35 episodes

Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge.



The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.

Imperfect Heart Jeff Holden

    • Health & Fitness
    • 5.0 • 6 Ratings

Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge.



The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.

    Episode 31: What to Say to Your Primary Care Physician When You're Experiencing Chest Pain.

    Episode 31: What to Say to Your Primary Care Physician When You're Experiencing Chest Pain.

    Have you ever wondered why some heart conditions slip through the cracks? I do. And myocardial bridges are one of those conditions. Join me as I speak with my very own primary care physician, Dr. Thomas Hopkins, more affectionately known as Dr. Tom. He joins us to unpack the mysteries of diagnosing chest pain in the hopes we can catch a symptomatic myocardial bridge sooner rather than later. With a journey that spans from aspiring heart surgeon to passionate primary care physician, Dr. Tom brings a unique perspective on cardiac health. This episode uncovers the critical importance of educating both patients and healthcare providers about myocardial bridges—a frequently misdianosed but potentially fatal condition. Dr. Tom walks us through a comprehensive approach to diagnosing chest pain, ensuring that no deadly condition is overlooked.



    From initial assessments to advanced diagnostic tests, Dr. Tom explains the systematic pathway to accurately diagnose cardiac conditions from the perspective of a primary care physician or general practitioner. We delve into the limitations of primary care settings and the indispensable role of timely referrals to cardiologists. The urgency of quick action is highlighted, especially when conditions like myocardial bridging are suspected. This episode is a must-listen for anyone eager to understand the nuances of cardiac diagnostics and the vital need for vigilance in recognizing heart issues, especially if you or a loved one are experiencing chest pain that makes no sense.



    Effective communication between patients and their physicians is paramount for accurate diagnosis and treatment. Dr. Tom emphasizes the importance of patients sharing their symptoms, risk factors, and behaviors openly with their doctors. He provides key questions to guide these conversations, ensuring timely interventions and specialist referrals. This episode not only highlights the clinical significance of myocardial bridges but also underscores the value of expressing gratitude for medical support. By fostering mutual respect and teamwork in the patient-doctor relationship, the greater the likelihood the condition can be diagnosed in a timely and proper manner to get the proper treatment before something more serious occurs. It's both Dr. Tom's and you know my belief, that there are many out there who are going to experience only one symptom from a myocardial bridge and that's sudden cardiac arrest. Starting the conversation correctly from the beginning may just help save lives and improve lifestyles sooner for those getting proper diagnosis.



    Here's the website link to:  Dr. Thomas Hopkins



    To learn more about myocardial bridges visit: My Imperfect Heart



    To see our guests you can watch Imperfect Heart on YouTube



    Episode Highlights(00:05 - 01:05) Medical Journey Towards Cardiac Surgery

    (09:55 - 11:15) Diagnostic Tests for Chest Pain

    (14:54 - 16:05) Patient-Doctor Interaction for Proper Diagnosis

    (23:39 - 24:57) Addressing Patient Honesty and Care Coordination

    (30:34 - 31:49) Connecting Patients With Myocardial Bridge





    Chapter Summaries



    (00:00) Diagnosing Chest Pain in Patients



    This chapter welcomes Dr. Thomas Hopkins, also known as Dr. Tom, to discuss his transition from aspiring heart surgeon to primary care physician and his ongoing interest in cardiac health. We explore the topic of myocardial bridges—a condition not widely known even among medical professionals—and emphasize the importance of educating both patients and healthcare providers. Dr. Tom outlines the systematic approach his practice takes when a patient presents with chest pain, emphasizing the need to consider a broad range of potential causes, from cardiac issues to gastrointestinal and mental health factors. The goal is to ensure nothing potentially deadly is overlooked,

    • 39 min
    Episode 30: You Have a Myocardial Bridge. Could You Die? Stanford’s Dr. Ingela Schnittger Explains.

    Episode 30: You Have a Myocardial Bridge. Could You Die? Stanford’s Dr. Ingela Schnittger Explains.

    Can a legal case become a catalyst for groundbreaking medical research? In this episode, I sit down with Dr. Ingela Schnittger, a trailblazer in the field of cardiology, as she recounts how a tragic courtroom moment ignited her passion and led her to a pivotal collaborative effort at Stanford. Dr. Schnittger explains the complexities of myocardial bridges and the vital role a multidisciplinary team plays in accurately diagnosing and treating this often-misunderstood condition. You'll gain insights into the significance of combining expertise from cardiologists, radiologists, and surgeons to tackle the intricacies of this cardiac anomaly.



    We'll touch on the latest technology in myocardial bridge treatment and the meticulous surgical interventions pioneered at Stanford. Dr. Schnittger shares the precision required in preoperative evaluations and the importance of thorough diagnosis to ensure successful surgical outcomes. We delve into the potential widespread prevalence of myocardial bridges and their significant impact on cardiac events, emphasizing the need for expert care and comprehensive preoperative mapping for proper diagnosis. Dr. Schnittger's discussion underscores the critical role of experience and dedication within the surgical team at Stanford, highlighting their exceptional track record over the past 10+ years.



