Everyday People Talking Health Silent Elephant Project

Funke shares experiences of her first Sickle Cell Crisis (SCC) and the importance of support systems. We talk about what living with Sickle Cell means, managing the disease, and working in film & creative industry. 

More info about Funke Alafiatayo's works & projects at linktr.ee/funkstar13



Credits: 


Podcast Editor - Owen Thornton



We hope you enjoy this episode 😃



Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic or via email-  admin@silentelephantproject.org



What is SEP?Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.For more info - https://www.freshrb.com/silentelephantproject


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Support this podcast: https://podcasters.spotify.com/pod/show/silent-elephant-project/support

Katie is a founder of Starling CIO - a charity offering support and opportunities to young people with Neurodiversity. A great advocator for neurodiverse individuals, Katie shares what it’s like to live with CPTSD and how her experiences influenced her management tools. We talked about impact of long-term health conditions, Autism, ADHD, Dyslexia and finding support that works for you as an individual.



CPTSD (complex post-traumatic stress disorder) is a condition where you experience some symptoms of PTSD along with some additional symptoms, such as: difficulty controlling your emotions.[Mind.org.uk]



Links and more info:


Starling CIO
WHO

Credits: 


Podcast Editor - Kate Mardon



We hope you enjoy this episode 😃



Have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic & @Emp_Health and also stay in touch via email-  admin@silentelephantproject.org



What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.

For more info - https://www.freshrb.com/silentelephantproject


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Send in a voice message: https://podcasters.spotify.com/pod/show/silent-elephant-project/message
Support this podcast: https://podcasters.spotify.com/pod/show/silent-elephant-project/support

Anna Savory is a creative, writer, comic, and business programme lead at the British Library. She was diagnosed with ME/CFS after battling with the effects of Covid-19 vaccine jab. Anna shed light on her diagnosis journey, support systems and her inspirations in implementing change for individuals with disabilities.

Over 250,000 people in England and Wales with ME/CFS, with about 2.4 times as many women affected as men. [nice.org.uk]



In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists on their experiences treating this condition.



Links and more info:


Socials @annasavory
Vaccine injury support group
ME association
Action for ME
#ME Action
Article on rare link - https://www.science.org/content/article/rare-link-between-coronavirus-vaccines-and-long-covid-illness-starts-gain-acceptance

We hope you enjoy this episode 😃



Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic and @Emp_Health or stay in touch via email-  admin@silentelephantproject.org



What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.For more info - https://www.freshrb.com/silentelephantproject


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Send in a voice message: https://podcasters.spotify.com/pod/show/silent-elephant-project/message
Support this podcast: https://podcasters.spotify.com/pod/show/silent-elephant-project/support

Rosie has struggled with Chronic Migraines from her teenage years. She uses her lived experiences of health to champion for others living with disabilities. She hopes to make arts and galleries accessible whilst raising awareness of health through her creative works. 

Chronic migraine is a debilitating and disabling condition that affects around 2 in 100 people [TheMigrainTrust]



Connect and check out Rosie's works:


Instagram @_ _ rosie.art
‘Self, sense, space’ - collaborative creative project.
The Advent Project - bookbinding tutorial.



More info:


The Migraine Trust
The Sunflower Lanyard Scheme



We hope you enjoy this episode 😃



Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic and @Emp_Health or stay in touch via email-  admin@silentelephantproject.org



What is SEP?
Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.
For more info - https://www.freshrb.com/silentelephantproject


---

Send in a voice message: https://podcasters.spotify.com/pod/show/silent-elephant-project/message
Support this podcast: https://podcasters.spotify.com/pod/show/silent-elephant-project/support

Kondwani reflects on impact of the winter season whilst coping with ME/CFS and fibromyalgia symptoms. He also shares a few thoughts from others with similar experiences.



In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists/charities on their experiences dealing with this condition.

Links to access support::


ME association
Action for ME
#ME Action

We hope you enjoy this episode 😃



Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic or @Emp_Health or stay in touch via email-  admin@silentelephantproject.org



What is SEP?Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.For more info - https://www.freshrb.com/silentelephantproject


---

Send in a voice message: https://podcasters.spotify.com/pod/show/silent-elephant-project/message
Support this podcast: https://podcasters.spotify.com/pod/show/silent-elephant-project/support

Amazing how time flies, filled with experiences and new connections with people we meet on our journey of life. As we wind down closing the year in this festive season, I hope I’m not alone in recounting events and milestones over the past months. At this moment being in a reflective mode stands out for me.

Guests featured in these conversations have different experiences of health conditions, and yet their shared stories are filled with wisdom for anyone at any point in life to take inspiration.

Links to full podcast conversations:


Kelvin - Sickle Cell 
Faith - Alopecia
Letitia - Multiple Sclerosis (MS)
Ellen - Arthrogryposis (AMC)
Anna - Breast Cancer
Dave - Dyslexia & ADHD
Russell - ME Association (Russell’s personal story)
Sonya - Action for ME

Links to ME/CFS charities:


ME association
Action for ME



We hope you enjoy this episode 😃



Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic or @Emp_Health or stay in touch via email-  admin@silentelephantproject.org



What is SEP?
Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.
For more info - https://www.freshrb.com/silentelephantproject


---

Send in a voice message: https://podcasters.spotify.com/pod/show/silent-elephant-project/message
Support this podcast: https://podcasters.spotify.com/pod/show/silent-elephant-project/support