Parenting Special Needs Podcast

Parenting Special Needs Magazine
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Parenting Special Needs Podcast

Parenting Special Needs Magazine now has a Podcast!! Parenting Special Needs’ Podcast provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys of one of life’s greatest gift. Get empowered, educated and inspired with host and Parenting Special Needs Magazine Publisher/Creator, Chantai Snellgrove as she keeps us informed on the latest trends in the special needs community. She will discuss books, ideas and news you want to hear, as well as interview special guests like parents, authors, industry experts, doctors, trendsetters, and all-around successful people that understand what we are all going through, as well as different ways to navigate the, often times, confusing questions, frustration and diagnoses. As a special needs parent, Chantai knows that “Together, we learn from others who have been on this path before us.”

  1. 27 JUN

    5% Unknown Factors That Ended Our Son’s Medically Fragile Home Dream

    [Click to Listen to Podcast]   Tony would like you all to know that if you read his previous article, “Tony’s Advice: A Dad’s Insights Toward Finding His Son a Home,” most steps in that article are still very relevant and can lead to a high success rate in finding a good group home. However, what he didn’t consider is the “5% unknown factor,” which is what this story is about.   The Initial Optimism Five years ago, Tony Mancuso and his wife embarked on an inspiring journey to build a medically fragile home for their son, Adam, in partnership with the Arc of Florida. Filled with excitement and optimism, they began the construction phase, initiated fundraising efforts, and prepared for Adam’s transition into his new home.   Several Unexpected Hurdles Despite their enthusiasm, the process was fraught with unexpected challenges. Adam was initially classified as a moderate case instead of an extensive level one by the supporting agency, leading to funding complications. Tony requested a hearing, which the Agency for Persons with Disabilities (APD) eventually provided after three months. The hearing resulted in Adam being reclassified to an extensive level one—a victory that was short-lived.   Preparing for the Move With the reclassification secured, Tony and his wife resumed preparations for Adam’s move. They set up his room, arranged his belongings, and ensured all details were in place for a smooth transition. They also worked out visiting and visibility rights to remain closely involved in Adam’s care. Their primary goal was to create a long-term, stable environment where Adam would be supported, regardless of staff changes, focusing on the quality of care rather than just the physical setup of the home. A Major Setback Two weeks before Adam was due to move in, they received devastating news: Adam was no longer eligible to enter the group home. This ruling was due to a specific APD rule (65G-7) that required a registered nurse to administer insulin shots, which Adam needed daily due to his diabetes. The home could not meet this requirement, leaving Tony with two options: keep Adam at home or institutionalize him in a nursing home. For Tony, the latter was unthinkable due to the high risks and inadequate care Adam might face there.   Advocacy Efforts Refusing to accept these limitations, Tony took action. He engaged with legislators, including Representative Brackett, to advocate for a change in the rule. His persistent efforts have led to the consideration of a new statute that would update the existing regulation, potentially allowing trained personal care attendants to administer insulin shots under specific conditions.   Please help Tony change the rule. Click here to learn more about Rule 65G-7 and help us reach over 500 signatures. Please sign the petition.     The Road Ahead While awaiting the outcome of the legislative efforts, Tony continues to explore alternative group homes for Adam. He emphasizes the importance of proactive engageme...

    36 min

  2. 03/11/2023

    The World Needs All Kinds of Minds: Why This Mindset Helped Create a Company Like No Other

    .    [Click to Listen to Audio] How Did a Mindset of Appreciation for All Make Amazing Things Happen Including a Company That Welcomes Everyone Are You the parent of a young adult? Is employment on the radar for both of you?..Please stay tuned because… Today we have asked Patrick Bardsley to join us. He is the Co-Founder and CEO of Spectrum Designs who will share how his vision and mission to employ people with differing abilities is the cornerstone of his company. Points Covered: I have asked Patrick to join us today to talk about. * How his company got started and what makes the vision of the company so beautifully different. * How and why he appreciates “all kinds of minds” * Why he knows his company is different and shares practical advice for others to follow. Related Videos: Meet Bradley Jacobs, an employee at Spectrum Designs https://www.youtube.com/watch?v=aXswaRDVTvo&t=6s   Meet Kelli Fisher, an employee at Spectrum Designs https://www.youtube.com/watch?v=_-bRz95yYE8&t=4s     You May Also Like * Talking with Supported Entrepreneur Tina Bagon (with Sarah Shaw) * Let’s Go Fitness Co-founded by Father and Son with (Prader-Willi) * Indulge with a Chocolate Charcuterie Board (Cameron’s Chocolates) * Person-Ventured Entrepreneurship: What Do You Know About Entrepreneurship * Six Special Momtreprenuers Who Are Working to Make a Difference in Our Community * Peaceful Fruits: Paving The Way for Socially Good Partnerships * Proud Moments: Matthew Shifrin Inspiring Lego for the Blind * “Real Life”… with “Momentrepreneur” Yvonne Pierre * Where to Go if Your Child Needs a Job or Help with Post High School Education * How to Find Your Special Child’s Spark?

