Diary of a Kidney Warrior Podcast (Kidney Health Podcast‪)‬ Dee Moore

Welcome to the new episode of Diary of a Kidney Warrior podcast. Host Dee Moore is joined by Dr. Roz Cooper, Clinical Psychologist. In this episode, Dr. Roz shares her expertise on managing uncertainty, particularly in the context of Chronic Kidney Disease (CKD).
This episode is part four of our series on uncertainty. We have previously explored uncertainty from various perspectives, including those of clinicians, parents and pregnancy  with CKD. Today, we conclude the series by exploring practical strategies for managing uncertainty with Dr. Roz.
Dr. Roz discusses how our brains are wired to problem-solve and why uncertainty can be so challenging. She introduces practical strategies such as grounding techniques, scheduling worry, unhooking from thoughts, and understanding personal values. Additionally, the importance of peer support and accessing resources like the Reading Well Agency and mindfulness apps are highlighted.
If you're dealing with the uncertainty that comes with CKD or any other chronic illness, this episode offers valuable insights and tools to help you navigate these challenges.
Listen in for a wealth of practical advice and encouragement, and remember, you are not alone in this journey. Reach out to your renal team or mental health professionals for personalised support.
Thank you for tuning in to Diary of a Kidney Warrior podcast. Until next time, take care and choose to live.
 
For updates and more, follow Diary of a Kidney Warrior on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
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Resources shared by Dr Roz during the podcast
NHS Talking therapies https://www.nhs.uk/nhs-services/mental-health-services/
 
Apps - Headspace, Smiling Mind
 
Worry time, Worry tree - https://www.nhs.uk/every-mind-matters/mental-wellbeing-tips/self-help-cbt-techniques/tackling-your-worries/
 
Reading Well - https://readingagency.org.uk/get-reading/our-programmes-and-campaigns/reading-well/ 
 
Russ Harris books (list, can find to buy elsewhere - some aimed at therapists but some for the general public) https://www.actmindfully.com.au/product-category/books/
https://diaryofakidneywarrior.getform.com/ojp1p
 
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
 
https://infokid.org.uk/
 
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 Mental health issues - Every Mind Matters - NHS (www.nhs.uk)
 
Home - Mind
 
Samaritans
 
Tel: 116 123 (freephone)
 
jo@samaritans.org
 
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, eth

Content warning: This episode contains discussions of a sensitive nature, including the medical management of abortion.
In this moving episode, Rajinder shares her journey as a parent of a child with CKD, starting from a complicated pregnancy to facing the challenges of a son with failing kidneys. The lack of support and empathy during difficult pregnancies is discussed, highlighting the need for better emotional guidance during such times. Rajinder and her husband navigated tough decisions to give their baby the best chance at life despite medical team dismissal. The traumatic birth experience and the subsequent NICU journey filled with uncertainty and fear are detailed, showcasing the family's strength in facing their baby's health struggles. Despite the challenges, Milo showed resilience in coping with dialysis from a young age. This episode sheds light on the importance of support and understanding in navigating complex pregnancies and health challenges.
 
For updates and more, follow Diary of a Kidney Warrior on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
 
https://infokid.org.uk/
 
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
 
•           Website: www.kidneycarekuk.org
•           Email: info@kidneycareuk.org
•           Tel: 01420 541 424
•           Facebook: www.facebook.com/kidneycareuk.org
•           Instagram: @kidneycareuk
•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

Welcome to a special episode of Diary of a Kidney Warrior podcast where our host, Dee Moore, interviews the inspiring Kay Allardyce. Kay, an osteopath Pilates instructor, author, and mom from Bromley, England shares her personal journey from kidney disease diagnosis to transplantation, and her quest for family planning while living with CKD.
This episode shines light on the issues surrounding CKD, fertility, and the impacts of pregnancy during and post kidney transplantation, offering vital insights on this commonly overlooked issue. Kay's transformative life post-transplant, from constant fatigue to London to Paris cycling enthusiast, presents a compelling snapshot of the transformative power of organ donation.
Join us, as we undertake a deep dive into Kay's inspiring journey with kidney disease, her experiences balancing dialysis, transplantation and planning a family, and her advice for other CKD patients contemplating starting their own families. Kay bravely battles CKD, while sharing the powerful tools she used:  maintaining physical fitness and a healthy lifestyle.
Not only does she share her personal experiences, but Kay offers resources and contacts for others scouting for information and guidance on handling kidney transplants. Her motivating words bring hope and reassurance that a diagnosis of kidney disease isn't the end but a chance to open new doors with the effective management of kidney disease through communication.
 
If you were affected by any of the issues raised in this episode contact:
 
 
Miscarriage Association
Website: https://www.miscarriageassociation.org.uk/
Helpline: 01924 200 799
Email: info@miscarriageassociation.org.uk
 
Kidney Care UK
 
•           Website: www.kidneycarekuk.org
•           Email: info@kidneycareuk.org
•           Tel: 01420 541 424
•           Facebook: www.facebook.com/kidneycareuk.org
•           Instagram: @kidneycareuk
•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
Follow Kay Allardyce
 
Facebook: Kay Allardyce, Author
Website: www.kosteo.co.uk
 
Kay's 5 top tips around pregnancy after a kidney transplant (Kidney Matters Magazine):
https://kidneycareuk.org/get-support/kidney-matters-magazine/spring-2024/
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
 

