Lichen Sclerosus Podcast Kathy Ruiz-Carter

If you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly about sex and intimacy, leading to frustration and distance instead of connection. But what if there's a way to enhance your communication and connection, even in the midst of challenges? Let's dive into the journey of a couple navigating the complexities of long-term relationships and discover the transformative power of open dialogue and shared experiences.
In this episode, you will be able to:
Gain insights into managing pelvic floor dysfunction in individuals dealing with Lichen Sclerosus for better everyday comfort and confidence.Explore strategies for maintaining sexual intimacy while managing Lichen Sclerosus to nurture connection and closeness with your partner.Learn how to provide meaningful support to partners coping with Lichen Sclerosus, fostering empathy and understanding in the relationship.Enhance communication about sexual health in long-term relationships, fostering a deeper emotional and physical connection with your partner.
My special guests are Annie and Micheal
Annie and Michael bring a unique perspective to the conversation as a couple navigating the challenges of living with Lichen Sclerosus. Annie's personal journey with LS, from dealing with misdiagnosis to undergoing a biopsy, provides a firsthand understanding of the physical and emotional toll this condition can take. Michael, as a supportive partner, shares his experiences of navigating the impact of LS on their intimate relationship and the communication challenges they faced during this time. Their honest and open dialogue sheds light on the complexities of managing LS within a long-term relationship, making their insights valuable for others in similar situations.
The key moments in this episode are:
00:00:00 - Introducing Annie and Michael
00:02:22 - Annie's LS Journey
00:08:25 - Biopsy Process and Support
00:13:02 - Communication and Relationship
00:15:55 - Medical Diagnosis and Initial Concerns
00:17:43 - Age and Diagnosis
00:19:06 - Diagnosis Confirmation and Frustrations
00:23:26 - Partner's Involvement and Education
00:26:35 - Medication Side Effects and Treatment Adjustments
00:30:20 - Advocating for Yourself
00:32:30 - Importance of Education for Doctors
00:36:06 - Impact on Relationships
00:39:37 - Transformation through Communication
00:43:47 - Coping with Stress and Loss
00:45:05 - The Importance of Communication in Relationships
00:47:17 - Broadening Perspectives on Intimacy and Sex
00:51:27 - Seeking Support for Partners and Caregivers
00:55:43 - Journey to Healing with Dr. Bob
00:58:52 - Excitement for the upcoming summit
00:59:27 - Doctor Bab's thorough care
01:00:53 - Virtual visits with Doctor Bab
01:01:37 - Open communication about sex
01:02:38 - Summit topics and invitation
Register for the Holistic Healing Summit from May 13th to 17th at lssupportnetwork.org to gain valuable insights and information on intimacy, communication, sexual intimacy, and emotional intimacy in the context of Lichen Sclerosus.Explore the book Sex Talks: The Five Conversations That Will Transform Your Love Life by Vanessa Marin for valuable guidance on enhancing intimacy and communication in your relationship. https://www.amazon.com/Sex-Talks-Five-Conversations-Transform/dp/1668000016Connect with Dr. Babb, a vulvar specialist, for thorough examinations and expert guidance on managing Lichen Sclerosus. Virtual visits are also available for those who are not local. https://havencenter.comExplore the SweetSpot Labs body wash and other products recommended by Annie for gentle care of the skin, especially for those with Lichen...

Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs
Join us for this informative panel discussion on lichen sclerosis and sexual health. Hosted by Kathy Ruiz-Carter, we have a talented group of experts: patient advocate Jaclyn Lanthier, gynecologist Dr. Suzanne Weber, and pelvic health physical therapist Dr. Mamawah Bourque.
We cover key topics like LS treatment and management, tips for engaging in sexual activity, managing symptoms during menstruation, considerations around pregnancy, and more. The panel shares practical guidance grounded in both clinical expertise and lived experience. You'll discover helpful insights on using steroids, alternate therapies, dilator work, lubricants, vulvar care, pelvic floor health, open communication with partners, and listening to your body's needs.
We also talk about emerging research on LS progression and hormonal connections. Whether newly diagnosed or a long-time LSer, you'll find empowering takeaways to improve your sexual health and approach LS management more holistically. We hope you feel encouraged in your journey toward remission and pain-free intimacy.
Let us know in the comments what resonated most or what additional questions you have! And don't forget to check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs
In this episode, you will be able to:
Understand how to manage lichen sclerosus during pregnancy for a smoother journey.Discover practical tips for maintaining sexual health while dealing with vulvar lichen sclerosus.Learn effective strategies for comfortable bike riding despite lichen sclerosus symptoms.Explore the benefits of pelvic floor therapy in managing lichen sclerosus symptoms.Uncover the hormonal effects on lichen sclerosus symptoms and how to mitigate them.
My special guest is Jaclyn Lanthier, Suzanne Weber, and Mamawah Bourque.
The key moments in this episode are:
00:00:00 - Introducing the National Vova Awareness Day event.
00:03:24 - LS progression and management.
00:07:33 - Natural and maintenance options for LS treatment.
00:12:07 - Treating different areas of the genitals.
00:15:26 - Personalized application of treatment.
a href="https://www.youtube.com/watch?v=0OlWDd0bPLY&t=992s" rel="noopener noreferrer"...

