Impacting care - the haemophilia podcast Novo Nordisk Haemophilia Foundation (NNHF)

Over the past 15 years, Denise Braendgaard, General Manager at the NNHF, has witnessed great progress in access to haemophilia care in countries where the NNHF has been supporting projects. She has also seen the growth in people and organisations she has worked with. In this episode she shares her experience and reflects on the importance of receiving constant feedback, listening to partners’ ideas, being inspired on ways to develop as an organisation to be more efficient and benefit more people.

Impacting Care podcast: Hear from our partners

In 2022 we have talked to people with haemophilia, healthcare professionals, members of patient organisations or expert volunteers, learning how they are impacting care in their country or region.
 


Listen to special episode presenting you with highlights from three guests’ episodes in a bitesize format.

After attending a scholarship programme in France, early in his career, Prof Saliou Diop realised that a lot had to be done to improve haemophilia care in his home country of Senegal.
Since then, he has been a key contributor to changing the landscape of haemophilia care in Africa over the past years, having co-authored more than 80 peer-reviewed articles, trained healthcare professionals from African countries and collaborated with numerous international experts, to share knowledge for the benefit of haemophilia and sickle cell patients. Hear from Prof Diop how haemophilia patients can benefit from an integrated management of blood disorders such as sick cell disease, in particular in regions where resources are limited.

Over a broad and distinguished career in the UK and more than a decade volunteering in Africa and Asia, Dr Kate Khair has become an important champion for haemophilia nurses. Dr Kate shares about her experience as a volunteer and articulates how nurses play a crucial role not only in delivering care but also educating, training and communicating, to ensure people with haemophilia and family members can benefit from a holistic approach.

Ms Wajiha Javaid has been working with the Haemophilia Foundation – Pakistan (HFP) since she was 16. She is currently Executive member of HFP and coordinator of the National Women’s group, which was officially formed in 2017. 
She shares her experience as a woman living with Von Willebrand disease and part of the core team at HFP which worked on developing the National Women’s group to provide a safe place for women to meet, exchange and learn from each other. She is proud to have seen a lot of girls empowered to blossom over the years.

When Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started. At the time, it was very difficult for her to find any source of information related to haemophilia. Novi has been instrumental in building the patients organisation, from a parents’ support group to a multi-sector organisation in 2005, when the Indonesian Hemophilia Society, formed by doctors, nurses, people with haemophilia and families was established and officially recognised by the Ministry of Health.