21 episodes

CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to info@cmtausa.org. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org

CMT 4 Me Chris and Elizabeth Ouellette

    • Society & Culture
    • 4.9 • 33 Ratings

CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to info@cmtausa.org. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org

    Embracing My CMT: Strategies For Building A Fulfilling Life

    Embracing My CMT: Strategies For Building A Fulfilling Life

    Happy New Year! Thank you for tuning into the first CMT 4 Me episode of 2023! We are excited to kick off the year by sharing the story of Maddie, a young woman in grad school at the University of Virginia who was diagnosed with Charcot-Marie-Tooth Disease at age 12. In this episode, Maddie shares:
    Insight into how she copes with CMT and deals with inner dialoguesTips for newly diagnosed individualsStrategies for introducing herself as a person with CMT to the worldThe importance of support systems in navigating life with CMTTune in to hear Maddie's inspiring journey and the valuable advice she offers to those living with CMT.

    New episodes featuring inspiring people from the CMT community drop every third Thursday of the month.

    Follow us on Socials!
    Instagram @CMT4Me
    Facebook https://www.facebook.com/profile.php?id=100087317297516

    Follow Maddie on Socials

    Facebook
    Instagram

    Please leave us a positive review on your favorite podcast platform! This really helps spread awareness about CMT!

    Our Official Website https://www.podpage.com/cmt4me/ Don’t forget to join our email list for updates!

    Visit the Charcot-Marie-Tooth Association official website www.cmtausa.org

    Join the CMTA Emotional Support group https://www.cmtausa.org/emotional-support-group/

    Read Liz O’s Blog https://bestfoot4wardblog.com/tag/elizabeth-ouellette/

    You can make a difference! Donate to the CMTA https://www.cmtausa.org/ways-to-give/imagine-whats-next/

    Have children with CMT? Check out Camp Footprint!  https://www.cmtausa.org/get-involved/camp-footprint/

    CMT 4 Me is Hosted by Chris Ouellette and Elizabeth Ouellette
    An iRonick Media Production 
    Released January 19th 2023
    For more information about CMT and to support the CMTA, please visit www.cmtausa.org

    • 44 min
    Psychotherapist David Tannenbaum: Secrets to Happiness Despite Chronic Illness or Pain

    Psychotherapist David Tannenbaum: Secrets to Happiness Despite Chronic Illness or Pain

    Do you try to ignore your CMT? Do you keep those feelings bottled up inside because you don’t have anyone with whom you can relate? Do you think no one will understand? Maybe you feel like it is nobody’s business but your own...
    Psychotherapist David Tannenbaum felt the same way until he connected with the CMTA community, where he found freedom, acceptance, and unconditional love. Attending CMTA-led support groups, branches, and patient conferences, David met many people from all walks of life and his apprehension and fears faded into the background.
    Today, David is an integral part of the CMTA, where he helps those with CMT find joy and fulfillment through mindfulness, meditation, and gratitude. Listen. Learn. Love.
    David has been practicing psychotherapy for over 30 years (http://davidtannenbaumtherapy.com). David also volunteers for CMTA where he sits on the Advisory Board, runs the online Emotional Support Group (https://www.cmtausa.org/emotional-support-group/), and writes the “Ask David” column in the quarterly CMTA Report.

    His areas of specialty are:

    ~ Finding meaning and purpose.
    ~ Stress-related issues, incorporating relaxation techniques into daily life.
    ~Developing the practice of mindfulness.
    ~Helping to live and thrive with a physical disability.
    ~Teaching to live in a more heart-centered way and experience a simple and profound intimacy that we all long for.
    ~Dealing with grief and loss and learning to find joy once again.
    ~Healthy aging.
    ~Understanding and exploring the particular concerns of the LGBT community.
    For more information about CMT and to support the CMTA, please visit www.cmtausa.org

    • 47 min
    CMTA's Groovin' Jonah Berger shares the Magic of Camp Footprint and much more

