159 episodes

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn’t know very much about Down Syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.

If We Knew Then - A Down Syndrome Podcast Stephen and Lori Saux

    • Kids & Family
    • 5.0 • 112 Ratings

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn’t know very much about Down Syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.

    158. Best Buddies with Katelyn Quintero

    158. Best Buddies with Katelyn Quintero

    This week we were joined by Katelyn Quintero from Best Buddies International, which is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental disabilities. 
    Website: www.bestbuddies.org
    Champion of the Year: www.bestbuddieschampion.org
    The Walk: www.bestbuddiesfriendshipwalk.org
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/24/158-best-buddies-with-katelyn-quintero/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 1 hr 5 min
    157. Ruby’s Rainbow with Liz Plachta

    157. Ruby’s Rainbow with Liz Plachta

    We had such fun talking to Liz Plachta, the founder of Ruby’s Rainbow!  Ruby’s Rainbow grants scholarships to students with Down syndrome who are seeking post-secondary education, including enrichment or vocational classes, and helping them achieve their dreams of higher education while spreading awareness of their capabilities and general awesomeness.
    Ruby’s Rainbow: www.rubysrainbow.org
    WDSD Pledge: www321pledge.org
    Facebook Page: https://www.facebook.com/RubysRainbow/
    Instagram: https://www.instagram.com/rubysrainbow/
    Twitter: http://www.twitter.com/rubysrainboworg
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/16/157-rubys-rainbow/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 1 hr 2 min
    156. GiGi’s Playhouse with Nancy Gianni

    156. GiGi’s Playhouse with Nancy Gianni

    Today, we are joined by Nancy Gianni to talk about her foundation, GiGi’s Playhouse, which provides FREE, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages, everyday. GiGi’s Playhouse empowers families by maximizing opportunities for daily achievement and lasting acceptance and in turn, showing the world what individuals with Down syndrome are truly capable of achieving as students, co-workers, volunteers, friends, and valued members of the community.
    GiGi’s Playhouse: https://gigisplayhouse.org
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/09/156-gigis-playhouse-with-nancy-gianni/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 1 hr 15 min
    155. Using Your IEP to Make the Most of Middle School

    155. Using Your IEP to Make the Most of Middle School

    In this episode we give an update on our son Liam, a 13-year old in middle school, and discuss how far he has come, what supports have helped us navigate his transitions into middle school and how we are helping him find the independence every teen wants to cultivate. 
    Citizen's Of The World Middle School: https://www.cwcsilverlake.org
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/02/155-using-your-iep-to-make-the-most-of-middle-school/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 58 min
    154. Revisiting Our Interview with Megyn Price

    154. Revisiting Our Interview with Megyn Price

    This is our conversation with actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and how her Uncle, who had Down syndrome, affected her family in a positive way.
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/27/154-revisiting-our-interview-with-megyn-price/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
     

    • 1 hr 11 min
    153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa

    153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa

    This week we revisit the story of Jad Issa, a man with Down Syndrome who is a husband, father and respected citizen. At diagnosis, parents of children with Down syndrome are immediately told all the things their child won’t do. Jad’s life shows us that these preconceptions aren’t only untrue but the very belief in them often cause limitations. As with every child, all things are possible. We hope that this conversation with Jad’s son Sader, a dentist in Damascus, brings comfort to parents to believe in what may be thought of as impossible.
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/20/jad-issa/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 45 min

Customer Reviews

5.0 out of 5
112 Ratings

112 Ratings

V10264 ,

Excited to learn about these fellow parents in the Ds community

I just heard about this podcast while listening to The Office Ladies (I’m about a year behind). My first episode was your wedding anniversary which struck a chord as my husband and I just celebrated our 20th this fall. We also have two kids (our oldest has Down syndrome) - so I’m looking forward to hearing more insights from you guys! Thank you!

Spraz ,

Empowering and Hopeful

The interview with Jake Pratt was so wonderful. My first thought when I found out my baby would have Down syndrome was, “I will never get to take my child to college! He will never be independent, he will never drive!” And that is NOT TRUE! So grateful for Jake’s example.

DadvocateGuy ,

This podcast makes me smile

Stephen and Lori really put themselves out there in these wonderful, wide-ranging, and honest podcasts. As a dad of a young man with DS, it’s nice to tune in and listen to calm, thoughtful and deeply kind-hearted people covering personal subjects I don’t get around to (or avoid) thinking about. They make me think and smile, and that’s a gift. Thanks, Team Saux!
~ Brian, a dadvocate

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