Understanding Ehlers-Danlos Syndrome EDS with Jeannie Di Bon

In this episode of the Pilates Lounge, host Katie Crane sits down with international advocate and movement therapist Jeannie Di Bon to discuss Ehlers-Danlos Syndrome (EDS) and hypermobility. Jeannie shares her journey of receiving an EDS diagnosis later in life after years of unexplained symptoms. She explains what EDS is, the different types, and how it can affect the entire body through the connective tissue.

Jeannie discusses common EDS presentations in the muscular-skeletal system and varying degrees of severity from mild to severe. She also addresses important myths and misconceptions surrounding EDS. 

You will learn how EDS can impact Pilates clients and gain insight into modifying exercises. This episode provides valuable information for movement professionals on understanding and working with those with EDS and hypermobility.

Takeaways

• EDS is a connective tissue disorder that impacts collagen formation throughout the body, leading to issues in multiple systems like digestive, cardiac, and autonomic. This wide-ranging impact is what makes EDS so complex. 

• Symptoms of EDS can remain dormant for years and suddenly emerge during times of stress, hormonal changes, or illness. This unpredictable nature of EDS makes diagnosis challenging.

• Hypermobile joints don't always mean flexibility - the tightness many EDS clients feel is a result of overworked muscles trying to compensate for unstable joints. This tightness-hypermobility paradox must be addressed.

• Pilates can help EDS clients gain proprioception and find stability within their muscles rather than relying on end-range joint positions. Small modifications allow safe strengthening.

• EDS awareness is still growing, and many clients face years of dismissal before diagnosis. Movement professionals can help empower clients by validating experiences and addressing common misconceptions.

If you work with clients, be on the lookout for signs of hypermobility or EDS. While EDS presents differently for everyone, increased awareness can help more people find appropriate support. 

Consider exploring Jeannie's resources to deepen your understanding of EDS and hypermobility. Her books, videos, and online programs provide valuable education that can enhance your ability to empower clients by addressing their specific needs and debunking common myths.

Make the effort to continually learn about conditions you may encounter in your practice. An open and inclusive approach is key to making Pilates welcoming and beneficial for all.

For you to connect with Jeannie

Website: www.jeanniedibon.com 

Instagram:  jeannie_di Instagram

Twitter: @jdibon Twitter

YouTube: Jeannie Di Bon Hypermobility Channel 

Don't forget to check out my website thepilatesprofessional.com.au for workshops and my six-month reformer teacher training mentor program. I believe that reformer training is a crucial missing link in our industry, and I'm here to provide comprehensive and recognized training for aspiring reformer instructors.

Thank you for joining me in The Pilates Lounge. I'm Katie Crane, your Pilates professional, and I'll see you in the next episode!

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