Episode #9 Patient Centered View of Narcolepsy The White Noise Podcast

In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy. 
 
SHOW NOTES

Introduction of Guest: (5:00)
Matt’s Best Advice (11:00)
Matt’s Role in the sleep community (12:40)
Matt’s symptoms onset (15:00)
Matt’s additional symptoms (19:00)
Matt’s onset of cataplexy (23:00)
Cataplexy triggers (24:45)
Delayed diagnosis: (27:00)
Nightmares and sleep paralysis onset (31:30)
One more question about sleep paralysis (34:15)
Partial cataplexy (37:50)
Diagnosis and Management: (39:00)
Pitolisant (43:45)
Strategic Napping (44:15)
Bitter Pills (45:15)
AASM revised Guidelines (47:22)
Sodium Oxybate and Cataplexy (49:00)
Finding a sleep physician to manage narcolepsy (55:00)
Sleep apnea (60:30)
MSLT (62:15)
Treat Clinically (65:00)
4 pillars of management (66:00)
Patient request/feedback (68:00)
Academic vs private practice (71:30)

 
 
Links to articles and guidelines referenced in this episode are included 
Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.
Treatment of central disorders of hypersomnolence: an American Academy of Sleep Medicine clinical practice guideline