IBS Chat Jeffrey Roberts

Mahana IBS is a new FDA-cleared clinically proven digital treatment app that uses Cognitive Behavioral Therapy (CBT) to reduce IBS symptom severity. Manaha reports that nearly 2 in 3 patients using Mahana IBS find relief for their IBS symptoms. My guest was Dr. Luisa Scott who is the Director of Medical Affairs at Mahana. We learn what Medical Affairs do for an organization and how CBT - Cognitive Behavioral Therapy, acts on the brain-gut-axis to manage IBS symptoms. Dr. Scott describes the research which supports a digital CBT program for IBS and whether this approach is right for everyone. Patients of course need to talk to their healthcare provider and receive a prescription in order to gain access to the digital app.
For more information about Mahana IBS visit https://www.mahana.com/treatments/ibs
Find Jeffrey Roberts and IBS Patient Support Group at:
Website: https://www.ibspatient.org
Facebook: https://www.facebook.com/groups/ibspatient
Twitter: https://twitter.com/ibspatient
Instagram: https://www.instagram.com/ibspatient
 Music:
Werq Kevin MacLeod (incompetech.com)Licensed under Creative Commons: By Attribution 3.0 Licensehttp://creativecommons.org/licenses/by/3.0/

Jeffrey Roberts, Founder IBSpatient.org, had the opportunity to share his IBS story and advocacy journey with first year medical students at Tuft’s University School of Medicine. He was interviewed by Dr. Libby Bradshaw, Patient Experience Threads Director and Assistant professor, Public Health and Community Medicine. Dr. Bradshaw’s session with the students was to focus on the patient experience of IBS and abdominal pain.
Jeffrey was very pleased to share his early years of being diagnosed and how he began becoming a patient advocate. He also touched on his IBD diagnosis later in life and how IBS and IBD are different for him. They spoke about the stigma that IBS patients encounter from family and the medical community as well as a doctor’s perspective and what Jeffrey believes is important for medical students to know.
Find Jeffrey Roberts and IBS Patient Support Group at:
Website: https://www.ibspatient.org
Facebook: https://www.facebook.com/ibspatient
Twitter: https://twitter.com/ibspatient
Instagram: https://www.instagram.com/ibspatient
 Music:
Werq Kevin MacLeod (incompetech.com)Licensed under Creative Commons: By Attribution 3.0 Licensehttp://creativecommons.org/licenses/by/3.0/

Ernie Molina is someone who developed IBS after a being placed on antibiotic therapy by his dentist for 6 months after dental implants. His dentist felt that Ernie’s gut discomfort could be managed by eating yogurt. This did not work for Ernie. Before the dental work, Ernie described his health as good and enjoyed a wide variety of foods. This all changed following the antibiotics. Fortunately Ernie’s wife Mary had developed a bar which had few ingredients due to their daughter Lola needing a gentle snack food. When probiotics were added to the bar, Ernie began to return to a normal life. That’s when the Lola Snacks Probiotic Energy Bar took off.
In my conversation with Ernie and Mary Molina, Ernie tells his story when and how he was diagnosed with IBS and how he felt after eating the Lola Snacks bars. Mary shares details about how the bar was developed and plans for the future including wide distribution of the bar and an interest in a research clinical trial to understand why Lola Snacks bars eased Ernie’s IBS symptoms. You can find our more information about Lola Snacks at https://lolasnacks.com/
Find Jeffrey Roberts and IBS Patient Support Group at:
Website: https://www.ibspatient.org
Facebook: https://www.facebook.com/ibspatient
Twitter: https://twitter.com/ibspatient
Instagram: https://www.instagram.com/ibspatient
 Music:
Werq Kevin MacLeod (incompetech.com)Licensed under Creative Commons: By Attribution 3.0 Licensehttp://creativecommons.org/licenses/by/3.0/