    CMTA's Groovin' Jonah Berger shares the Magic of Camp Footprint and much more

    An old soul with a big heart, Jonah Berger brings wisdom and youthful energy to every moment of every day. In this episode of CMT 4 Me, Jonah gets personal about his upbringing, family life, the Pickle Witch (yes, the Pickle Witch!), the CMTA's future leaders, and Camp Footprint – camp for kids with CMT. 
    Explaining the success of Camp Footprint, Jonah points out, "This one-week sleepaway camp for kids with CMT is truly unique. Every camper fits in, feels free to let their guard down, and is given space to be vulnerable, real, and relaxed without the fear of being judged or perceived as different. There is no doubt in my mind – Camp changes lives." 
    Jonah's spirit and uplifting energy are not only contagious but also motivating. His talent for storytelling and insightful personality will inspire you to move mountains.  
    Bio: Jonah has CMT 1X and joined the CMTA staff full-time in early 2020 as the National Youth Programs Manager and is thrilled to be serving the CMTA community by working to celebrate and engage the youth. Jonah has written two books: He Walks like a Cowboy: One Man's Journey Through Life With a Disability and The Strangest of Places, both available on Amazon for purchase. Jonah also has a website where you can find his He Walk Like a Cowboy podcast as well as his blog: 
     HeWalksLikeACowboy.com
    For more information about CMT and to support the CMTA, please visit www.cmtausa.org

    • 48 min
    80s are the New 40s! CMTA Leaders Beverly and Frank Wurzel are Unstoppable

    80s are the New 40s! CMTA Leaders Beverly and Frank Wurzel are Unstoppable

    The CMTA has evolved and grown exponentially over the past 20 years, and if you have not been around to witness the transformation, you need to listen to the voices of longtime CMTA volunteers and branch leaders Beverly and Frank Wurzel. 
    Beverly and Frank Wurzel have spent the past 20 years of their lives spreading CMT awareness and raising funds for CMTA STAR research. Their raw determination, motivation and never-say-never attitudes are not only commendable but also incredibly awe-inspiring.  
    As Beverly walks you through her time at CMTA, Frank keeps everyone on their toes and in stitches. Married for 65 years, these two longtime CMTA advocates truly care about the people they serve, so much so, they consider their fellow CMTA members as second family. Bev is a connector of people; Frank is a committed supporter. Together, they are leaving a legacy of love, philanthropy and caring.  
    For more information about CMT and to support the CMTA, please visit www.cmtausa.org

    • 42 min
    Support. Love. Family. with Julia and Herb Beron

    Support. Love. Family. with Julia and Herb Beron

    Julia and Herb Beron share a moving story of courage, resilience, and autonomy.  
    Julia's never known life without CMT. Having had falls, foot and knee surgeries, hearing loss, and a diagnosis of Type 1 diabetes, Julia, with her family's unconditional support, keeps moving forward with grace, independence, and self-confidence. Hear her story. Learn her secrets. Watch her future.  It's going to be amazing!
    Highlights
    Who is Sally and how did she give Julia so much freedom?The best day of her life – where's the cat?Julia gives dating advice. You are going to love it!Rachael's  Practicality + Herb's Emotional Intelligence = Julia's BrillianceIf you had one wish? You won't believe their answers.*Herb Beron is a member of the CMTA Board of Directors and a  long-time supporter of CMTA.
    *Julia Beron is a previous member of the Youth Council, Co-Illustrator of the book, Walk A Mile In My Braces, and Co-Leader of the CMTA COMPASS Group for Young Adults with CMT.
    For more information about CMT and to support the CMTA, please visit www.cmtausa.org

    • 1 hr
    Kicking CMT to the Curb - Your hosts, Chris and LizO: Dedicated to Riley Ashe

    Kicking CMT to the Curb - Your hosts, Chris and LizO: Dedicated to Riley Ashe

    Comin’ at you! What do you get when you mix chaotic creativity with organized comedy? You get the #1 CMT Podcast available today: CMT 4 Me. Despite being polar opposites, this brother-sister team brings it all together in an exciting and informative series focused on all aspects of CMT. Meet Chris and LizO Chris and Elizabeth Ouellette), dedicated siblings on a mission to magnify the voices of individuals with CMT, share their challenges and success stories, and raise awareness of Charcot-Marie-Tooth disease.
    Highlights
    As kids, they learned homelessness was not someone else’s problem.Giving back is so much more than pizza and donuts for Halloween.The incredible reasons why they Cycle 4 CMT.Out to kick CMT’s ass. No questions asked.Where it’s at: cycle4cmt.comFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

    • 47 min

Customer Reviews

4.9 out of 5
33 Ratings

33 Ratings

Frannon ,

Informative and Uplifting

Love this podcast- it is hard to find a resource for CMT that is both informative and uplifting. I’m learning quite a bit and most importantly to me, I’m feeling a lot less alone and more understood as a CMT patient:)

Barbara Steve ,

Love this show

SO fun to listen to on the way to work and really uplifting. Bri

Jennie Lyon ,

Wow! Such a great listen!

The episode on being happy despite chronic illness was so inspiring.

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