36 分鐘

Episode 24 with Liz Carter HC&U

    • 健康與體能

In the twenty fourth episode of HC&U, we interview Liz Carter, communications manager of HCU Network America, caregiver advocate, and mother to Elliot who has classical homocystinuria.
We discuss metabolic newborn screening, patient advocacy, and Rare Disease Week.
We wrap up with Lindsey’s Low-Pro Bites. We discuss “healthy tomato basil soup” and rate it on our random fruit or veggie scale! We hope you enjoy!
Please share the podcast and give us a 5 star rating and review!
Check out HCU Network America!
HC&U on Facebook
Find Our Low Protein Ideas on Instagram!
HC&U on Twitter
Email the podcast!
HCU Network America on Twitter
Elliot's Story
Newborn Screening Petition
Everylife Foundation for Rare Diseases
Rare Disease Legislative Advocates (RDLA)
Expecting Health
VMP Genetics- Sign up to become a patient/teacher
What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know!
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the twenty fourth episode of HC&U, we interview Liz Carter, communications manager of HCU Network America, caregiver advocate, and mother to Elliot who has classical homocystinuria.
We discuss metabolic newborn screening, patient advocacy, and Rare Disease Week.
We wrap up with Lindsey’s Low-Pro Bites. We discuss “healthy tomato basil soup” and rate it on our random fruit or veggie scale! We hope you enjoy!
Please share the podcast and give us a 5 star rating and review!
Check out HCU Network America!
HC&U on Facebook
Find Our Low Protein Ideas on Instagram!
HC&U on Twitter
Email the podcast!
HCU Network America on Twitter
Elliot's Story
Newborn Screening Petition
Everylife Foundation for Rare Diseases
Rare Disease Legislative Advocates (RDLA)
Expecting Health
VMP Genetics- Sign up to become a patient/teacher
What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know!
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

36 分鐘

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