66 episodes

The latest information from medical and nutrition experts about living with celiac disease and managing a gluten-free lifestyle!

The Gluten-Free Guide Gluten-Free Guide Channel

    • Nutrition

The latest information from medical and nutrition experts about living with celiac disease and managing a gluten-free lifestyle!

    Food Bullying and Celiac Disease

    Food Bullying and Celiac Disease

    Food bullying. It can range from teasing others at school or online in social media groups, to kids throwing bread at children with celiac disease. In many cases it’s parents that are doing the bullying...But how do you address this problem? As the issue has come up numerous times in the past few weeks in our Celiac Clinic at Children's National Hospital, we wanted to address it on the podcast. Joining Vanessa in the studio are two of the CNMC community education specialists, Kate Raber and Joyana McMahon. 

    Links in Episode: 
    The Princess and the Peanut Allergy: https://www.amazon.com/Princess-Peanut-Allergy-Wendy-McClure/dp/0807566233Can I Have Some Cake Too? https://www.amazon.com/Have-Story-about-Allergies-Friendship/dp/1935914286What Treat Can Ruben Eat? https://www.amazon.com/What-Treat-Can-Ruben-Eat/dp/1481753762Pediatrics study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3529950/
     

     

    • 22 min
    Gluten-Free Travel Finds with Leslie Bari of Gluten-Free Finds PA

    Gluten-Free Travel Finds with Leslie Bari of Gluten-Free Finds PA

    Today’s topic is an always popular one. We all love to travel, it’s one of the best parts of life. But doing so is a bit more complicated while following a gluten-free lifestyle. Today we have an expert to share some of her favorite tips for gluten-free travel. Leslie Bari is the founder of Gluten Free Finds PA and the Constitutional Walking Tour. She loves to find and share her gluten-free finds and travel tips with her readers and has built quite a community doing so. We’re so happy to have her join us today to share some of her travel wisdom!

    • 16 min
    Social Media and Celiac. Has Facebook Become Your Doctor?

    Social Media and Celiac. Has Facebook Become Your Doctor?

    Most of us use social media in one way or another to connect with family, friends, and other communities that enrich our lives. But sometimes social media groups present information about medical conditions that is just wrong. It's frightening that some people might take online posts as fact instead of talking to their doctor or other health care professional.  To help us talk about these issues we have a wonderful group here in the studio…Our Children's National Community Education Specialist Joyana McMahon….and one of our amazing board members Maureen Basye, who is a mom to a child with celiac disease and the founder of Celiac Cruise. 

    Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible. 

    • 21 min
    New Celiac Treatment Passes Phase 2 Clinical Trial

    New Celiac Treatment Passes Phase 2 Clinical Trial

    Do we have a new drug for celiac disease? Results of a new phase 2 clinical trial using technology developed at Northwestern university showed that it is possible to induce immune tolerance to gluten in individuals with celiac disease. The researchers suggest that their findings may pave the way for treated celiac patients to eventually tolerate gluten in their diet. As we are writing these these words we can hear our listener around the world cheering for joy that there may be a magic pill to take that will allow them to eat gluten. But is that really the case? 

    To help us better understand what this new drug is and how it might help patients with celiac disease, we have Dr. Jocelyn Silvester from Boston Children’s Hospital in the studio. Dr. Silvester is a leading celiac disease research in the United States and Canada and one of our favorite podcast guests! 

    Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible. 

    • 16 min
    Celiac Research - What Patients Should Do with New Information

    Celiac Research - What Patients Should Do with New Information

    Today’s topic is going to follow up on the influx of research and proclamations about the future of celiac disease. How do we as patients learn how to process the relevance of research in our own lives? How do we know what is important for us? How do we understand the significance of research and how it could potentially affect us?

    To discuss this topic with us, we have Dr. Ritu Verma from the University of Chicago Celiac Disease Center. Dr. Verma is a leading expert in celiac disease and is passionate about integrating current research and therapies in clinical care to provide the most innovative treatments for patients. Dr. Verma sat down for this conversation with one of our podcast co-hosts Ellen Wilcox at the recent DC Gluten-Free Education Day. 

    Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible. 

    • 13 min
    Hot Topics from the International Celiac Disease Symposium

    Hot Topics from the International Celiac Disease Symposium

    There was so much knowledge, research, and collaboration at the 2019 International Celiac Disease Symposium in Paris, France. To breakdown some of the major themes from the conference, Vanessa has three experts in the studio: Dr. Jocelyn Silvester from Boston Children's Hospital, Dr. Ritu Verma from the University of Chicago Celiac Disease Center, and Dr. Benny Kerzner from Children's National Medical Center. 

    After the group shares some of the big takeaways from the conference, they dive into a discussion about the gluten-free bakery tour they went on with a group of pediatric gastroenterologists from around the United States. Here were their favorites spots: 
    Helmut Newcake: http://www.helmutnewcake.com/ Chambelland: https://chambelland.com/en/ Yummy and Guilt-Free: https://www.yummyandguiltfree.com/ 
    Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible. 

    • 42 min

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