124 épisodes
When Life Gives You Parkinson's Curiouscast
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- Health & Fitness
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4,4 • 250 notes
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Larry Gifford has Parkinson’s disease, and he wants to talk about it. When Life Gives You Parkinson’s chronicles Larry’s journey following diagnosis at age 45, but he knows he’s only part of the story. The podcast gives voice to the fascinating people that make up the Parkinson’s community and beyond — his family, his fellow people with Parkinson’s, care partners, advocates, researchers and healthcare providers. Through these interviews, the podcast informs and inspires others to share their own stories revealing the challenges and growth offered by the Parkinson’s journey. Larry is a seasoned broadcaster and the podcast is co-hosted by then-radio personality Niki Reitmayer until 2020 when Larry’s wife Rebecca takes on the role. Special thank you to our partners. Presenting partner is Parkinson Canada, content and promotional partner Spotlight YOPD, and The Michael J. Fox Foundation for Parkinson’s Research Parkinson’s IQ + You, PD Avengers, World Parkinson Congress #WPC2023 in Barcelona, Spain.
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From Awareness to Action: The Final Episode
In this bittersweet finale of "When Life Gives You Parkinson's," we reflect on the incredible journey we've shared over 124 episodes. From the very first episode to this one, we've laughed, cried, and learned together. Countless guests have graced our show, sharing their stories, insights, and expertise, making each episode a treasure trove of knowledge and connection.
Hosts Larry and Rebecca take a moment to express gratitude to everyone who has contributed to the success of the podcast. Whether you've been a guest, a listener, or a supporter, your presence has made a difference. Through the highs and lows, the triumphs and challenges, we've built a community bound by a shared mission: to raise awareness, offer support, and ultimately find a cure for Parkinson's disease.
As we bid farewell to "When Life Gives You Parkinson's," we carry with us the memories, the laughter, and the friendships forged along the way. Thank you, everyone, for being part of this incredible journey. Though this may be the final episode, the impact of our collective efforts will continue to resonate far beyond the confines of this podcast.
From all of us at "When Life Gives You Parkinson's," thank you, and be well.
EMAIL US: Larry@PDAvengers.com
JOIN PD AVENGERS: www.pdavengers.com
Thanks to Rebecca Gifford, Niki Reitmayer, Chris Duncombe, Dila Velazquez, Rob Johnson, Greg Schott, and Corus Entertain. Special thanks to Parkinson Canada who has been there supporting the podcast since the beginning. -
Dialing in DBS and Sorting Through the Data with Rune Labs CEO Brian Pepin
In the latest episode of "When Life Gives You Parkinson’s," Larry Gifford shares insights into his Deep Brain Stimulation (DBS) journey alongside his partner, Rebecca Gifford. Larry expresses excitement about the positive impact of DBS on his symptoms, noting improvements in walking, voice, and overall confidence. He recommends Dr. Jon Stamford’s new DBS DIARY for a comprehensive view of the DBS dilemma. The episode features an interview with Brian Pepin, CEO of Rune Labs, the technological interface for Medtronic's DBS system. For those considering DBS, Larry invites questions through the show notes or via email. The podcast, a production of Curiouscast, is sponsored by PD Avengers, urging listeners to participate in SparktheNight.org and share the podcast for Parkinson’s awareness. The episode concludes with a reminder to stay positive, exercise, and keep listening until the next installment.
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DBS: I Helped Surgeons Operate on my Brain
In this episode of "When Life Gives You Parkinson’s," Larry and Rebecca dive into Larry's recent Deep Brain Stimulation (DBS) surgery. It's the culmination of their DBS series, showcasing moments before and after the procedure. (Episode six of our 2023 DBS series)
Larry shares his experiences, from the anticipation of the surgery to post-surgery reflections. He describes the fears he had about the head frame and the surgical process itself, emphasizing the involvement of Nurse Nancy and Dr. Honey. The detailed account covers the electrode installation, the testing of potential targets for relief, and the moments of consciousness during the surgery.
Post-surgery, Larry discusses the "Honeymoon" period, a phase of initial relief and remarkable changes. He talks about the reduction in medication intake, improved bodily functions, and sensory experiences like regaining his sense of smell. Despite these positive changes, he notes signs of needing to gradually reintroduce medication as he experiences disorientation and fatigue.
Larry and Rebecca conclude with observations of minor personality changes and a heartfelt conversation about what comes next.
It's a personal, insightful episode that offers a firsthand account of the realities and changes that come with DBS surgery for Parkinson's Disease.
MAIL Larry and Rebecca: ParkinsonsPod@curiouscast.ca
Have a topic or questions that you would like Larry & Rebecca to address on a future episode?