  3. 08/04/2023

    Inspiring ‘CHAMPIONS’ Actor Talks about his NEW Movie out now!

    Imagine starring in a movie with Woody Harrelson. Down’s syndrome didn’t stop actor Mathew Van Der Ahe from doing that. [Click to Listen to Podcast] Do you wonder just what it takes to make it as an actor with special needs? Or what it is like to be part of a major motion picture? Stay tuned …because Today we have asked Mathew Van Der Ahe to join us. He is an actor with Down’s Syndrome and is starring in a new movie with Woody Harrelson called Champions.   I’ve asked him to join us today to talk about What it’s like to be starring in your first major film, and working with Woody Harrelson? How was it to be part of such a cast and such an authentic cast of teammates? Tell us some of the best experiences you had while filming. How did you get started in acting? Are you also a state ambassador for Best Buddies? Tell us about that work and what you do? Go see the movie Champions. It’s out now Worldwide and support Matthew and his cast mates.   Kailee and I give the movie Champions 2 thumbs up!!           More Success Stories * Celebrities with Disabilities that Turned their Dreams into Attainable Goals * Cody Breaking the Tape: How Disabilities Didn’t Stop Him in Life * A Story of Inspiration: How Vernon Changed My Perception of Disability * Mandy Harvey deaf singer using her voice for disability inclusion * Real Moms Share: Joshua’s Success Story * Autistic Teen Finds Inner Voice * Proud Moments: Go Patricia; Go Knights! * Joshua Walker: Life, Learning and Making Progress * Be Inspired, Dream Big with John Tucker and Rachel Osterbach * Susan Boyle Truly Inspirational * Patricia Moody’s PATH to Success * Setting and Achieving High Expectations * Angels on Stag...

  4. 09/03/2023

    First-hand Knowledge of Adaptive Skiing Shows that Winter Fun is Available to All

    Dr. Najarian knows firsthand that Winter fun does not have to be on hold for kids with physical challenges. [Click to Listen to Podcast] Are you a family that loves to ski? But don’t want to have your child with special needs just sitting and watching? Or maybe you all just want to have some winter fun together learning a new sport and don’t know if that is possible. Please stay and watch because Today we have asked Dr. Nagarian to join us. He is a pediatric physical medicine and rehabilitation physician at Akron Children’s Hospital. Once a kid with cerebral palsy, Dr. N knows firsthand that Winter fun does not have to be on hold for kids with physical challenges. In fact, encourages kids to push past their physical limitations.   I have asked him here today to talk about: – his own diagnosis and how he achieved his goals – how he was able to learn to ski – what he does for his patients and families to get them on the slopes – about adaptive skiing   More Fun Activities         Helpful Articles * Sports adapted to Your Child Ability * Adaptive Skiing Makes Hitting the Slopes a Reality for Families! * Cody Breaking the Tape: How Disabilities Didn’t Stop Him in Life * Honoring the Legendary Dick Hoyt * Cleveland Rockin’ Wildcats: Special Needs Hockey with a Heart! * Unified Sports: A Great Way to Start Inclusion in a Fun and Positive Way * Special Olympics Is Truly Special and Much More Than Just Sports   You May Also Like * Adapted PE for Reality * The 7 Habits of Highly Successful Fitness Programs * The Family Factor of Five: Making Time for Fitness (and Actually Doing It) * Fitness Equipment Worth Buying * Adapted Phy. Ed. Is It in Your Child’s IEP? It Should Be. * Fitness Fun: Incorporating Fitness into the Classroom * a href="https://www.parentingspecialneeds.

  5. 02/02/2023

    How to Manage it All When You Are in the Sandwich Generation

    Are You In The Sandwich Generation and Need Help Doing It All? [Click to Listen to Podcast] Are you a caregiver for a child with special needs and an aging adult? Do you need help figuring out what to do? What are the first steps to take, or How to we keep it all together? Stay tuned because Today we have asked Lynne Azar to join us. She is the Senior Outreach Coordinator at the Jewish Family and Community Services of Youngstown, Ohio, and a Certified Dementia Practitioner. She is here today to talk about: * How to get started taking the first steps. * How to stay organized and keep all the information in order * What resources are available for help with the care of an elderly person? Related: The Sandwich Generation: How to Handle it All, and Then Some! Attention: We created the “Elder Care Decision Checklist” for you and your family; make sure you grab your copy.   You May Also Like * “Instruction Manual” for Your Child with Special Needs * Building a Resource Manual for Future Caregivers * Guardianship: A Basic Understanding for Parents * Financial Planning: For Those Who Are at the Starting Line * Drowning in Paperwork? Here’s What Helps Us * The Politics of Special Education: The Information You Need Right Now * The Sandwich Generation: How To Handle it All, and Then Some! * How to Select a Special Needs Attorney * Facing the Challenges of Balancing Work and a Special Needs Child * Balancing the Care of Siblings with Different Needs * Multitasking the Right Way: How You Can Make the Most of Your Time * Life Coaching? What is it and How Could it Help You? * Tech Tools for Caregivers

  6. 26/01/2023

    Adaptive Skiing Makes Hitting the Slopes a Reality for Families!

