Lupus Speaks Podcast

Shedrica Shant'e
Lupus Speaks Podcast

Living with lupus is a journey—some days we push through, other days it’s rest mode. Lupus Speaks is where we talk about all of it. I’m Shedrica, a lupus warrior, mom, and digital biz mentor. This podcast is for warriors who want more—more peace, more income, and a business that works with their health, not against it. Expect real convos, business tips, and “Lupie Gems” to help you move with ease. New episodes drop every Wednesday! 🎧 Listen & connect: Instagram | Website | Shop

  1. HÁ 6 DIAS

    Resilience & Advocacy: Sophia Galvis on Living with Lupus as a Teen

    Navigating Chronic Illness, Mental Health & Youth Empowerment In this episode of the Lupus Speaks Podcast, I sit down with Sophia Galvis, a 17-year-old lupus warrior who has been living with lupus since she was diagnosed at age 12. Despite facing the challenges of a chronic illness at a young age, Sophia has turned her journey into one of advocacy, resilience, and inspiration for others. She opens up about: ✔️ The emotional and physical toll of lupus as a teenager ✔️ The crucial role of family support in her journey ✔️ How mental health and creative outlets help her cope ✔️ Using social media as a tool for advocacy ✔️ Her dreams of pursuing a career in communications & performing arts This episode is a must-listen for anyone navigating life with a chronic illness, especially young people looking for inspiration, community, and hope. 🎧 Listen now on Apple Podcasts, Spotify, and more Key Takeaways: ✅ Diagnosed at 12—Sophia’s journey began on her 12th birthday, changing her life forever. ✅ Family first—The unwavering support of her loved ones helped her find strength in tough times. ✅ Mental health matters—Sophia highlights the emotional challenges of living with a chronic illness. ✅ Advocacy is powerful—She is passionate about raising awareness for lupus, especially among young people. ✅ Creativity heals—Music and performing arts serve as a therapeutic escape. ✅ Better treatments are needed—She hopes to see more personalized medications for lupus in the future. ✅ Social media connects—Platforms like Instagram and TikTok allow her to share her story and empower others. ✅ Dreaming big—Sophia aspires to a career in communications and performing arts to continue her impact. Memorable Quotes from Sophia: 💜 "There is another side." 💜 "I love talking to people." 💜 "I would like to see a lot actually." Episode Breakdown: ⏳ 00:00 – Introduction to Sophia’s Journey with Lupus 👨‍👩‍👧 03:12 – The Role of Family in Recovery 💬 05:15 – Advice for Young Lupus Patients 📢 06:36 – The Power of Advocacy in Raising Awareness 💊 08:53 – Challenges in Finding the Right Treatment 🧘‍♀️ 10:15 – Mental Health & Self-Care Strategies 🎶 11:19 – Finding Strength in Music & Creativity 🌍 13:36 – Sophia’s Vision for the Future & Advocacy 🙏 15:16 – Gratitude & Personal Growth 📱 16:28 – Using Social Media to Inspire Others Follow & Connect: 🔗 Follow Sophia Galvis 📸 Instagram: @sophiargalvis 🎵 TikTok: @sophiagalvis_watkins 🎙️ Follow Lupus Speaks Podcast for more inspiring stories! 🌍 Website: LupusSpeaks.org 📩 Join our newsletter for updates & resources:Sign up here Lupus awareness, chronic illness advocacy, teen lupus warrior, mental health and chronic illness, lupus in young people, resilience with chronic illness, family support for chronic illness, self-care for lupus, youth empowerment, social media for advocacy

    19min
  2. 19 DE FEV.