We would love you to click here and leave a message https://www.speakpipe.com/WhenLifeGivesYouParkinsons
Follow us, Larry & Rebecca Gifford
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
Twitter: @ParkinsonsPod
Thanks to Curiouscast
Our Presenting Partner is Parkinson Canada. Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.
Additional thanks to...
PD Avengers – We are building a global alliance to end Parkinson’s. Join us. -
DBS Pre-Op Talks: Love and Transition
Season 6, Episode 6
SHOW NOTES Oct 17, 2023
TITLE: DBS Pre-Op Talks: Love and Transition
Podcast Notes:
In the latest episode of the When Life Gives You Parkinson's podcast, hosts Larry and Rebecca Gifford discuss the upcoming Deep Brain Stimulation (DBS) surgery. The surgery is scheduled for October 24th, 2023, at UBC Hospital in Vancouver, British Columbia, Canada.
Larry and Rebecca take the audience through their preparations, discussions, and feelings as the surgery date approaches. They touch on a wide range of topics, including their emotional and practical preparations, managing their son Henry's needs, and the changes in household responsibilities.
They also discuss the potential outcomes of the surgery and what they hope to achieve. They emphasize the importance of quality-of-life improvements and share their gratitude and love for each other.
MAIL Larry and Rebecca: ParkinsonsPod@curiouscast.ca
Have a topic or questions that you would like Larry & Rebecca to address on a future episode?
We would love you to click here and leave a message https://www.speakpipe.com/WhenLifeGivesYouParkinsons
Follow us, Larry & Rebecca Gifford
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
Twitter: @ParkinsonsPod
Thanks to Curiouscast
Dila Velazquez – Story Producer
Greg Schott – Sound Design
Our Presenting Partner is Parkinson Canada. Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.
Thanks also to
PD Avengers – We are building a global alliance to end Parkinson’s. Join us. -
Brains and Drills: The Wild World of DBS Surgery
In this episode, Larry and his partner, Rebecca, discuss what to expect right before, during, and after DBS surgery. The surgery is scheduled for October 24th, 2023, and this episode was recorded about two weeks before the surgery.
The episode covers the pre-surgery preparations, including the need to stop medication before the surgery, and an informative description of the MRI process. Nurse Nancy, who works at British Columbia's DBS clinic, provides insights into the surgery day, which involves anchoring a frame to the patient's head, drilling small holes in the skull, and testing electrode placement to ensure optimal DBS results. The conversation also touches on battery replacement and the possibility of technology upgrades over time.
Nurse Nancy emphasizes the importance of closely monitoring the battery and making adjustments as needed. The recovery period is discussed, with a recommendation to take it easy for about six weeks to allow the brain to heal before turning on the stimulator. The potential reduction in medication is mentioned, with an emphasis on gradual adjustments to ensure a balance between symptom control and medication side effects. The episode provides a detailed and insightful overview of the DBS procedure and what patients can expect throughout the process. -
Navigating Deep Brain Stimulation: The Pros, Cons, and Realities
In this episode of "When Life Gives You Parkinson's," Larry Gifford and Rebecca Gifford delve into the world of Deep Brain Stimulation (DBS), continuing their 2023 series on this treatment option. While sharing their optimism about Larry's upcoming DBS surgery, they also address the importance of discussing the risks associated with it. They present real stories from individuals who've undergone DBS, shedding light on the complexities and varied experiences associated with this treatment. Kim Cornelis shares her personal journey, highlighting both the potential benefits and challenges of DBS. The episode also explores alternative treatments, like light therapy, and emphasizes the significance of open communication about the emotional and psychological impact of DBS, including discussions about suicidal ideation.
Join Larry and Rebecca as they provide valuable insights and a balanced perspective on the choices facing individuals with Parkinson's disease. They emphasize the importance of well-informed decisions, emotional support, and understanding within the Parkinson's community. The podcast aims to raise awareness about the mental health aspects of living with Parkinson's and undergoing treatment.
If you have no one to talk to about your suicidal thoughts, call your country's suicide hotline.
INTERNATIONAL SUICIDE HOTLINES
In Canada, it's 1-833-456-4566.
In the U.S. Dial 988.
In Australia, 131-114.
And in the UK dial 0800 689 5652.
KEY LINKS
Thank You to:
Kim Cornelis, PwP, Portland, Oregon
Becca Miller, PhD, PwP
Parkinson’s Resources of Oregon
Dr. Wayne Markman, founder & CEO of Symbyx Biome
If you have no one to talk to about your suicidal thoughts, call your country's suicide hotline.
INTERNATIONAL SUICIDE HOTLINES
In Canada, it's 1-833-456-4566.
In the U.S. Dial 988.
