A podcast about traveling the special needs road and discovering the hidden gems and unique finds of a place you didn't think you would be. We share how families are doing amazing things as a result of a diagnosis, and give you a glimpse into the realities of raising children with differing needs.
Smearing 102: From Devastation to Innovation
We continued our chat about smearing with our guest, Jennifer Sheppard, who created an adaptive clothing line out of a dire need for an alternative to wet suits for her own son who struggles with the behavior. We also shared a bit more of our chat with Genevieve, and our own lessons learned from dealing with poo.
We talk about:
How we've become desensitized What we've found to be helpful in the aftermath Ways to clean up the mess Specific products and strategies that have been helpful Finding adaptive clothing solutions for when you can’t watch your child 24/7
Jennifer’s Adaptive Clothing Line - The Wild End of the Spectrum
Life on the Wilder End of the Spectrum
FB page - The Wilder End of the Spectrum
Products We Reference (not sponsored or affiliate links, just products we’ve purchased and found helpful)
Ruggable - Washable Rugs
Clorox Healthcare Hydrogen Peroxide Cleaners
Bissell Pro Heat Pet Carpet Cleaner
What to Do about Smearing
Smearing 101: What to do about Poo
Fecal smearing and ingesting are taboo topics that often elicit a considerable amount of shame for families. We felt like it was time to give this topic some attention to those who are struggling in the dark and aren't comfortable reaching out for suggestions in the online support groups. In response to very little information openly available to families struggling with smearing and consuming feces (scatolia and coprophagia), Genevieve Engleman, The Remote OT, shares with us the background behind the behavior, information to reduce the stigma, and ways we can try to prevent and address this issue.
We talk about:
Why mammals may consume their own feces History and incidence of these behaviors Reducing the stigma and shame associated What the behavior may be communicating How to address any potential medical problems that could lead to these behaviors What do do if and when it happens Ways to use OT, and sensory play to meet the needs currently served by poop play
The Remote OT
Creating a Game Plan with Joya Van Der Laan
This week we chat with Joya Van Der Laan, a functional medicine family nurse practitioner whose curiosity and her own daughter’s autism diagnosis lead her down the biomedical path. We learn how she has used her personal and professional experience to create videos to teach parents how to create their own autism game plan, focused on helping parents address common symptoms and challenges associated with an autism diagnosis. Her videos cover everything from sleep, meltdowns, constipation and seizures to PANS and PANDAS. Tune in to learn about Joya and how her website could help your family!
We talk about:
How overwhelming it was to face an autism diagnosis even as a medical professional Feeling the pressure to “fix” her child Using functional medicine to find the root cause of symptoms Deciphering between “voodoo” and science Creating a resource to quell the overwhelm and ease the burden on parents Testing to determine deficiencies and starting with basics like diet The importance of sleep for everyone! Healing is an artform not an end game Watching other children improve while her daughter struggled which led to learning How the desperation to help our kids can sometimes cloud our judgement with interventions Being methodical with trying new things to determine what’s working and what’s not How functional medicine can help parents too!
Your Autism Game Plan
How to End the Autism Epidemic
The Explosive Child
The Autism Revolution
Healing the New Childhood Epidemics - Autism, ADHD, Asthma and Allergies
Doctors to follow
Dr. Mark Hyman
Dr. Jeffrey Bland
Holistic Healing with Megan Martin
For this episode we speak with Megan Martin, personal trainer, health coach and purveyor of holistic wellness who used lessons learned from her own health journey to help her son with autism. She shares with us what the biomedical approach means and how she used it to address her son’s symptoms, including how she did an at home fecal transplant.
We talk about:
Personal illness and disease that led to path of holistic healing Exploring functional medicine Lifestyle factors and diet being the foundation for disease prevention and treatment Supporting the entire body to help with brain function Addressing GI dysfunction as not just another symptom of autism Using diet to address autism symptoms, including eczema Naturopathic doctors and what they do All about fecal microbiota transplants (currently only FDA approved for C-Diff but many clinical trials in patients with autism) Using the AMD Ion Cleanse foot bath for detox and she get her son to sit still Other alternative treatments to try
Autism Research Institute - Gi webinar
Arizona State University Uses Bacteria to Improve Autism Symptoms
Stanford University - Microbiome studies
AMD - Ion Cleanse
The Autism Community in Action
Recovering Kids Facebook Group
Detoxing Kids - A Parent Guide to Safe Metal Detox
Autism Effective Biomedical Treatments: Have We Done Everything We Can?