Dr. Mark Pimentel is a professor of medicine and gastroenterology at Geffen School of Medicine UCLA and associate professor of medicine at Cedars-Sinai Medical Center, Los Angeles. He is also the executive director of the Medically Associated Science and Technology (MAST) Program at Cedars-Sinai, https://csmast.com. A pioneering expert in irritable bowel syndrome (IBS), Dr. Pimentel's research led to the first-ever blood tests for IBS, https://ibssmart.com. Dr. Pimentel has served as a principal investigator for numerous clinical investigations of IBS and the relationship between gut flora composition and human disease. Dr. Pimentel is a diplomate of the American Board of Internal Medicine, a fellow of the Royal College of Physicians and Surgeons of Canada, and a member of the American Gastroenterological Association, the American College of Gastroenterology, and the American Neurogastroenterology and Motility Society.
Pam Emmer is a GI motility patient who has overcome SIBO, small intestinal bacterial overgrowth. She has been a patient advocate, fundraiser and cheer leader for Cedar Sinai Medical Center in LA and the Mast Program for almost 10 years.
Pam and I met with Dr. Pimentel at DDW 2023 in Chicago where we spoke about intestinal methane overgrowth, how to use prokinetics, motility and pooping - what's the difference, biomarkers for malabsorption and its relationship to SIBO and upcoming clinical trials for the MAST program. 
Find Pam Emmer at:
Website: https://lifeaftersibo.com
Facebook: https://www.facebook.com/pamslifeaftersibo
Twitter: https://twitter.com/lifeaftersibo
Instagram: https://www.instagram.com/lifeafter_sibo
Find Jeffrey Roberts and IBS Patient Support Group at:
Website: https://www.ibspatient.org
Facebook: https://www.facebook.com/ibspatient
Twitter: https://twitter.com/ibspatient
Instagram: https://www.instagram.com/ibspatient
 Music:
Werq Kevin MacLeod (incompetech.com)Licensed under Creative Commons: By Attribution 3.0 Licensehttp://creativecommons.org/licenses/by/3.0/

Johannah Ruddy MEd, is the Executive Director of the ROME Foundation and a patient advocate. Johannah works to provide the patient perspective to everything that she does. She recently co-wrote and published the book Gut Feelings: Disorders of Gut Brain Interaction which is a guide for patients and doctors.
Johannah and I got together to discuss our own experiences related to “What I Wish Someone had Told me About IBS”. We discuss how patients aren’t alone and how you can gain information from others. We believe that the stigma about talking about IBS might be decreased if people were more open about suffering with it.
Not everyone has the answers so it’s important to leverage your relationship with your doctor and to question treatment options. Be positive things will get better!
Find Jeffrey Roberts and IBS Patient Support Group at:
Website: https://www.ibspatient.org
Facebook: https://www.facebook.com/ibspatient
Twitter: https://twitter.com/ibspatient
Instagram: https://www.instagram.com/ibspatient
 Music:
Werq Kevin MacLeod (incompetech.com)Licensed under Creative Commons: By Attribution 3.0 Licensehttp://creativecommons.org/licenses/by/3.0/

Natalie (Sparacio) Hayden is an Inflammatory Bowel Disease patient advocate who was diagnosed with Crohn’s disease in 2005, She is a Mom of 2 beautiful children, with one more on the way. She is a former TV news anchor and reporter so she has had a very active life. Her blog is LightsCameraCrohns.com where she publishes weekly articles. She enjoys sharing stories about pregnancy and motherhood in hopes of comforting and empowering others.
I was struck by Natalie’s story about living with IBD and the overlap with the quality of life of living with Irritable Bowel Syndrome (IBS). It’s a similar constant power struggle that we have living with a digestive disease.
In my conversation with Natalie, she tells her story when and how was she diagnosed including her warning symptoms. Natalie told me about her day to day coping and what it’s like being a stay-at-home Mom and Mom to be, with the fear of starting a biologic and the effect on fertility. She speaks about parenthood and what can and can’t she do. She says it takes a wonderful partner to be able to cope.
Natalie believes that “the moment you open up and share your story is when you will receive support”.
Find Natalie Hayden at:
Website: https://LightsCameraCrohns.com
Facebook: https://www.facebook.com/natalieasparacio
Twitter: https://twitter.com/nataliesparacio
Instagram: https://www.instagram.com/natalieannhayden/
Find Jeffrey Roberts and IBS Patient Support Group at:
Website: https://www.ibspatient.org
Facebook: https://www.facebook.com/ibspatient
Twitter: https://twitter.com/ibspatient
Instagram: https://www.instagram.com/ibspatient
 Music:
Werq Kevin MacLeod (incompetech.com)Licensed under Creative Commons: By Attribution 3.0 Licensehttp://creativecommons.org/licenses/by/3.0/