The Starry-Eyed Podcast

Williams Syndrome Association
The Starry-Eyed Podcast

Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

  1. 17 DEC

    Ep 47 - Manaakiao with Paola Martínez Vélez and Li'l Henry

    The holidays are upon us and we are celebrating with a time traveler (no, not the Ghost of Christmas Future). Henry Stilwell (a.k.a. Li'l Henry) joins the pod from New Zealand to talk about the summer, his TV show, and his future aspirations. Then we welcome Paola Martínez Vélez from sunny Miami to discuss her journey with WS, advocating within the Latino and Hispanic communities, and her wonderful online store Pabea.

    58 min

  2. 3 DEC

    Ep 46 - The Giving Season with Bethany Walton and the Gang

    Today the pod welcomes WSA Director of Operations Bethany Walton to talk about gift giving WSA-style! She discusses the new WSA Vendor Network, as well as highlighting store items in the WSA Store and at Outshine Labels. First, Producer Joel joins Jen and Brendan to talk about the NFL's My Cause My Cleats campaign, signature beers, and all sorts of other December wonderfulness! If you'd like to see businesses that support the WSA and the WS community, go to www.williams-syndrome.org/vendor-gift. If you'd or your business would like to join the Vendor Network, fill out this questionnaire: https://form.jotform.com/242916661313152

    38 min

  3. 19 NOV

    Ep 45 - Loréal Lips and Dual Diagnosis with Anja Kaneski and Drs Elizabeth Barnhardt and Rebecca Lyren

    On this episode, Jen and Brendan welcome Anja Kaneski who lives on her own in a group home and holds down a job in Brainerd, MN! She shares how the sudden, exciting changes in her life also bring about anxiety and stress, and the techniques she relies on to even out. Then we explore the complex world of those who have a diagnosis of Williams syndrome and Autism. Dr. Elizabeth Barnhardt and Dr. Becca Lyren, who recently spoke on this subject at the 2024 WSA Convention, join to explain the diagnosis, answer questions, and give some guidance if you suspect your love one may have a dual diagnosis. Don't forget, if you'd like to be a guest on the podcast, go to https://wkf.ms/3C2Ghvd and fill out the form.

    1h 17m

  4. 5 NOV

    Ep 44 - Dancing Through Life with Rebekah and Ellie Stewart

    Today on the pod, we welcome from the great state of Iowa's Rebekah Stewart who had a up close view of her daughter Ellie's (13 WS) journey with the University of Iowa Dance Team through the Women's NCAA Basketball finals. Thanks to Team Impact (teamimpact.org) for helping Ellie get this amazing, once-in-a-lifetime opportunity! Jen, Brendan, Rebekah, Ellie, and eventually the whole Stewart fam take a wonderful scenic route telling stories and sharing experiences in what we hope will be a comforting listen on an otherwise chaotic day. If you are interested in being a guest on the podcast, please go to Williams-syndrome.org/podcast and click on the interview request form! Croutons & Hearts!

    48 min

  5. 22 OCT

    Ep 43 - Fight for Your Rights with Delaney O'Connell and Chad Wilson

    Today's show exercises our civic duty as Jen and Brendan are joined by Delaney O'Connell, who is featured in the documentary Patrice, about a couple trying to fight the system that won't let them marry. On this show, we get to hear Delaney's story and how important self-advocacy is to her. Then we are joined by Chad Wilson from the Minnesota Disability Law Center to talk about how to make sure your voice is heard at the ballot box. Whether it's transportation issues or understanding what is on the ballot, Chad shares some resources and tips on how to make your voting experience successful. For more voting resources, go to https://www.williams-syndrome.org/resources/voting-resources

    51 min

  6. 8 OCT

    Ep 42 - Old Friends/New Challenges with Seth Link and Lisa Elm

    Croutons and Hearts, my friends! This episode, Brendan introduces us to one of his longest and best friends: Seth Link. Seth tells us all about balancing the stress of his job with the rest of his life and how important the connection between friends is to him.  Then we are joined by Lisa Elm who manages PACER's National Bullying Prevention Center. We also get into the huge part she's played in the creation of The Girl Who Cried Different by previous guests Tommy Barbarella and Mariella Elm (spoiler: she's Mariella's mom). I say we, because Producer Joel pops in when Jen has some heat related internet issues. But hey! That's the way the cookie crumbles. Like and subscribe and leave us a review here or on the video version on YouTube!

    1h 10m

  7. 24 SEPT

    Ep 41 - Staying Busy with Leo Ryan

    After plotting a mob-like takeover of jobs at Disney, Jen and Brendan are joined by Leo Ryan! He took brief break from doing seemingly everything to chat about working, volunteering, and giving back to the younger members of the WS community. You can look for him probably zooming from activity to activity on the WSA Adventure Seekers cruise next summer! Reach out to us at podcast@williams-syndrome.org for information about anything you heard on the show or to let us know you want to be interviewed!

    38 min

  8. 10 SEPT

    Ep 40 - Back to It with Joelle Packard and Robin Pegg

    It feels like an eon since we did a "regular" podcast, but here we are! Brendan is sandwiched between Producer Joel and Joelle Packard - who tells us all about her experience in college. Back-to-School continues with Robin Pegg joining Jen and Brendan to really get into the nuts and bolts of how students with Williams syndrome learn. The materials Robin references are found here: https://www.williams-syndrome.org/featured-education-resources

    1h 16m
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About

Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

Information

  • Creator
    Williams Syndrome Association
  • Years Active
    2023 - 2024
  • Episodes
    50
  • Rating
    Clean
  • Copyright
    © Copyright 2023 All rights reserved.
  • Show Website
    The Starry-Eyed Podcast

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