Coffee With Caregivers

Jessica E Ronne
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Coffee With Caregivers Podcast

Join Jess Ronne, author, speaker, and caregiver advocate as she chats with caregivers about the joys and trials of raising a child with complex needs. Jess is also the founder & executive director of The Lucas Project, a non-profit which provides recognition, resources, & respite for special needs families & associate director of the Unseen film. She & her husband Ryan live in Michigan with their 8 children, including their disabled son Lucas. Her story of beauty from ashes is detailed in her three books. To follow the ongoing saga she can be found at www.jessplusthemess.com

  1. 31 MAY

    Jason Hague: Spellers, Faith, and Surrender

    Jason Hague is an associate pastor of Christ’s Center Church, a mid-size church in Oregon, one of the least churched areas in the United States. He is a husband and a father to five children, including Jack, his seventeen-year-old son with non-verbal autism. Jason has written extensively on the subject of faith and autism, special needs families, and his own journey from grief to acceptance of his son’s condition. He blogs at JasonHague.com, and on his Facebook page, Jason Hague, writer. The success of his blog and the viral video he posted there, A Reflection of Aching Joy, led to his first book with NavPress in 2018. Aching Joy: Following God through the Land of Unanswered Prayer was warmly received by church and special needs communities. The book won a Cascade Award for best memoir in 2019. Jason has been a guest on numerous podcasts and radio shows such as Focus on the Family, and his writing has appeared in Christianity Today, Ann Voskamp, Fathom Magazine, and Finding Cooper’s Voice.  To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.

    37 min

  2. 26 APR

    Crystal Polk: Adoption, Time Saving Tips, and Support

    Crystal Polk is a mental health therapist and Licensed Independent Social Worker in South Carolina, specializing in supporting parents of children with disabilities and medical needs through her practice, Better Tomorrow Therapy. Featured in the film "Unseen," Crystal's impactful work has gained recognition. While she may describe herself as a "nervous interviewee," Crystal thrives in her role on the other side of the chair as a therapist, where her passion for providing crucial support shines through. Her dedication to making a meaningful impact on mental health, sharing expertise, and contributing to the well-being of families facing unique circumstances is evident in her love for being a therapist. Beyond her clinical practice, Crystal actively contributes to professional development by conducting training sessions at institutions like the Medical University of South Carolina (MUSC) and the National Association of Social Workers (NASW), underscoring her commitment to knowledge-sharing in the mental health community.   To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.

    37 min

  3. 29 MAR

    Debbie Weiss: Lifelong Caregiving, Grieving, and Overcoming Obstacles

    Debbie, at 50, woke up to the realization that life was too short to be spent prioritizing others over herself. She ditched "I can't" for "Maybe I can," shedding her victim mentality and refusing to let struggles define her. Recently widowed, she's more determined than ever to share her message. Her debut memoir, "On Second Thought... Maybe I Can," earned praise from Jack Canfield, co-author of The Chicken Soup of the Soul® series. Through her memoir and engaging talks, Debbie courageously bares her soul, reminding others they're not alone. Life is tough, but she's proof that dreams are worth pursuing. You can follow Debbie at: Tiktok: https://www.tiktok.com/@debbierweiss Instagram: https://www.instagram.com/debbie.r.weiss/ Facebook Group: https://www.facebook.com/groups/maybeican Facebook Page: https://www.facebook.com/debbierweissauthor Podcast: https://podcasts.apple.com/ca/podcast/maybe-i-can-with-debbie-weiss/id1676123222 Website: www.debbierweiss.com Email: debbie@debbierweiss.com To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.

    39 min

  4. 24 FEB

    Jessica Patay: Special Needs, Community, and Making A Difference

    Jessica Patay is the founder and executive director of We Are Brave Together (WABT), a 501(c)3 nonprofit organization that supports caregiving moms with children of all types of disabilities and neuro-diverse diagnoses. In addition, she is a sought-out speaker, podcast guest, writer and retreat coordinator, fundraiser, mother of three, social influencer, and a champion of self-care practices and their positive effect on motherhood. She is a contributing author to the forthcoming title, Becoming Brave Together: Heroic and Extraordinary Caregiving Stories from Mothers Hidden in Plain Sight. The book is set to release on May 1, 2024. Jessica excels at creating and supporting communities of caregiving moms and she is a visionary for the disability community world-wide. Jessica's mission to combat the isolation and burnout that these moms and their families face by creating supportive, resourceful and empowering communities and meaningful connections. Her vision is that every family in the disability community is strengthened, equipped, and inspired for their unique journey. This vision has fueled WABT's growth in 6 years into an international community of over 2200 moms, representing all 50 states and 24 countries. Jessica has helped launch dozens of support groups throughout the U.S., New Zealand, and Australia. In order to extend her outreach, Jessica hosts a podcast, "Brave Together with Jessica Patay," which offers a library of inspirational stories and resources for the disability community. To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.