Topics:
What is the LSSN Wholistic Healing Summit?Importance of addressing relationships affected by Lichen Sclerosus (LS)Summit focus: Partners, Caregivers, and DisclosureSessions for patients, partners, and caregiversWellbeing activities for stress managementOpportunities to connect with other attendees
Key Points
LSSN is a non-profit patient organization providing education and support for those with LS.LS impacts all aspects of life, including relationships.The summit helps patients, partners, and caregivers discuss LS, manage sexual health, and build intimacy.Free, Value, and All Access ticket options are available.
Time Stamps
00:00:00 - Introduction to Holistic Healing Summit
00:02:36 - Challenges in Talking About LS
00:04:38 - Disclosing LS to Partners
00:08:45 - Supporting Caregivers of LS Patients
00:10:07 - Managing LS Symptoms and Well-being
00:15:18 - Ticket Options for the Summit
00:16:09 - All Access Pass Benefits
00:17:18 - Partnership Meetup
00:18:48 - Exclusive Summit Benefits
00:20:55 - Summit Evolution and Community Impact
Mentioned in this episode:
Reconnecting and Healing with the 2024 Wholistic Healing Summit
Does Lichen Sclerosus make you feel isolated or affect your relationships? You're not alone. The Lichen Sclerosus Support Network's Wholistic Healing Summit is here to help you find connection, support, and healing.

This free, virtual event focuses on "Reconnecting & Healing." Gain expert knowledge on managing LS; learn strategies for communicating with your family, friends, and partner; get tools to improve the intimacy in your relationship; and discover tips to prioritize your well-being. Join empowering sessions, connect with others who understand, and learn from top medical professionals.

Secure your spot today. Don't miss out—visit http://www.lssupportnetwork.com/whs and register today. Let's start this journey to greater understanding, connection, and healing together!

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus.
I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Mauskar broke down the key takeaways in an accessible way – no need for a medical degree to follow along! Whether you have lichen sclerosus yourself or treat patients, I think you'll find this chat insightful.
A few highlights that caught my ear:
The role of progesterone and other hormones in LS skin How treatment impacts microbiome diversity Exciting areas for future research.
Dr. Mauskar's passion for patient-centered care and collaboration across specialties to move the needle is inspiring. She helped me understand how this study into hormones and the vulvar microbiome in lichen sclerosus, while small, contributes an important puzzle piece to better understanding and treating this chronic condition.
Let me know what intrigued or surprised you! I always love hearing your experiences and thoughts. And if you appreciate Dr. Mauskar and other clinicians advancing vulvar health, show some love in the comments! ❤️
In this episode, you will be able to:
Explore the intricate connection between hormonal balance and lichen sclerosus for a holistic understanding. Uncover the role of the microbiome in lichen sclerosus and its impact on treatment approaches. Create personalized treatment plans tailored to individual needs for more effective management of lichen sclerosus. Gain insights into providing comprehensive care for vulvar health, enhancing patient outcomes. Discover the benefits of collaboration in advancing research and care for vulvar health.
My Special Guest Is Dr. Melissa Mauskar Dr. Melissa Mauskar,  an Associate Professor in the Department of Dermatology and the Department of Obstetrics and Gynecology at UT Southwestern Medical Center, is not your typical expert. She's a trailblazer in the field, serving on the board of the newly founded Vulvar Dermatoses Research Consortium and as the secretary general for the  North American branch of the International Society for the Study of Vulvovaginal Disease.
With a deep commitment to patient care and a particular focus on lichen sclerosus, Dr. Mauskar's latest research delves into this condition's hormonal and microbiome aspects. Her dedication and expertise in unraveling the complexities of lichen sclerosus make her a true star in the field.
The Key Moments In This Episode Are: 00:00:12 – Introduction to Lichen Sclerosis Podcast 00:02:44 – Research Project Background 00:09:36 – Study Methodology and Findings 00:12:42 – Potential Impact and Future Research 00:15:05 – Skin Hormone Levels and Implications 00:17:02 – Significance of Study Results 00:18:01 – Understanding Microbiome 00:20:35 – Treatment Approach and Microbiome 00:24:33 – Role of Yeast in Lichen Sclerosis 00:27:30 – Future Research and Hormonal Influences 00:33:30 – Recognition of Healthcare Providers 00:34:06 – Importance of Care 00:34:52 – Momentum in Menopause Research 00:35:43 – Need for Specialized Healthcare 00:36:31 – Conclusion and Call to Action
The Resources Mentioned In This Episode Are: Link to the abstract for the study mentioned in the podcast: This will provide detailed information about the study conducted by Dr. Mauskar and her team, “Assessment of the Cutaneous Hormone Landscapes and Microbiomes in Vulvar Lichen Sclerosus,” allowing you to delve deeper into the findings and implications. https://pubmed.ncbi.nlm.nih.gov/38368928/ Dr. Mauskar's Instagram...

