39 episodes

This podcast is in partnership with the San Diego/Imperial County chapter of the Alzheimer’s Association, and is a place where everyday people can speak on their experiences, their struggles, and the everyday highs and lows that come with their family member’s Alzheimer’s journey. The goal of this podcast is to create a space of comradery, connecting listeners with this support group and hopefully encouraging people to ask questions, give advice, and share their own stories.

Experiences in Caregiving Experiences in Caregiving

    • Education
    • 5.0 • 14 Ratings

This podcast is in partnership with the San Diego/Imperial County chapter of the Alzheimer’s Association, and is a place where everyday people can speak on their experiences, their struggles, and the everyday highs and lows that come with their family member’s Alzheimer’s journey. The goal of this podcast is to create a space of comradery, connecting listeners with this support group and hopefully encouraging people to ask questions, give advice, and share their own stories.

    Exercise, Movement & Caregiving

    Exercise, Movement & Caregiving

    In this episode, we discuss the importance of exercise and movement for our loved ones. We explore how to motivate them to exercise, various types of activities and exercises to try, and equally important, the significance of movement and exercise for the caregivers themselves.
     
    For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/

    • 55 min
    Having the Difficult Discussions about Caregiving

    Having the Difficult Discussions about Caregiving

    This month we discuss how we approach the difficult discussions of caregiving (i.e. Power of Attorney (POA) considerations, live-saving measures, care facility, in-home care etc) with our elderly loved ones, our families, and others on our care team. Sometimes these conversations are meant with anger, sadness, suspicion, or an outright refusal to have the discussion all together.  We discuss ways to break through and put a care plan in place to hopefully avoid chaos later.
     
    For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/

    • 1 hr 6 min
    How to be an Ally

    How to be an Ally

    In this episode we discuss the complex nature of relationships between caregivers and those around them who may or may not also be grieving. We discuss communication styles, how best to support a caregiver, and how caregivers can compensate when their allies can’t or won’t support them. 
    For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/

    • 1 hr 9 min
    The Impact of Caregiving on the Black Community - Part 2

    The Impact of Caregiving on the Black Community - Part 2

    With the overwhelming response to our “The Impact of Caregiving on the Black Community” episode, we’ve come back with a part 2 to further discuss the challenges of caregiving in the African American/Black community, the racial disparities in care for loved ones, support for caregivers, and access to resources.
     
    For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/

    • 52 min
    Special Episode - The Longest Day 2023

    Special Episode - The Longest Day 2023

    In our newest episode we are celebrating Alzheimer’s & Brain Awareness Month so we are talking all things brain health, the Alzheimer’s Association’s “The Longest Day” fundraising initiatives, and how “The Longest Day” impacts our caregiving community.
     
    For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/
     

    • 42 min
    Brain Health & The Frustration of Getting a Diagnosis

    Brain Health & The Frustration of Getting a Diagnosis

    This month we discuss the upcoming “era of treatment” in relation to brain health and the frustration caregivers feel when trying to get a diagnosis, in particular the correct diagnosis, so that they can make plans and get out in front of dementia with treatments, medications, etc. We also discuss ways caregivers can approach primary doctors and neurologists in hopes of getting heard and getting the info they need.
     
    For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/

    • 56 min

Customer Reviews

5.0 out of 5
14 Ratings

14 Ratings

debbradfield ,

Thank you

I have been listening to your podcasts for about 6 months. I have found it extremely helpful!

Molly Borsom ,

Like a hug for family caregivers

Thank you for sharing diverse stories and covering the topics we are all facing. I’d say more but my mom has AD and I’m her primary caregiver so I’m beyond tired. Thanks for helping me feel less alone tho

smile4limon ,

So helpful!!

I’m a young long distance caregiver and am so grateful to hear other people’s stories. It’s comforting to know we’re not alone. Thanks so much Susan and the ALZ Association for hosting this podcast.

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