European Patients' Podcast: The Voice of Patients in Europe eupatientsforum

Claudia Louati, EPF Head of Plicy, is joining this episode of the EU Patients' Podcast to talk about the #Vote4Patients campaign and the future of patient involvement in health policies.

On today’s episode we welcome MEP Tomislav Sokol, who is supporting and endorsing our #Vote4Patients campaign and the Patient Organisations’ Manifesto. We’ll go through some highlights of his work on health during this mandate, the role patients organisations in the healthcare ecosystem, and the future of health in Europe, in the coming years.

The ⁠Organisation for Economic Co-operation and Development⁠ (OECD) is an international organisation with 38 member states that works to build better policies for better lives. Its goal is to shape policies that foster prosperity, equality, opportunity and well-being for all.

Health is an important area of work, and in close collaboration with policy makers, patients and healthcare professionals the OECD supports health system to become more people centred.

In this episode, we talk about the OECD's groundbreaking initiative: known as PaRIS - the Patient-Reported Indicator Surveys. Through PaRIS, countries collaborate to develop, standardise, and implement vital indicators that measure the outcomes and experiences that matter most to patients. A part of this initiative is the International Survey of People Living with Chronic Conditions, a pioneering effort to evaluate patient outcomes and experiences in primary care settings worldwide. PaRIS aims to bridge a crucial gap in primary healthcare by exploring various aspects, including access to care, quality of life, pain management, physical functioning, and psychological well-being.

Michael Van Den Berg is the project manager of the Paris initiative. Joining him is Candan Kendir, a health policy analyst at OECD.

In this episode of EPF's The EU Patients' Podcast, we talk about the PROPHET project.

In light of 900,000 people in the EU dying yearly due to being exposed to risk factors for chronic diseases that are largely preventable such as circulatory diseases, respiratory diseases, and various types of cancer, the idea of the project is to introduce a Personalised Prevention Roadmap for future healthcare.

The project consortium will do this by developing a Strategic Research Innovation Agenda, or what we call a SRIA. The SRIA will support the adoption of innovative, sustainable, and effective personalised programmes in the EU, which can prevent chronic diseases in the first place.

Learn more as we delve into the project's framework, ambitions, and mission with project coordinator Stefania Boccia.


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Joined by Claudia Louati, EPF's Head of Policy, we're unraveling the layers of the pharmaceutical legislation revision – a topic that not only shaped 2023 but continues to remain a high priority in the healthcare agenda of the new year.

Our guest in this episode of The EU Patients' Podcast is Vivian Leung, Antimicrobial Consumption Expert for the European Centre for Disease Prevention and Control (ECDC).

Vivian Leung works on the European Surveillance of Antimicrobial Consumption Network (ESAC-Net) and coordinates the surveillance of antibiotic consumption across EU/EEA countries. We met Vivian in the podcast last year as well to discuss the important topic of antimicrobial resistance.

In this episode, we delve once again into the topic of AMR as a global health priority, this time in light of 2023’s European Antibiotic Awareness Day.