a Reader at Brunel University who was the Co-ordinating editor of the Cochrane Pain, Palliative and Supportive Care (PaPaS) group.  8:35 Dr O’Connell discusses how Cochrane reviews research and clinical trials, and the complexities involved in gathering and interpreting evidence when developing interventions.  17:04 Paul introduces Dr Kirsty Bannister, a neuroscientist and Associate Professor at King’s College London who specialises in neuropharmacology and runs a research group that uses animals to examine the mechanisms of pain processing.  17:22 Dr Bannister talks about why animal models are useful for researching the responses people may have to different pain processes and researching chronic pain by measuring neuronal responses to pain.  21:44 Paul and Dr Bannister discuss the limitations of using animals to research chronic pain.  23:48 Paul and Dr Bannister explore why looking at a patient's experience of pain first can better inform lab research on animal models for understanding and researching pain.  30:03 Prof. Brownstone gives some advice for those considering a spinal cord stimulator as an intervention they want to try.  Additional Resources:  Cochrane  Pain Matters 73: Neuropathic pain issue  Pain Matters 79: Navigating pathways to live well with pain  Pain Matters 80: What treatment really works  Neuropathic Pain  If you have any feedback about Airing Pain, you can leave us a review via our Airing Pain survey   ______________________________________________________________________________________________

    31분

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Airing Pain is the online radio programme and podcast from Pain Concern (http://painconcern.org.uk/) . Each edition we bring together people with chronic pain and top specialists to talk about resources that can help. You can listen to Airing Pain every Tuesday via Able Radio (https://www.able.wales/) , with all episodes available on demand here and on our website (http://painconcern.org.uk/airing-pain/) . Or subscribe via Apple Podcasts, Spotify or your favourite podcast app to get the latest podcasts delivered straight to your mobile or tablet. We welcome feedback - rate on your device or fill in our survey (https://painconcern.org.uk/airing-pain-survey/) . Pain Concern is a charity registered in Scotland SC023559.

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