Axiom Catalyst Axiom Healthcare Strategies

Severe care disparities, barriers to diagnosis, harrowing patient stories, historically low survival… and yet… enduring hope for women worldwide.While significant progress has been made to address needs of women with gynecologic cancers, and the last 12 month have seen huge strides in advancing standards of care, key challenges remain including the inclusivity of clinical studies, asymmetric engagement and awareness across communities, and limited ability to tailor therapies, especially in later lines as care options dry up.In this this Gynecologic Cancer Awareness Month special episode of Axiom Catalyst, Dan Simpson, Carlie Darefsky, Harish Venkatesan and Flannery Nania talk through the challenges and hope for patients, as we look to the healthcare industry to raise the bar on health standards.This short podcast complements the specific infographics the Axiom team developed to highlight specific needs and challenges in cervical, ovarian and endometrial cancers respectively.









Let’s keep raising awareness and saving lives! 🌸💪

 

#CervicalCancer #OverianCancer #EndometrialCancer #HealthcareAdvocacy #TogetherAgainstCancer #GynecologicCancer #GynAwarenessMonth2023 #AxiomThinkTank 

 

Dr. Han Phan is a member of the Pediatric Advisory Board at the FDA, and the Director of Rare Disease Research center. She joins the Axiom Table with Akash Bhattacharjee. This discussion goes though her experience with diagnosing and treating Duchenne patients, challenges faced by manufacturers in this space, and one of the most eagerly anticipated news of the year in Pharma. 

May is ALS Awareness Month and this year Axiom is marking it with a dedicated podcast to help raise awareness about amyotrophic lateral sclerosis (ALS) also known as motor neuron disease. ALS is fatal with the average life expectancy after diagnosis being two to five years, although some patients may live for years or decades. There is still no known cure for ALS and current treatment options primarily target symptoms to improve quality of life, rather than stopping the disease progression.

In this episode of Axiom Catalyst, Anna Graca is speaking with Dr Tim Williams from the Newcastle MND Care and Research Centre about how this devastating disease affects each individual differently and tremendous efforts of treating physicians and care coordinators to provide a personalised support to these patients and their families. 

There are~ 30 million people in Europe alone living with a rare condition, of which 75% have neurological symptoms. While significant progress has been made to address needs of these patients, key challenges remain including the scarcity of the expertise and fragmentation of research efforts that translate into delayed diagnosis, few disease modifying therapies, and difficulty in accessing adequate care.

In this episode of Axiom Catalyst, we invited Frédéric Destrebecq, the Executive Director of the European Brain Foundation and European Brain Council to discuss how coordinated efforts between patient organisations, research and clinical networks, drug innovators and policy makers, can tackle these challenges and reduce the high burden posed by rare neurological disorders in Europe and beyond.

While significant therapeutic advances are underway for inherited blood disorders such as sickle cell disease, hemophilia and β-thalassemia, key challenges remain for the commercialization of these therapies, as well as disparities in access to these treatments and level of care received by patients.

In this episode of Axiom Catalyst, we invited John James, CEO of Sickle Cell Society to discuss the impact of sickle celldisease on day-to-day lives of patients living in the UK, as well as current challenges in their clinical journey. We also explore the outreach work done by the Sickle Cell Society including key local initiatives such as the Hackney engagement project, and the translatory impact of their patient support work.

Join Nicole, Kiana, and Madelyn's discussion on updates seen at ASCO GU 2023. We analyze some of the most anticipated read outs in RCC, bladder, and prostate cancers and consider what this data means for physicians and patients.