    Embracing the dance in functional medicine with Tiffany Kaloustian

    Embracing the Dance in Functional Medicine with Tiffany Kaloustian In this episode of the Lupus Speaks Podcast, host Shedrica Shant’e sits down with Tiffany Kaloustian, a functional and integrative health practitioner, to discuss her transformational healing journey with lupus. After years of being dismissed by doctors, Tiffany took her health into her own hands—turning to functional medicine, holistic healing, and self-advocacy to regain control of her well-being. What You’ll Learn in This Episode: ✔️ The struggle of delayed diagnosis and why self-advocacy is essential. ✔️ How functional and holistic medicine helped Tiffany manage lupus symptoms naturally. ✔️ The connection between trauma and autoimmune disease—and why healing is more than just medicine. ✔️ Faith, community, and mindset shifts that played a role in her journey. ✔️ Lifestyle and dietary changes that allowed her to transition off medications. Tiffany’s story is a powerful reminder that healing is possible when we take charge of our health, listen to our bodies, and explore holistic approaches. Resources & Links:🌿 Connect with Tiffany Kaloustian: 🔗 Website: Embracing the Dance 📲 Instagram: @tiff_ara_kal Support Lupus Speaks & Get Involved!💜 Love the show? Support Lupus Speaks by making a donation to help amplify the voices of lupus warriors and keep these conversations going. Every contribution helps us connect, educate, and inspire! 👉 Donate here 🎙️ Have a Story to Share? I want to hear from YOU! Drop me a voice message on SpeakPipe to share your thoughts on the episode, a topic idea, or just to say hi—you might be featured on the show! 👉 Send a voice message here 📩 Want to be a guest on the podcast? Reply to this email or reach out directly at shedrica@lupusspeaks.org if you have a story, insight, or resource that can help the lupus community. Let’s connect! 🎧 Listen Now & Subscribe for more inspiring conversations! #LupusSpeaksPodcast #LupusAwareness #FunctionalMedicine #HolisticHealing #ChronicIllness #AutoimmuneWarrior #SelfAdvocacy #HealingJourney #LupusWarrior

    34min
  3. 12 DE FEV.

    I'm Going to Own It: Shamekka Marty's Fight for Lupus Advocacy & Empowerment

    In this insightful episode of theLupus Speaks Podcast, we welcomeShamekka Marty, a dedicated advocate, mom, and lupus warrior. Shamekka shares her powerful journey from being a caregiver for her mother with lupus to receiving her own lupus diagnosis at 30. Her experiences have fueled her passion forpatient advocacy, healthcare reform, and data privacy within the chronic illness community. Shamekka sheds light on the challenges of growing up as a caregiver, the emotional and physical toll of lupus, and the importance of understanding and navigating the healthcare system. She also emphasizes the role ensuring individuals with chronic illnesses have control over their medical information. Throughout the conversation, we discuss: The significance of patient advocacy and how individuals can take charge of their healthcare journey. Mental health awareness in the lupus community and the importance of seeking support. The intersection of data privacy and healthcare, including the risks and benefits of genetic testing. Upcoming advocacy initiatives and resources designed to support lupus patients and caregivers. Shamekka’s story is a testament to resilience, empowerment, and the strength of community support. Whether you are living with lupus, caring for someone with a chronic illness, or passionate about healthcare advocacy, this episode provides valuable insights and inspiration. Where to Find Shamekka Marty: 🌍 Website:www.shamekkamarty.com 📲 Instagram & TikTok:@prettysicklupuschick Tune in now to gain a deeper understanding of lupus advocacy, data privacy, and the mental health challenges faced by lupus warriors. Connect with Us: Subscribe to the Lupus Speaks Podcast for more inspiring stories and expert insights. Follow us on Instagram and TikTok @LupusSpeaks, and join our community for ongoing support and advocacy efforts. 🎧Listen Now! Lupus, advocacy, healthcare, patient experience, chronic illness, resilience, caregiving, data privacy, autoimmune diseases, Shamika Marty, ethical hacking, patient advocacy, lupus awareness, health education, mental health, support groups, community resources, genetic testing, lupus advocacy.

    38min
  4. 22 DE JAN.

