From The Heart: The HeartKids Podcast

HeartKids
  • 5.0 (24)
  • HEALTH & FITNESS
  • UPDATED FORTNIGHTLY
From The Heart: The HeartKids Podcast

Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD. Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD.From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD. 

  1. Navigating a New Diagnosis Pathway, for Heart Kid # 2... Sami Glastonbury's Life Updates

    12 NOV

    Navigating a New Diagnosis Pathway, for Heart Kid # 2... Sami Glastonbury's Life Updates

    In this episode of "From the Heart," join our host, Sami, for a catch-up conversation with podcast producer, Mel.Mel and Sami chat about Sami's current pathway to seeking a diagnosis for her daughter, as well as updates from all the incredible events and outcomes from HeartKids for the year.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, ...

    31 min
  2. Supporting a Heart Kid, to a Heart Teen... Amy Heafield's Story

    29 OCT

    Supporting a Heart Kid, to a Heart Teen... Amy Heafield's Story

    In this episode of "From the Heart," join our host, Sami, for a conversation with Amy Heafield.Many families who have spent time at the Royal Children's Hospital in Melbourne will have crossed paths with Amy; Amy is a Support Coordinator with HeartKids, and a parent to a heart teen.Amy and Sami chat about what HeartKids Support looks like, the joys of supporting teens on teen camp, and considerations in supporting a heart kid, as they transition through childhood, to their teen years, and bey...

    31 min
  3. Life as an Adult with CHD... Jaden Dixon's Story

    15 OCT

    Life as an Adult with CHD... Jaden Dixon's Story

    In this episode of "From the Heart," join our host, Rachael, for a conversation with Jaden Dixon.Jaden is a 29-year-old from Brisbane who was born with Hypoplastic Left Heart Syndrome (HLHS). Jaden studied social work and now works for Queensland Health. Listen in as Rachael and Jaden discuss their heart journeys, Jaden's involvement with HeartKids, the importance of connecting with the peer community, finding your people, and living life with a heart condition! HEARTKIDS From The H...

    41 min
  4. The Complete Race Driver... Wes McDougall's journey with Tetralogy of Fallot

    1 OCT

    The Complete Race Driver... Wes McDougall's journey with Tetralogy of Fallot

    In this episode of "From the Heart," join our host, Sami, for a conversation with Wes McDougall.Wes is a heart adult, who has a stunning career as a racing engineer – now working with Supercheap Auto as chief engineer, as well as an instructional coach for his own business, the Complete Race Driver.Wes and Sami connect about his experiences growing up as a heart kid, surgery as an adult, and pursuing an exciting career. HEARTKIDS From The Heart is brought to you by HeartKids, the only na...

    43 min
  5. My CHD Journey: Audrey Keillor

    17 SEPT

    My CHD Journey: Audrey Keillor

    In this episode of "From the Heart," join our host, Rachael, for a conversation with Audrey Keillor.Audrey is a 19-year-old heart adult, who was born with Tetralogy of Fallot. Audrey and Rachael connect over their experiences as young adults with CHD, transitioning to adult care, and the importance of community and connecting with peers.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected ...

    28 min
  6. PPA2: Rare Genetic Conditions - Danielle Green's Story

    27 AUG

    PPA2: Rare Genetic Conditions - Danielle Green's Story

    In this episode of "From the Heart," join our host, Sami, for a conversation with Danielle Green. Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2. Sami and Danielle chat about Danielle and her husband Leon's journey with this extremely rare condition, advocating for genetic testing and counselling, and the importance of family and community during the most difficult of times.A content warning: This episode wi...

    51 min
  7. Child Life Therapy and CoHD: Kate Strickland

    13 AUG

    Child Life Therapy and CoHD: Kate Strickland

    In this episode of "From the Heart," join our host, Sami, for a conversation with Kate Strickland. Kate is a Child Life Therapist, who works in the community with children - one of the first Child Life Therapists to work outside of a hospital framework.Sami and Kate chat about how to prepare a child for surgery, what to expect, and how to process the event after families return home. Kate offers fantastic tips, resources, and information to anyone bolstering support around their HeartKid thro...

    36 min
  8. Health, happiness and connection: Emma Psaros CHD journey

    30 JULY

    Health, happiness and connection: Emma Psaros CHD journey

    In this episode of From the Heart, host Rachael chats with Emma Psaros, a 25-year-old who has grown up with congenital heart disease (CHD). Emma shares her journey of managing her heart condition while leading a balanced and full life.Emma discusses her transition from paediatric to adult care, the importance of open communication with healthcare professionals, and the support she receives from family and friends. She highlights her strategies for managing mental health, including therapy and...

    37 min
See All (75)

5
out of 5
24 Ratings

About

Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD. Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD.From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD. 

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