Get ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, they're empowering LS warriors like me. But just when everything seems perfect, a shocking revelation threatens to unravel all their progress. Will they overcome this unexpected obstacle? Find out on the Lichen Sclerosus Podcast!
In this episode, you will be able to:
Discover the latest updates and initiatives from the Lichen Sclerosis Support Network (LSSN) in their year-end review.
Explore diet and lifestyle treatment resources that can help manage Lichen Sclerosis (LS) and improve your overall well-being.
Dive into the digital pages of LS Zine, a magazine dedicated to providing valuable insights and support for individuals living with LS.
Learn about the whole-body approach of the Wholistic Healing Summit and what next year's summit will focus on.
Learn about the other exciting projects and initiatives undertaken by the Lichen Sclerosis Support Network (LSSN) to support individuals dealing with LS.

The key moments in this episode are: 00:00:11 - Introduction 00:01:10 - Mission of LSSN 00:02:40 - Giving Tuesday 00:11:47 - What's New On The Website 00:14:42 Blog Posts 00:18:08 - Video Posts 00:22:00 - LSSN YouTube Channel 
00:26:07 Virtual Meetups
00:30:56 LS Brochures
00:33:49 LSSN Shop 00:36:57 Long Form Content 00:41:04 LS Zine/LSSN's Digital Magazine 00:43:09 LSSN Board/Medical Advisory Board 00:46:18 Wholistic Healing Summit 00:47:50 LSSN Mini Summit: Vulvovaginal Conditions 00:50:02 Who have we partnered with? 00:57:40 - Reflecting on Accomplishments and Future Goals
Check out all the ways Lichen Sclerosus Support Network can help you at lssupportnetwork.org.
Visit our website at Lichen Sclerosus Support Network to access our resources and information. https://lssupportnetwork.org
Check out our blog for over 42 informative posts on Lichen Sclerosus. https://lssupportnetwork.org/blog
Check out our 32 video educational posts on everything LS related. https://lssupportnetwork.org/videos
Attend our virtual Meetups to connect with others and learn more about Lichen Sclerosus. https://lssupportnetwork.org/connect
Find a healthcare provider in our directory who specializes in Lichen Sclerosus. https://lssupportnetwork.org/providers
Browse our brochures for helpful information on managing Lichen Sclerosus. https://lssupportnetwork.org/brochure
Shop at our online store for Lichen Sclerosus-related products and merchandise. https://lssupportnetwork.org/shop
Support our education fund by making a donation on Giving Tuesday or becoming a monthly donor. https://lssupportnetwork.org/givingtuesday
Stay updated on news and events at LSSN by subscribing to our newsletters. https://lssupportnetwork.org/subscribe
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Have you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It’s our 3-day, 100% virtual event presented by medical experts on rarely discussed conditions, such as lichen sclerosus. You may be saying, I already have LS. Why do I need to know about other conditions? Or I don’t want to know about anything else. But the thing is, this is VERY important to your LS journey! In this episode, I will explain why you do not want to miss this summit, especially if you already have a vulvovaginal condition. We’re going to talk about: 🪷 Misdiagnosis 🪷 Secondary conditions 🪷 Proper treatment 🪷 Empowerment and self-advocacy 🪷 Having a medical resource you can trust at your fingertips
Want to learn more about the summit? Head to https://lssupportnetwork.org/minisummit2023 for more information and details. Get your All-Access Pass before September 19, 2023, and get access to (W)holistic Healing Summit 2022 and 2023 replays until November 1, 2023. You do not want to miss this.
Other links from the episode:
Virtual Meetups
https://lssupportnetwork.org/connect
Provider Directory
https://lssupportnetwork.org/providers
LSSN Membership
https://lssupportnetwork.org/membership
 
Mentioned in this episode:
Reconnecting and Healing with the 2024 Wholistic Healing Summit
Does Lichen Sclerosus make you feel isolated or affect your relationships? You're not alone. The Lichen Sclerosus Support Network's Wholistic Healing Summit is here to help you find connection, support, and healing.

This free, virtual event focuses on "Reconnecting & Healing." Gain expert knowledge on managing LS; learn strategies for communicating with your family, friends, and partner; get tools to improve the intimacy in your relationship; and discover tips to prioritize your well-being. Join empowering sessions, connect with others who understand, and learn from top medical professionals.

Secure your spot today. Don't miss out—visit http://www.lssupportnetwork.com/whs and register today. Let's start this journey to greater understanding, connection, and healing together!