Welcome to another episode of Diary of a Kidney Warrior. This podcast episode is the first in a series that takes a deep dive into the world of pregnancy and Chronic Kidney Disease (CKD). Our expert guest, Dr. Jan, examines the nuances of a kidney damage diagnosis of the unborn baby during pregnancy and the onset of uncertainties that this health revelation carries.In this comprehensive understanding of CKD, Dr Jan addresses the considerable challenges associated with diagnosing the disease. The episode further explores the emotional turmoil parents endure upon their child's CKD detection and the importance of a multidisciplinary support team surrounding the affected family.As they delve deeper, we grasp the implications of a baby with one or two compromised kidneys, the risks, and its effect on their life quality. The narrative examines how both kidneys damaged by CKD can escalate to later disease stages, potentially necessitating kidney replacement therapy - dialysis or transplantation.The discussion unfolds touching upon the areas of neonatal nephrology, the significant impact of CKD on a child's growth, development, and learning abilities, with emphasis on the importance of kidneys for overall body health. Furthermore, Dee and Dr Jan explore the opportunities and limitations of neonatal dialysis, illuminating the complexities of medical interventions in newborns, especially those at extremely low birth weights.In conclusion, Dr Jan echos the paramount importance of acknowledging these uncertainties and advocate for extensive patient support, peer groups, and committed charities. Final remarks introduce useful resources, such as InfoKid, to aid informed decision-making in healthcare, hence underscoring the need for ample education and a robust support system for CKD patients and caregivers.
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
 
https://infokid.org.uk/
 
If you were affected by any of the issues raised in this episode contact:
 
Kidney Care UK
 
•           Website: www.kidneycarekuk.org
•           Email: info@kidneycareuk.org
•           Tel: 01420 541 424
•           Facebook: www.facebook.com/kidneycareuk.org
•           Instagram: @kidneycareuk
•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

In this gripping episode of the Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Kyrie Rowe Hopkins, a brave 33-year-old warrior battling Lupus and Chronic Kidney Disease (CKD). Underlying the podcast's mission of sharing faith, knowledge, hope, and love, Kyrie transparently reveals his personal journey, elucidating the daunting diagnosis, the life-transforming path to dialysis, and the over joyous moment of receiving his first kidney transplant.
Targeted at individuals suffering from kidney disease and related chronic illnesses, as well as those seeking hope and encouragement, this episode beautifully delineates an extraordinary individual's story. From the unexpected onset of kidney deterioration to the generous lifesaving donation from his grandfather, every listener can seize an insightful piece from Kyrie’s inspiring narrative.
Kyrie also serves as a Lupus volunteer and vital peer support for Kidney Care UK's Young Adults Kidney Group, reflecting not only on his struggles with lupus and kidney disease but also on his triumphs. The stirring words from this resilient kidney warrior spotlight the invaluable power of family and friends, persistence in adversity, and relentless hope.
Experience an unbelievable journey brimming with challenges, survival, and the significance of open discussions on one's health status. This episode emphasises Kyrie's indomitable spirit and passion to lead a fulfilling life despite his health conditions, offering an inspiring prospect for those going through similar struggles.
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing List to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode transcripts, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
Follow Khiry Rowe-Hopkins
Instagram: @ourjourneywithchronicillness
Twitter: @khiryhopkins
 
Our Journey With Chronic Illness / Adult-ish & Chronic Illness Podcast
 

https://open.spotify.com/show/4ke9CDLHZXticHFDIkR9ie?si=qAA3HTd9TqymNONhISTcrw

 
 
 
If you were affected by any of the issues raised in this episode contact:
 
 Kidney Care UK
 
•           Website: www.kidneycarekuk.org
•           Email: info@kidneycareuk.org
•           Tel: 01420 541 424
•           Facebook: www.facebook.com/kidneycareuk.org
•           Instagram: @kidneycareuk
•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 

In this riveting episode of the Diary of a Kidney Warrior Podcast, host Dee Moore invites kidney warrior, Senet Kassaye, to share her transformative journey - from unexpected kidney failure and dialysis to eventual kidney transplantation. Senet's vivid recounts of battling diabetes at a tender age, experiencing a sudden stage 5 kidney failure, and the ensuing life-altering decision to undergo dialysis offer valuable insights into the mental rigour required during such transformative periods.
Through a series of probing questions, Dee dives deep into Senet's narrative, elucidating the complexities of her decision-making process, particularly her choice against the fistula. Transitioning to a hopeful note, the conversation culminates with Senet narrating her joyous experience of kidney transplantation, providing a unique perspective and valuable advice for patients facing sudden kidney ailments and possible lifestyle adjustments.
Senet's story is one of survival and resilience. She details her anticipatory anxiety during the drive to the transplant hospital, the rejection of her pancreas transplant and the relief accompanying the acceptance of her new kidney. Discussing the immense physical pain resulting from organ rejection, she grimly recalls opting for a second surgery to remove her pancreas. That said, the successful compatibility of her new kidney re-echoes the monumental significance of a successful transplant, made more meaningful as it saved her from an exhaustive dialysis routine.
In a segment focused on patients' post-transplant needs, Senet shares some practical advice on maintaining the health of the new organ, staying adherent to the medication routine, and keeping a positive mindset. Particularly touching is Senet's appreciation for organ donors and their families, emphasising England's opt-out organ donation system, and encouraging those considering to opt-out to prioritise lives over fears.
This revealing episode concludes on a hopeful note, powerfully resonating the undying spirit of positivity and looking forward to better times despite significant health challenges. Thus, it delivers an inspiring journey of a brave Kidney Warrior, offering light to others embarking on a similar path - proving that there is hope and life after a kidney transplant.
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing List to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
Follow Senet Kassaye
Instagram: @senethtxrealtor 
Facebook: Senet K. Idriss 
 
If you were affected by any of the issues raised in this episode contact:
 
 Kidney Care UK
 
•           Website: www.kidneycarekuk.org
•           Email: info@kidneycareuk.org
•           Tel: 01420 541 424
•           Facebook: www.facebook.com/kidneycareuk.org
•           Instagram: @kidneycareuk
•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisa