Caring for Cleft Podcast transformingfaces

Will my child be supported and accepted in our family? At school? In the community? 
Beyond the immediate medical concerns of feeding and securing a safe and effective surgery, parents with a cleft-affected child worry about the long-term social, emotional and psychological implications of the condition. While progress has been made in some High-Income Countries (HICs), cleft psychosocial support isn’t often accessible in Low and Middle-Income Countries (LMICs).  
This podcast explores the role of psychosocial support within a Comprehensive Cleft Care approach. We speak with Dr. Nicola Stock, who highlights learning from the UK experience, and draw from Julieta Villca Guzman’s insights about integrating cleft psychosocial support in Cochabamba, Bolivia.  

Historically, cleft in Madagascar was treated by foreign volunteers via a fly-in-fly-out surgical model.  An infant with a cold during the “mission” dates may be excluded from surgery for a year or more! Clinique Santé Plus, in partnership with Transforming Faces and USA-based NGO Smile Train, has built the first CCC centre in Antsirabe, Madagascar and is working to inspire change nationally.
In this podcast, we discuss the first Comprehensive Cleft Care centre in Madagascar, the challenges the CCC team has faced in changing perceptions of local, ongoing care, and the hopes and dreams for cleft care in Madagascar.
 

COVID-19 has unleashed extraordinary disruption to the delivery of cleft care worldwide. In today’s episode, we explore how a diverse group of global cleft professionals is rallying toward seeing children and families receive the best care possible -- even amidst the ongoing pandemic. 
Matt Fell (Cleft Charity, UK), Karen Goldshmied (Smile Train, Chile), Jayanth BS (ABMSS, India) and Neeti Daftari (Circle of Cleft Professionals, Canada) offer a window into a novel experiment in sharing learning and seeking cleft care solutions during a global crisis.

Parent powered advocacy propels cleft care forward. In this episode we listen-in to the insights of three dedicated cleft professionals: Professor Youri Anastassov, Jana Angelova and Gareth Davies. 
 
Together, they are supporting a vision where families, cleft professionals, and NGOs work together to effect change. Their inspiring stories point to the transformation of a generation of cleft patients in Bulgaria. 

A shared experience for everyone with a cleft lip is standing out from their peers. Even after successful surgeries, a facial difference can remain.
In this episode, we welcome James Partridge (OBE) from the UK, Indian surgeon Dr. Manu Prasad, and Julieta Perondi from Argentina to discuss the difficulties of living with a facial anomaly, as well as strategies that support families in seeing their children thrive.
We note with sadness James Partridge's passing prior to the publication of this podcast.

Having a cleft can have a lasting impact. For our guests - Nang Ei Ei Phyu (Gift), Angelica Campos and Dr. Camila Caro - their unique cleft journeys drew them in to pursing careers in the cleft profession. Join Executive Director, Hugh Brewster, as we explore how the impact of cleft lip and palate at a young age has shaped the future of these inspiring comprehensive cleft care professionals.