100 episodes

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

Down Syndrome Center Podcast Kishore Vellody, MD

    • Health & Fitness

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

    #180 - Sleep Questions!

    #180 - Sleep Questions!

    Dr. Lucy Lubinski is a Sleep Psychologist at Children's Hospital of Pittsburgh.  She joined the podcast today to discuss common sleep related issues in pediatrics and approaches to management.
    Pediatric Sleep Council
    https://www.babysleep.com
    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.
    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    • 22 min
    #179 - Exceptional Families of the Military

    #179 - Exceptional Families of the Military

    Rebecca Emerson and Austin Carrigg joined the podcast to talk about Exceptional Families of the Military, a 501 c(3) non-profit that helps families who are enrolled in the Department of Defense Exceptional Family Member Program.  They discussed what to do when a diagnosis of Down syndrome is received while in the military and available supports and resources available to those families.
    Exceptional Families of the Military
    https://exceptionalmilitaryfam.com/military-support-groups
    Down Syndrome Diagnosis Netword Military Families Group
    https://www.facebook.com/groups/2207125775996497
    Military OneSource
    https://www.militaryonesource.mil/resources/network/efmp-and-me/?gad_source=1&gclid=CjwKCAjwzN-vBhAkEiwAYiO7oJ1rmtUXAt60kSHXpITIbvxuDZlMsP1XGlrY0aU3d2riXvb6HQzNJRoC5-UQAvD_BwE
    Center for Parent Information and Resources
    https://www.parentcenterhub.org/find-your-center/
    Ketotic Hypoglycemia International Family Support Group
    https://www.facebook.com/groups/ketotichypoglycemiasupportgroup/
     
    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.
    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    • 25 min
    #178 - John's Crazy Socks!

    #178 - John's Crazy Socks!

    John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks.  Listen to the podcast to find out why their mission is about something so much greater than "just socks."  
    For more information about John's Crazy Socks (and to buy your own!), visit:
    https://johnscrazysocks.com
     
    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.
    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    • 28 min
    #177 - Weight Loss Medications and Surgeries

    #177 - Weight Loss Medications and Surgeries

    Dr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries.  They also give their thoughts specifically on these treatments/management strategies for people with Down syndrome.
    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.
    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.
     

    • 28 min
    #176 - Happy World Down Syndrome Day 2024!

    #176 - Happy World Down Syndrome Day 2024!

    NDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing.  He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them.

    • 26 min
    #175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa)

    #175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa)

    Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado.  He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune system can potentially be used in treatment of common disease conditions seen in people with Down syndrome.
    To learn more about the Human Trisome Project, visit:
    https://www.trisome.org
    To learn more about research trials in Down syndrome, visit:
    https://www.clinicaltrials.gov
     
    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.
    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    • 29 min

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