In Australia, 131-114.
And in the UK dial 0800 689 5652.
MAIL Larry and Rebecca: ParkinsonsPod@curiouscast.ca
Have a topic or questions that you would like Larry & Rebecca to address on a future episode? We would love you to click here and leave a message https://www.speakpipe.com/WhenLifeGivesYouParkinsons
Follow us, Larry & Rebecca Gifford
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
Thanks to Curiouscast
Dila Velazquez – Story Producer
Greg Schott – Sound Design
Our Presenting Partner is Parkinson Canada. Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.
Thanks also to
PD Avengers – We are building a global alliance to end Parkinson’s. Join us.
Avis des utilisateurs
... Make Time to Listen
When Life Gives You Parkinson’s is an honest, funny and engaging podcast chronicling host Larry Gifford’s personal journey with Parkinson’s disease.
Gifford, his wife Rebecca and their son, Henry live in Vancouver, British Columbia. Gifford has worked as a radio reporter and manager for almost 30 years. On August 17, 2017, Gifford was diagnosed with Parkinson’s disease at the age of 45. A year later, on June 29, 2018, he started recording his podcast. Now in its second season, When Life Gives You Parkinson’s is a first-hand account of what it’s like to live with Parkinson’s disease for Gifford, his family, and other members of the Parkinson’s community.
Along with co-host/producer, Niki Reitmeyer, the episodes in Gifford’s second season are released every second Wednesday, with bonus episodes called “Extra Dosage” in between. He shares his journey with Parkinson’s through conversation with and audio clips of Reitmeyer, his family, medical professionals, experts, and other patients with Parkinson’s disease.
Gifford’s podcast works best when it is honest and personal. In the first episode of season two, “Still Me, But Not The Same”, Gifford shares the changes that he and his family have noticed in him in the past year. Gifford updates listeners on his symptoms, and his wife and son talk candidly about his changing behaviours. Rebecca gives examples of Gifford’s shortened fuse, and 10-year-old Henry tells his dad that his friends are afraid of him. It’s heartbreaking until Gifford asks, “How’s my walking?”, and Henry responds with an over-exaggerated, “Terrible!”
In “Extra Dosage: Fundraising is a Family Affair”, listeners have the opportunity to meet Gifford’s extended family in Pickerington, Ohio. His nephew, Anthony Kerman, 32, is an avid runner who organized a 5K walk/run called “Tremor Trot”. The race raised $8,000 for The Michael J. Fox Foundation for Parkinson’s Research. Gifford’s family is supportive but worried. Gifford’s mother tells him that she thinks he’s doing too much and she’s worried that he’s never at home with his family.
Gifford’s show is educational too. In the “Extra Dosage” episodes, the podcast highlights a series of free events called “Parkinson’s IQ + You” from The Michael J. Fox Foundation. Gifford will be travelling around the United States to host these events in the coming months.
In “Extra Dosage: Dyskinesia”, the listener learns about dyskinesia. Dyskinesia is uncontrolled, involuntary movements that occur as a reaction to the long-term drug, levodopa. Fellow Parkinson’s patients Jim Smerdon and Becca Miller join Gifford to talk about their experiences with dyskinesia. It’s interesting and informative, but when it’s not relatable to the listener, it’s not as engaging.
The podcast doesn’t advertise products, but there are presenting partners. Parkinson Canada, Spotlight YOPD, and the Michael J. Fox Foundation for Parkinson’s Research Parkinson’s IQ + You are organizations and events concerned with Parkinson’s disease, and a great match for the target audience. Judging by the reviews, a lot of Gifford’s listeners are people who have Parkinson’s disease and their loved ones.
Gifford and his family have opened up their lives to their listeners. Using humour to diffuse heavy content, Gifford keeps the tone of the podcast positive and light. When Life Gives You Parkinson’s is engaging and relatable, especially when it is about Gifford’s family. In the moments where the podcast becomes more educational, it can sometimes start to lose its audience. All in all, When Life Gives You Parkinson’s is an inspiring and honest podcast which invites the listener to share the experience of living with a family member who has Parkinson’s disease.
Issues with editing
There appears to be an issue with the editing on the latest episode of when life gives you Parkinson’s. A lot of overlapping with questions and answers. This has unfortunately detracted from the very important content covered on this episode
Amazing information
I was a caregiver of a common law partner who has Parkinson’s . We are no longer living together, as the disease took over and we had no choice but to move him into a care home.
I wish I had known of this podcast while I was living thru his and my journey with Parkinson’s
Very informative, can’t believe how much the story is very similar to my life.
Thank you very much for this podcast, I greatly appreciate it!!
Palmarès des balados : Health & Fitness
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