5 episodes
Steps Charity Worldwide Steps Charity Worldwide
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- Health & Fitness
Every day thousands of children are affected by a serious lower limb condition. These leg conditions vary in their symptoms, frequency and prognosis. But without the correct diagnosis, treatment and support, it would be impossible for any of these children to walk properly later in life. We have created a model of true local sustainability. We partner with health national systems and communities around the world not only to raise the medical standards, care and emotional support – but to establish them! The support we provide is elevating the standards of care around the world, giving a chance to everybody to walk without pain. As we like to say here at Steps, we don’t take walking for granted. One of the most basic support people need, when diagnosed with a lower limb condition, is to be able to talk to someone about their concerns. This is the reason why thousands of families and adults contact our Helpline every year. However, we recognise that many people would prefer to listen to another person or family that has been or is going through the same treatment in their own time and at their own paste. The Steps Podcasts have been created with this in mind. For you to hear how families and individuals have approached their lower limb condition, how it has or is still impacting them and how they overcame some key challenges. These podcasts are not meant to provide you with condition-specific information or practical guidance but they are intended to provide you with an opportunity to listen to other families and adults who are or have gone through the same as you to lessen your feelings of isolation. If you wish to speak to one of our Helpline advisors or require condition-specific information please call us on +44 1925 750271 or email info@steps-charity.org.uk
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Let's talk about DDH as a child and into adulthood: Jill's story
In this episode, we talk to Jill, a marketing consultant by trade who loves to swim, sing in two choirs and walk. Jill was born in Sheffield in 1971 with Developmental Dysplasia of the Hips (DDH). Jill's DDH journey was challenging from the very beginning. The ball at the top of her left hip was little more than a pin-head and the socket was just plain missing. Her knees and ankles were also impacted. Jill received her treatment at the Sheffield Hospital, one of the leading pe...
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Let's talk about PFFD: Matt and Gwen's story
In this episode we talk to Matt and Gwen. Matt, although originally from the UK, currently lives in Malta and is the proud father of Gwen.Gwen is an inspirational Gozitan girl who loves dancing, reading, eating pizza and playing with her brother William. Gwen was diagnosed at birth with Proximal Femoral Focal Deficiency. It sounds very complicated but when you look at each word individually it is actually a very good description of the condition.Proximal – nearest the point of attachmen...
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Let's talk about Perthes: Rob's story
In this episode we talk to Rob, an IT director of a company in London. Rob was diagnosed with Perthes Disease at the age of 14. He had experienced pains in previous years but it was always dismissed as 'growing pains', until the day he thought he walked into a hole. Only to discover that there was no hole and that sensation he experienced was due to his hip slipping. He was later diagnosed with a deformed hip due to Perthes Disease. Doctors told him that there was nothing they were ...
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Let's talk about DDH in adults: Natalie's story
In this episode we talk to Natalie, a dancer from the ages of 3 to 19 who was forced to rethink her career due to major pain on her hip. She was diagnosed with Developmental Dysplasia of the Hip (DDH) in adulthood and tells us about her challenging journey. DDH occurs when the ball-shaped part of the end of the thighbone and the socket do not fit correctly together. There are varying levels of hip dysplasia, from mild to severe.
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Let's talk about clubfoot: Cliona's story
In this episode, we talk to Cliona, an adult living with Congenital Talipes Equinovarus (CTEV), commonly known as 'Clubfoot' or ‘Talipes’. Cliona was born in Singapore with bilateral clubfoot. Born in the '70s, in a military base, she was diagnosed with the condition at birth. Unlike many others, who underwent medical procedures, her treatment as a baby consisted primarily of physio every six hours. Cliona is a breast cancer surgeon based in Manchester and professor of ...