    Yes, your whole family can go skiing. Learn how adaptive skiing can make this an actual reality. https://youtu.be/ooLOFhsvNlk [Click to Listen to Podcast] Adaptive ski programs are there to make skiing available for the whole family. Learn how they can make skiing a reality. Are you a parent who wants to ski with your child with special needs but don’t know how to teach them? Maybe you want your child to learn how to ski so they can enjoy winter fun just like everyone else. But you don’t know where to turn to for help? Stay tuned because Today we have asked Mark Dietz from 3 Trackers of Ohio, one of the oldest adaptive ski programs in the United States. We have invited him to join us today to talk about – Just what is adaptive skiing, and how does it work? – how is it best to dress for skiing, and what equipment is necessary – Some tips for success on the slopes Related Article: Sports adapted to Your Child Ability     More Fun Activities         Helpful Articles * Sports adapted to Your Child Ability * Adaptive Skiing Makes Hitting the Slopes a Reality for Families! * Cody Breaking the Tape: How Disabilities Didn’t Stop Him in Life * Honoring the Legendary Dick Hoyt * Cleveland Rockin’ Wildcats: Special Needs Hockey with a Heart! * Unified Sports: A Great Way to Start Inclusion in a Fun and Positive Way * Special Olympics Is Truly Special and Much More Than Just Sports   You May Also Like * Adapted PE for Reality * The 7 Habits of Highly Successful Fitness Programs * The Family Factor of Five: Making Time for Fitness (and Actually Doing It) * Fitness Equipment Worth Buying * Adapted Phy. Ed. Is It in Your Child’s IEP? It Should Be. * a href="https://www.parentingspecialneeds.org/article/fitness-fun-incorporating-fitness-into-the-classroom/" targ...

  7. 12/01/2023

    Why Staying Stuck Doesn’t Have to Be Your Forever Reality

    Do you ever feel like what you’re doing with your life isn’t really what you should be doing? Or that you aren’t where you need to be in your life?  [Click to Listen to Podcast] Staying Stuck in Your Life’s Path Doesn’t Have to Be Your Reality Today we asked Dr. Michael Chichak to join us. He is a physician and author of the new book “ Guide to Unstuck” I’ve asked him to join us today to talk about • What it means to feel “Stuck” • How to get the proper mindset to take the first steps to change • How to handle the emotions that go with this change       You May Also Like * Coping with the Life You Never Imagined * “Coping” One Day at a Time * Handling Your Child’s Diagnosis: Six Things Parents Should Do For Themselves * A Complete Guide on Positive Behavior Support for Children With Special Needs * How to Get Free From Unrealistic Expectations of Motherhood * Father’s Perspective: Raising a Child with Special Needs * I Do Not like Being a Special Needs Parent and That’s OK * Being United, Pampering, and Taking Care of Ourselves

  8. 15/12/2022

    Understanding Nonverbal Communication to better connect with your child

    Without communication we are not in the world Ways to Better Understand Communication [Click to Listen to Podcast] Connect and understand your child better by learning how pick up on non-verbal communication. Communication is a gift! Are you a parent of a child who struggles with verbal communication for many reasons? Do you need help communicating better with them? Please stay and listen because… Today we asked Patricia Bailey to join us. She is an author and childhood interventionalist interested in teaching and helping individuals pick up on the subtle nuances of communication. Points discussed: * What are the subtle nuances of communication * How to notice them and what do they mean * How to use them to better connect with your We asked Patricia Bailey for her 2022 selection to encourage communication, her suggestions can be found here.         Helpful Articles * Communication and Connecting are Gifts to be Celebrated! * Kids Learn Communication Best through the Help of their Parents [Infographic] * Back Talk: 5 Ways to Help Your Child Practice Communication Skills at Home * Use Your Words Replacing Problem Behavior with Communication * ABOUT ME: Communication & Choice Making Guide * What’s “APP”ening? Helpful Communication Apps for Children with Special Needs * ASK Angie ASL – Communication Plan * Mask As a Tool for Communication * Embracing Your Child’s Best Ways of Learning 12 Different Ways to Learn You May Also Like * How to support REAL friendships with your child and their typical classmates? * Special Olympics Is Truly Special and Much More Than Just Sports * From Social Skills to Social Thinking * a href="https://magazine.parentingspecialneeds.org/publication/?m=13847&i=754221&p=14&ver=html5" target="_blank" rel="noopene...

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Parenting Special Needs Magazine now has a Podcast!! Parenting Special Needs’ Podcast provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys of one of life’s greatest gift. Get empowered, educated and inspired with host and Parenting Special Needs Magazine Publisher/Creator, Chantai Snellgrove as she keeps us informed on the latest trends in the special needs community. She will discuss books, ideas and news you want to hear, as well as interview special guests like parents, authors, industry experts, doctors, trendsetters, and all-around successful people that understand what we are all going through, as well as different ways to navigate the, often times, confusing questions, frustration and diagnoses. As a special needs parent, Chantai knows that “Together, we learn from others who have been on this path before us.”

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