    Breaking Free from People-Pleasing

    Breaking Free from People-Pleasing In this powerful episode of the Lupus Speaks Podcast, I’m sharing something deeply personal from my therapy journey: how people-pleasing behaviors can stem from trauma responses and the emotional toll it takes—especially for those of us living with chronic illness like lupus. As Lupus Warriors, we often find ourselves caught between prioritizing our health and meeting the needs of others. It’s easy to get lost in the cycle of people-pleasing, but the cost to our mental and emotional well-being can be steep. In today’s episode, I’ll break down: The fawn response and how it shows up in our daily lives, especially for those with chronic illness. Why saying "yes" all the time can have serious consequences for our health and personal growth. How guilt plays a major role in fueling people-pleasing behaviors. The importance of setting boundaries—and why it's crucial for your health, peace of mind, and overall well-being. Practical tips for learning to say "no" without feeling guilty and taking back control of your time and energy. This episode is packed with valuable insights to help you recognize and break free from people-pleasing habits. If you're ready to take steps toward setting boundaries and prioritizing your self-care, this episode is for you. Mentioned in This Episode: Book a 1:1 strategy call with me to explore how to balance your health and business, and set boundaries: Click here to book Join the conversation and connect on Instagram: @LupusSpeaks Don’t forget to subscribe, leave a review, and share this episode with someone who needs to hear it!

    14min
  5. 15 DE JAN.

    The Power of Mindset: Shifting from Victim to Growth

    Hey, Lupie Boss! 🌸 In today’s episode, we’re diving into something that can completely shift the way you manage your lupus and chase your personal and professional goals: Mindset. Whether you’re managing your health, running a business, or simply navigating everyday life with lupus, your mindset is the foundation of it all. In this episode, I share my own journey of shifting from a victim mentality to a growth mindset—and how this shift has been a game-changer for both my health and my business. I’ll share practical tips on how you can reframe your thoughts and take action in a way that aligns with your goals. Here’s what you’ll learn: What a growth mindset looks like and why it’s crucial for lupus warriors like us. Mindset practices like journaling and setting achievable goals to help you stay on track. How to prioritize your health while building your business or chasing your dreams. Tips for breaking down big goals into manageable steps to keep your momentum going. This episode is packed with Lupie Gems to help you unlock the power of your mindset and make your lupus journey one of empowerment and growth. Main Topics Covered in This Episode: The importance of mindset for lupus warriors in business and health How to create a growth mindset that supports your goals Simple mindset practices you can start today to transform your journey Why prioritizing health is key to long-term success Resources & Links Mentioned in This Episode: Wellness Bingo: Keep your wellness journey fun and on track with our interactive bingo! Download your bingo card here Podcast Survey: Your feedback helps me improve the Lupus Speaks Podcast! Take the survey here Contact Me: Got questions or want to chat? Reach out at lupusspeaks@gmail.com Lupus Speaks Website: Check out all the latest resources, podcast episodes, and digital products at www.lupusspeaks.org Call to Action: If this episode sparked something in you, don’t forget to subscribe, rate, and leave a review. Let me know how you’re shifting your mindset and what changes you’re making in your life. Let’s keep the conversation going over on Instagram at @lupusspeaks—use the hashtag #LupusSpeaks to join the discussion. Remember, you're a Lupie Goal Getter, and this journey is about progress, not perfection. Let’s build the life and business you deserve while taking care of YOU first! Thanks for tuning in, Lupie Boss! Keep shining and taking action on your dreams—one small step at a time. 🌸

    19min
  6. 8 DE JAN.

