DD SIG: CSM 2022 Platform Award: Consultative Coaching Model for Long-Term Exercise Engagement in People with Huntington’s Disease- with Lori Quinn 4D: Deep Dive into Degenerative Diseases - ANPT

Description: In this episode, we highlight the winners of our platform award at CSM 2022. Lori Quinn talks to Chris Burke about her team’s research on long-term PT follow up to promote exercise in people with HD. They discuss findings related to feasibility, participant engagement, and outcomes related to function, disease progress and physical activity during the year-long study. They also discuss innovative models to provide care for and do research with people with HD, and unique challenges in the HD population. Whether you missed it at CSM or are looking for bonus clinical insights beyond the platform, this is definitely worth a listen! 







The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org  







Guest Information:  







Lori Quinn, PT, EdD 







Associate Professor of Movement Science & Kinesiology 







Teachers College, Columbia University 







Related Information/Links  







Huntington’s Disease Society of America (HDSA): https://hdsa.org/ 







European HD Network: http://www.ehdn.org/  







ENGAGE-HD workbook: http://www.ehdn.org/wp-content/uploads/2020/07/ENGAGE-HD-Physical-Activity-Workbook-v2-UK.pdf  







PT/Exercise Resources: http://www.ehdn.org/physiotherapy-wg/#physioresources  







Enroll-HD: https://www.enroll-hd.org/  







HD PRO-TRIAD: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3990832/ (Carlozzi NE, Victorson D, Sung V, et al. HD-PRO-TRIAD Validation: A Patient-reported Instrument for the Symptom Triad of Huntington's Disease. Tremor Other Hyperkinet Mov (N Y). 2014;4:223. Published 2014 Apr 14. doi:10.7916/D8PN93NZ) 







Unified Huntington’s Disease Rating Scale (UHDRS) https://www.sralab.org/rehabilitation-measures/unified-huntingtons-disease-rating-scale-uhdrs-tm