ATEC - Autism Treatment Evaluation Checklist
Personalized Vitamins and Minerals
Travel Tips with Kristy Kargel
Does the thought of traveling with your children and family members with disabilities and complex medical needs intimidate you and make you shy away from leaving the house? This is the episode for you! Join our friend of the show and fellow complex medical needs mom Kristy Kargel, as we chat about how to navigate airports, long trips, and making it from point A to point B without excessive stress.
We talk about:
Finding accessible changing facilities Bringing medically necessary items as carry-on items Calling the airline two weeks prior to discuss specific travel needs Renting a modified van Writing into a waiver plan to justify funds to be utilized to cover travel needs Shipping supplies ahead of time from a durable medical equipment provider Pre-ordering groceries and having them delivered to your destination Renting a shower care Packing day by day for items necessary for each day Providing packets and information for fellow passengers Boarding the plane FAA approved seat harness available to keep passengers upright Noise-canceling headphones (for kids & adults) Video and photo social stories Bathroom locator apps for accessible restrooms The courage to give it a go Bed tents Free passes to national and state parks Beach wheelchairs Drive through zoos and safaris Accessible parking passes Easing into traveling and prepping the whole family Lowering expectations
Accessible Travel in Florida
FAA Approved Harness
Autism on the Seas (For autism, Down syndrome and other disabilities)
Best Bathroom Locator Apps
Best Autism Bed Tents
Wheelchair Friendly Lodging in National Parks
FREE Lifetime Pass for National Parks
Facebook page for travel tips
Great travel tips for wheelchair users
Sleep Matters with Andrea Faris Roberts
Andrea Faris Roberts, renaissance woman, innkeeper, two-time non-profit starter, and mother of two children, including a son with Down syndrome. She graciously invited us to her flagship inn called the Terrace Guest House to tell us the story of its inception and discuss the importance of getting away. Join us as we discover how she created a beautiful way for parents and caregivers to experience true rest, what it took to create multiple sanctuaries for parents to recharge and how important it is to put ourselves on our own to-do list. #getinthecar
We talk about:
The deep need for sleep Creating an organization from personal pain Reece’s Rainbow - international adoptions for children with Down syndrome and other disabilities The significant impact of caregiving and the unmet need for rest Creating a network of partner Inns (B&Bs) to serve families (40+) Curating the nation’s first year-round respite inn The unique thing about this sanctuary experience that meets unrealized needs Recuperative rest, not a vacation Putting yourself on your own to-do list Wishing that our kids didn’t have to struggle The trauma and challenges of raising a child with a disability Not “Embracing Holland” Her annual “Mommy & Me” trip for parents to get away with their child without a disability, or their own mom, or other special needs mom friend, or by yourself Andrea’s advice for new parents
A Mother's Rest
Angie's Blog Post About Staying at the Inn
Give Monthly to Help Keep A Mother's Rest Open
FB - A Mother's Rest - public page
Discusses topic in a “take it or leave it” fashion. No judgement or “you should do this, or you should do that...” here the way other special needs podcasts or books do.
Embracing Holland is a must for all who love a person with special needs!
Proud to share with all my family and friends: Embracing Holland podcast is AMAZING. Do you have family members or friends who are parents of children with special needs? Have a listen and then share with them. You may be able to relate or you may find a nugget of wisdom to help that friend or family member.
These two young moms have experience themselves and let you know you are NOT alone on this journey. They have resources and tricks up their sleeves that I never heard of before, and my son is 26 years old!
Listen, share, listen, share. (Those, plus love, make the world go round.) 💕
Interviews are personal and real. Life hacks and living with the Coronavirus is insightful for families that are living with a child with autism and the special challenges. That brings. While listening I found myself picking up on little hacks that I had never thought . Keep it up