Diary of a Kidney Warrior Podcast Dee Moore
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- Health & Fitness
Living with kidney disease isn’t easy, join Kidney Warrior, Dee Moore, as she interviews guests and explores all aspects of Kidney Disease, Chronic Illnesses and Health.
If you are a Kidney Warrior or the family/friend of a Kidney Warrior who wants to learn more about Kidney Disease, Kidney Disease prevention and be encouraged and uplifted, this is the Podcast for you.
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Episode 108: Khiry's Kidney Warrior Story: Overcoming Adversity: A Young Warrior's Battle with Lupus & CKD
In this gripping episode of the Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Kyrie Rowe Hopkins, a brave 33-year-old warrior battling Lupus and Chronic Kidney Disease (CKD). Underlying the podcast's mission of sharing faith, knowledge, hope, and love, Kyrie transparently reveals his personal journey, elucidating the daunting diagnosis, the life-transforming path to dialysis, and the over joyous moment of receiving his first kidney transplant.
Targeted at individuals suffering from kidney disease and related chronic illnesses, as well as those seeking hope and encouragement, this episode beautifully delineates an extraordinary individual's story. From the unexpected onset of kidney deterioration to the generous lifesaving donation from his grandfather, every listener can seize an insightful piece from Kyrie’s inspiring narrative.
Kyrie also serves as a Lupus volunteer and vital peer support for Kidney Care UK's Young Adults Kidney Group, reflecting not only on his struggles with lupus and kidney disease but also on his triumphs. The stirring words from this resilient kidney warrior spotlight the invaluable power of family and friends, persistence in adversity, and relentless hope.
Experience an unbelievable journey brimming with challenges, survival, and the significance of open discussions on one's health status. This episode emphasises Kyrie's indomitable spirit and passion to lead a fulfilling life despite his health conditions, offering an inspiring prospect for those going through similar struggles.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing List to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode transcripts, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
Follow Khiry Rowe-Hopkins
Instagram: @ourjourneywithchronicillness
Twitter: @khiryhopkins
Our Journey With Chronic Illness / Adult-ish & Chronic Illness Podcast
https://open.spotify.com/show/4ke9CDLHZXticHFDIkR9ie?si=qAA3HTd9TqymNONhISTcrw
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
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Episode 107: Senet's Kidney Warrior Story: A Life-Changing Journey from Dialysis to Transplantation
In this riveting episode of the Diary of a Kidney Warrior Podcast, host Dee Moore invites kidney warrior, Senet Kassaye, to share her transformative journey - from unexpected kidney failure and dialysis to eventual kidney transplantation. Senet's vivid recounts of battling diabetes at a tender age, experiencing a sudden stage 5 kidney failure, and the ensuing life-altering decision to undergo dialysis offer valuable insights into the mental rigour required during such transformative periods.
Through a series of probing questions, Dee dives deep into Senet's narrative, elucidating the complexities of her decision-making process, particularly her choice against the fistula. Transitioning to a hopeful note, the conversation culminates with Senet narrating her joyous experience of kidney transplantation, providing a unique perspective and valuable advice for patients facing sudden kidney ailments and possible lifestyle adjustments.
Senet's story is one of survival and resilience. She details her anticipatory anxiety during the drive to the transplant hospital, the rejection of her pancreas transplant and the relief accompanying the acceptance of her new kidney. Discussing the immense physical pain resulting from organ rejection, she grimly recalls opting for a second surgery to remove her pancreas. That said, the successful compatibility of her new kidney re-echoes the monumental significance of a successful transplant, made more meaningful as it saved her from an exhaustive dialysis routine.
In a segment focused on patients' post-transplant needs, Senet shares some practical advice on maintaining the health of the new organ, staying adherent to the medication routine, and keeping a positive mindset. Particularly touching is Senet's appreciation for organ donors and their families, emphasising England's opt-out organ donation system, and encouraging those considering to opt-out to prioritise lives over fears.
This revealing episode concludes on a hopeful note, powerfully resonating the undying spirit of positivity and looking forward to better times despite significant health challenges. Thus, it delivers an inspiring journey of a brave Kidney Warrior, offering light to others embarking on a similar path - proving that there is hope and life after a kidney transplant.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing List to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
Follow Senet Kassaye
Instagram: @senethtxrealtor
Facebook: Senet K. Idriss
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
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Trailer: Valuing Your Feedback and Looking Ahead
Welcome back, Kidney Warriors and friends, Mi Amors! This is your host, Dee Moore, thrilled to announce the return of the Diary of a Kidney Warrior podcast with a fresh episode on Monday 8th of April. In the meantime, we're excited to guide you back to our beloved classic episodes.
As our esteemed listeners, you are the heartbeat of Diary of a Kidney Warrior podcast. We sincerely value your thoughts and impressions about our show. Therefore, we welcome you to take a moment and click the link in the description box to share your comments, feedback, and suggestions for future episode topics.
Furthermore, if you're itching to stay in the loop with all our updates, feel free to sign up for our free email mailing list. You can also get our free updates via WhatsApp - just click the links provided below.
Enjoy your bank holiday and until our next conversation, we encourage you to take care and choose to live!
Classic episodes:
Podbean
https://diaryofakidneywarrior.podbean.com/
Apple Podcasts
https://apple.co/3ElC04m
Spotify
https://open.spotify.com/show/4Z39vfqTkitEWN6USRHuLP?si=49vHn431R7mxVGbsSGQXhQ
YouTube
https://www.youtube.com/c/diaryofakidneywarrior
Kidney Care UK Podcast page
https://kidneycareuk.org/get-support/podcast/
Join the Diary of a Kidney Warrior Family Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!Click the link to join now!
https://diaryofakidneywarrior.getform.com/rjv47
Follow the Diary of a Kidney Warrior Podcast channel on WhatsApp to get new episode reminders, episode links and more!