    43 min

  5. 27 JAN

    Robert Freiri: Future Options, Pressing Issues, and Never Giving Up on our Children

    Robert Freiri has been the Executive Director of Gateway Center of Monterey County since February 2020. Robert has been a nonprofit Executive Director for 25 years including seven years as a Habitat for Humanity Executive Director and a Nonprofit Manager for 35 years. He has also been a Non-Public School Principal. He has been involved in many community boards and committees including the Nonprofit Alliance of Monterey County (NAMC), Monterey Peninsula Chamber of Commerce, Loma Prieta Community Foundation, Loma Prieta School Oversight Committee, and the Role Model Program. Robert was a member of Leadership Monterey County Class of 2022 and Leadership San Benito County Class of 2010. Robert is currently a member of the Monterey Rotary and was the Hollister Rotary Club President in 2014. Robert has also served in other Rotary capacities: Foundation Chair, Community Service Chair, World Service Chair and Scholarship Committee. “The Rotary motto, 'Service Above Self,’ is not just a motto for me, it’s a way of life.” His wife of 34 years, Bridget works for the Loma Prieta School District, daughter Christiana, who has severe Dyslexia and struggled with school until high school is an Assistant Principal in charge of Special Education at a Charter School in Walnut Creek, and his son Nicholas, who has Dyspraxia, was told by a Doctor at the age of eight, not to play sports, not only was he on Championship teams in baseball and football, he does Sports Analytics for the University of California Berkeley Athletics Department. To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.

    38 min

  6. 09/12/2023

    Brandi Hurtubise: CMV Mama, Divide & Conquer, and Finding Purpose in Caregiving

    Brandi Hurtubise is a full-time caregiver to her daughter Samantha who was born in 2016 with Congenital Cytomeglovirus. As a result Samantha has spastic quad cerebral palsy, epilepsy, hearing loss, cortical vision impairment and microcephaly. She is non-mobile, non-verbal, and receives the majority of her schooling and services in their home in Buffalo, NY. Brandi is also a Mom to Sam's older and neurotypical brother MJ.  Congenital Cytomeglovirus (CMV) is the most common viral infection infants in the US are born with and unfortunately there is very little awareness despite how devastating outcomes can be. CMV during pregnancy can be avoided by not sharing food and drinks with toddlers, avoiding kissing toddlers on the mouth, and washing your hands after every diaper change.  Prior to Sam's birth in 2016, she worked full -time in insurance. She left the workforce after Sam had a G-Tube placed in 2018. Over the last few years, she has worked with the National CMV Foundation; fundraising and raising awareness for CMV.  She also recently started to work with a wonderful group of individuals in Western NY to open up a non-profit organization that provides adapted bikes to individuals with disabilities ( Trendy Trikes / AMBUCS of WNY). To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.

    34 min

  7. 18/11/2023

    Eric Jorgensen: Searching for Hope in a Difficult Reality

    Eric Jorgensen is the Founder of True North Disability Planning, a national consulting company helping families, individuals and professionals navigate the maze of disability benefits, resources, and services. He has been helping his clients find answers since his retirement from the Navy in 2012. He was widowed the same year he retired. At the time, his 12 y/o autistic son, William, was completely dependent on his wife for everything. His frustration with the difficulty of figuring out what to do and navigating services for his son led him to start Special Needs Navigator. Eric created a new category, Disability Planning. He specializes in helping clients identify what they do not know and providing clarity by connecting the dots. He works with people and companies around the country, developing individualized solutions best suited to their circumstances. In addition to working with clients one on one; True North Disability Planning has a Substack (Waypoints), YouTube channel, and Podcast (ABCs of Disability Planning). Eric uses Waypoints as a way to share his thoughts as a parent and a professional. The podcast and YouTube channel focus on benefits, resources, and services people may not know of or want to learn more about, or Eric thinks he can give additional perspective. You can follow Eric on social media at: Facebook: @SpecialNeedsNavigator Twitter: @NeedsNavigator YouTube: Special Needs Navigator Podcast: “ABC’s of Disability Planning” To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by Meerkat Village. It takes a village to raise a child with special needs. Find out more at www.meerkatvillage.com.

    40 min

  8. 04/11/2023

    Eric Alber: Flexible income options, feeling your feelings, and the new normal.

    Eric is a proud father to five daughters one of which has profound special needs. He is multi-passionate and involved in IV Vitamin infusions in Las Vegas while building a network marketing business in the health and well-being space. He is also the host of the “I Am Awesome” podcast. He finds joy in physical fitness, nutrition, outdoor activities, sports, biohacking, and getting to the root cause of disease. A follower of Christ, his faith underpins his purpose and he aspires to be a speaker and author.  Eric and his beautiful bride, Michelle, will be celebrating their 27th year of marriage in the winter of 2023. Their story is a testament to enduring love and resilience. To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to info@thelucasproject.org. We'd love to hear what you think, so please rate and review! This episode is sponsored by Meerkat Village. It takes a village to raise a child with special needs. Find out more at www.meerkatvillage.com

    47 min
See All (58)

About

Join Jess Ronne, author, speaker, and caregiver advocate as she chats with caregivers about the joys and trials of raising a child with complex needs. Jess is also the founder & executive director of The Lucas Project, a non-profit which provides recognition, resources, & respite for special needs families & associate director of the Unseen film. She & her husband Ryan live in Michigan with their 8 children, including their disabled son Lucas. Her story of beauty from ashes is detailed in her three books. To follow the ongoing saga she can be found at www.jessplusthemess.com

Information

  • Creator
    Jessica E Ronne
  • Years Active
    2020 - 2024
  • Episodes
    58
  • Rating
    Clean
  • Copyright
    © Jessica E Ronne
  • Show Website
    Coffee With Caregivers

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