    Finding your TRIBE in 2025

    Episode Title: Finding Your Tribe in 2025: Building Community and Setting Boundaries Show Notes In today’s episode of Lupus Speaks, Shedrica Shant’e dives deep into the transformative power of community and connection in the new year. The holidays have passed, and as we embrace the fresh start of 2025, it’s time to reflect on the importance of surrounding ourselves with the right people who uplift, inspire, and support us. Living with lupus or any chronic illness can sometimes feel isolating, but finding your tribe can make all the difference in how you navigate life’s challenges and celebrate your victories. Join me as we discuss actionable tips for identifying and nurturing relationships that align with your values and goals. We’ll explore the power of boundaries, how to create spaces where you feel truly supported, and what to do when it’s time to build your own community from scratch. Whether you’re looking to strengthen existing relationships or start fresh with a new circle, this episode will equip you with the tools to do so intentionally in 2025. We’ll also introduce the Lupus Speaks Wellness Bingo, a fun and interactive way to track your wellness and business goals throughout the year. Episode Highlights: This episode is packed with encouragement, strategies, and resources to help you make 2025 your most connected year yet. Reflecting on the Holidays: Why the end of the year feels like it flies by and how to set the tone for 2025. Finding Your Tribe: Steps to identify and build your ideal support system. The Importance of Boundaries: How to set and enforce healthy boundaries with those around you. Creating Your Own Community: Tips for building a space that aligns with your needs if the existing options don’t feel right. Introducing Wellness Bingo: Learn about this year-long resource designed to help you thrive in wellness and business. Links & Resources Mentioned: Lupie Boss Academy Facebook Group: A supportive space to connect with other lupus warriors. Join Here Lupus Speaks Wellness Bingo: Download your free bingo card to track your 2025 goals. Get Your Card Here Lupus Speaks Storefront: Explore our resources and digital products designed to help you thrive. Visit the Store Share Your Community Events: Submit events, workshops, or webinars to be featured on an upcoming episode. Email Us Follow on Instagram: @LupusSpeaks Sign Up for the Lupus Speaks Newsletter: Subscribe Here Stay Connected: Let’s make 2025 a year of connection, growth, and thriving together! Don’t forget to subscribe, share this episode with a friend who might need to hear it, and leave a review. Your feedback helps us continue to bring empowering content to the lupus warrior community. Stay tuned for next week’s episode—let’s continue to thrive together!

    18min
  7. 18/12/2024

    The Journey of Podcasting: Insights and Tools

    In this episode of Lupus Speaks, Shedrica Shant’e reflects on her podcasting journey, sharing why she started, the tools that have supported her, and the importance of consistency and planning. As she prepares for a well-deserved break, Shedrica highlights the power of community and offers words of encouragement for aspiring podcasters: start with what you have, stay true to your vision, and take it one step at a time. Links to Tools Mentioned: ​ Riverside.fm – Record Your Podcast with Ease​ Podcast Microphone – TONOR TC-777 USB Mic​ Headphones – Audio-Technica ATH-M20x​ Tripod – UBeesize 67” Camera/Phone Tripod Tune in for all this and more in this jam-packed episode of ⁠Lupus Speaks Monthly Audio Newsletter!⁠ Click the links to all the things mentioned in the episode below: ⁠Lupus Speaks Digital Biz: For Digital Products & Freebies ⁠⁠Lupie Boss Academy Facebook Group⁠⁠ The Girlfriend's Guide To Lupus By: Amanda Chay⁠ To be Featured on the show please send me an ⁠email ⁠ for event submissions and general inquires. ⁠lupusspeaks@gmail.com⁠ *Please Note you Must include the flyer with the details of your event. As always please follow the show on ⁠Apple Podcast⁠ and on social media. @lupusspeaks This Includes: ⁠Instagram⁠-⁠You Tube⁠-⁠Tic Tok⁠ -⁠Facebook⁠ Connect with me: 📲 Follow me on Instagram: https://www.instagram.com/lupusspeaks/ ✉️ Email me at: lupusspeaks@gmail.com 🌐 Visit my website: www.lupusspeaks.org 💜 Show your support: Love what you’re hearing? Please take a moment to leave a review—it really helps! 🗣️ Want to share your journey? I’m always looking for inspiring stories. Reach out via email to be a guest on the show. 💻 Explore freebies & get Lupie Gems: Visit Beacons.ai Store for free downloads and to sign up for my monthly newsletter. Need an all-in-one link for your social media bio? 🌐 I use Beacons for my link in bio to keep all my resources, podcast episodes, and social links in one spot. If you're looking to organize yours, get started with my referral link: beacons.ai/signup?c=lupusspeaks https://spotifyanchor-web.app.link/e/gAWZvePfjOb

    13min
4,9
de 5
22 avaliações

Sobre

Living with lupus is a journey—some days we push through, other days it’s rest mode. Lupus Speaks is where we talk about all of it. I’m Shedrica, a lupus warrior, mom, and digital biz mentor. This podcast is for warriors who want more—more peace, more income, and a business that works with their health, not against it. Expect real convos, business tips, and “Lupie Gems” to help you move with ease. New episodes drop every Wednesday! 🎧 Listen & connect: Instagram | Website | Shop

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