Click the link to join now!
https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r
For Comments / Suggestions for future topics/ Feedback
https://diaryofakidneywarrior.getform.com/25mdw
Follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
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Episode 106: Emma's Kidney Warrior Story: The Realities of Peritoneal Dialysis
In this episode of Diary of a Kidney Warrior podcast, we feature the courageous experiences of young peritoneal dialysis patient, Emma Kearns. Emma shares her journey from her early kidney disease diagnosis through her life threatening battle with sepsis, kidney failure and ableist workspaces. The powerful story is not just about the trials and troubles, but also a narrative of resilience, courage, and determination.
Centring on Emma's life post-kidney failure, we delve into her return to Northern Ireland for a transplant. A detour that included leaving behind her life in Liverpool and fearing the catheter surgery while adapting to dialysis. The emotional roller coaster of chronic kidney disease (CKD), the misconceptions surrounding dialysis, the mental toll of being tied to a machine, and balancing a semblance of normalcy become crucial topics of discussion.
A further push into the narrative discusses the discomfort of 'drain pain', and the ever-present catheter, yet her relentless spirit and determination shine through. Emma's dedication to raise public awareness about kidney disease, fuelled by the TikTok community's support, is a key element spurring her to fight her health challenge with a brave face. Her resilience, strength, and optimism put on display for young individuals fighting similar battles.
The broader discussion about ableist mindsets, the lack of understanding, empathy for young CKD patients, and the central role social media plays in connecting kidney disease patients globally is also tackled. Join us in this heartfelt conversation that not only encapsulates the harsh reality of CKD but also the inherent spirit of survival, support, and hope.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Follow Emma Kearns
Instagram:
https://www.instagram.com/_thekidneychroniclesigsh=NGpidjU0bXgwb3dx
Tik Tok: https://www.tiktok.com/@_thekidneychronicles?_t=8klHphQ0ExU&_r=1
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Young Adult’s Kidney Group (YAKG)
https://www.kidneycareuk.org/get-support/young-adult-kidney-group-yakg/
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Episode 105: Fez's Kidney Warrior Story: Overcoming Extraordinary Odds Fez's Transplant Journey
In this intensely moving episode of "Diary of a Kidney Warrior Podcast," host Dee Moore gets an in-depth look at the living testament of perseverance and courage of Fez Awan. Born with Chronic Kidney Disease (CKD), Fez has faced enormous challenges across his life, including undergoing three kidney transplants and continuously proving his resilience in the face of adversity.
Fez vividly highlights his struggles with school, bullying, and managing a chronic disease from early childhood. His story stands as a beacon of hope for young people and parents navigating similar health challenges. He emphasises the importance of seeking support networks and maintaining mental health while grappling with chronic illnesses.
Despite hardships, Fez remains indefatigable, lending community service and advocating for renal patients. He chairs a patient-led renal network in Lancashire, England and continues to encourage others to stay positive and hopeful in their battles with CKD. To young CKD patients, his message is clear. Take things slow, gently educate oneself, and do not feel overwhelmed. Regular check-ups and preventative measures are crucial, and maintaining as healthy a lifestyle as possible is key.
Join us in this inspiring episode as Fez unravels his compelling life journey, filled with trials, setbacks, and triumphs. An undeniable testament to the strength of human spirit, Fez’s story serves as a beacon of hope for those in their darkest times.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Follow Fez Awan
Facebook - https://www.facebook.com/FezAwan
Twitter/X - @fezy
Linkedin - https://www.linkedin.com/in/fez-awan-682713240/
RPLAN Facebook - https://www.facebook.com/groups/472709257105906
RPLAN Insta - https://www.instagram.com/rplan_nw/
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Samaritans
Tel: 116 123 (freephone)
jo@samaritans.org
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
Suicide Prevention UK
For help and support,
available from 6 pm to midnight every day call 0800 689 5652
Childline
Tel: 0800 1111
childline.org.uk
Support for children and young people in the UK, including a free helpline and 1-2-1 online chats with counsellors.
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Episode 104: Introduction to Peritoneal Dialysis
Welcome to an insightful episode of Diary of a Kidney Warrior podcast where Kidney Warriors and Health Professionals share their experiences and knowledge about kidney disease. This episode, hosted by Dee Moore, a dedicated kidney health advocate and kidney warrior herself, features Dr. Lavanya Kamesh, a Consultant Nephrologist from Birmingham, England with a 15-year specialisation in Peritoneal Dialysis.
This episode dives deep into the nuances of Peritoneal Dialysis, dissecting how it operates and who it might suit. Dee Moore shares her personal experiences with peritoneal dialysis. Listeners are also offered an in-depth understanding of the contents and the significance of the peritoneal dialysis fluid.
Dr. Kamesh provides an expert perspective, emphasising the benefits of peritoneal dialysis, such as its ability to preserve a patient's independence. Additionally, the episode elaborates on the importance of informed decision-making and patient choice in determining the type of dialysis one chooses.
The episode also delves into challenges faced during peritoneal dialysis, such as infection risks and tube malfunctions, and the measures in place to minimise these risks. Another aspect discussed is the concept of 'self-care', emphasising the patient’s role in taking full ownership of their health. Everyday practicalities of peritoneal dialysis, like the types of bags used and storage of dialysis supplies, are also discussed.
The episode concludes on an optimistic note, providing practical advice and outlining how patients can benefit from peritoneal dialysis while managing its associated challenges. Tune in to learn, be inspired, and gain valuable insights.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Follow Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org