    We'll close with the patient-centric process of cardiac rehabilitation and recovery, crucial for post-surgery. Dr. Schnittger offers valuable guidance on structured rehab programs, medication management, and the importance of a gradual return to normal activities. We also touch on the importance of family medical history in diagnosing and managing heart conditions. Concluding with a heartfelt exchange of gratitude and appreciation, this episode underscores the profound impact of Dr. Schnittger's work on countless lives. If you've just been diagnosed, or believe you need to get properly diagnosed to identify or eliminate the possibility of a myocardial bridge, this conversation will give you everything you need to take the next steps with your cardiologist. If you know of someone suffering from undiagnosed chest pain, angina or heart attack like symptoms, please share this episode with them. If you have a doctor or worse yet, cardiologist that is uncertain of the impact of a myocardial bridge, or possibly doesn't accept them as symptomatic at all, be certain to share this episode with them. Share all the episodes with them.  As always, stay positive and grateful. There's hope for what it is you're going through.



    For more information, visit www.myimperfectheart.com



    Chapter Summaries



    (00:00) Understanding Myocardial Bridges and Treatment



    Dr. Schnittger discusses his journey into myocardial bridges, the importance of a multidisciplinary team, and advancements in surgical intervention.



    (18:42) Advancements in Myocardial Bridge Treatment



    Myocardial bridge treatment at Stanford involves precise preoperative evaluations and a dedicated surgical team with a successful track record.



    (34:32) Myocardial Bridge Diagnosis and Treatment



    Stepwise approach to treating myocardial bridges with medications, surgery if needed, and advancements in non-invasive diagnostic tools.



    (50:21) Cardiac Rehab and Recovery Guidance



    Cardiac rehab for endothelial dysfunction and myocardial bridges, importance of structured programs and gradual recovery, managing professional stress, and proactive family medical history.



    (57:25) Gratitude for Benefactor and Speaker



    Host expresses gratitude for Dr. Schnittger's positive impact, while Dr. Schnittger regrets not meeting in Stanford but is happy to see the host thriving.



     



     

    • 1 hr 2 min
    Episode 29: You’re Having Symptoms of a Heart Issue. The Story of Myocardial Bridges You Should Know.

    Episode 29: You’re Having Symptoms of a Heart Issue. The Story of Myocardial Bridges You Should Know.

    In this episode, I attempt to reveal some lesser known truths of myocardial bridges as I unravel the complexity of heart-related symptoms that often go misdiagnosed. You'll gain a deeper understanding of the disparity between the prevalence of this condition and the surprisingly low number of patients who receive accurate diagnoses. Did you know one-in-four of us is likely to have a myocardial bridge? How many people may actually be dying as a result of an undiagnosed bridge? Amidst the statistics that paint heart disease as the leading cause of death, I'll shed some light on the silent battles many face with undiagnosed chest pain, shortness of breath, and the emotional toll of not knowing. This episode is meant to outline and guide those affected or suffering from chest pain or shortness of breath or chronic fatigue towards recognizing the proper signs and advocating for themselves in a healthcare landscape that can sometimes overlook such crucial ailments.



    With options ranging from traditional sternotomy to state-of-the-art robotic surgery for "unroofing" a myocardial bridge, guests have shared their personal anecdotes of navigating these decisions and the life-changing moments post-surgery. With myself included, we're all testament to the fact that the surgery does benefit us and it needs to be more accessible for those in need. Let the "cycle to diagnosis" support you in your journey giving you a list of action items that should lead you to your resolution of the condition or at the very least a proper diagnosis of your condition. I have no doubt proper diagnosis of a myocardial bridge saves lives through the ripple effect of heightened recognition and medical progress.

    • 15 min
    Episode 28: Kathy Hoseth’s Rebellion Against Symptom Dismissal Erased 50 Years of Doubt.

    Episode 28: Kathy Hoseth’s Rebellion Against Symptom Dismissal Erased 50 Years of Doubt.

    Join me as I sit down with Kathy Hoseth, a remarkable woman with a compelling story of heart health struggles and self-advocacy. From her early childhood days experiencing unexplained chest pains to the complex journey of navigating the healthcare system as an adult, Kathy's narrative is a testament to resilience. She candidly shares the dismissive attitudes of medical professionals she encountered and how she persisted in the search for a diagnosis, shedding light on the crucial need for patients to listen to their bodies and advocate for their health.



    As her tale unfolds, she reveals the discovery of a myocardial bridge that was overlooked for years. Her story takes a hopeful turn with the identification of her condition, leading to the "unroofing" surgery that set her on a path to recovery. This episode gives you a front-row seat to the inspiring account of Kathy's medical journey, her relentless pursuit of answers, and the life-changing operation that ultimately improved her quality of life. We explore the significant role of having a supportive medical team and the importance of being heard when it comes to one's health. A staunch reminder that to be heard, one needs to speak up and in the case of myocardial bridges, the voice needs to be, not only spoken loudly, but confirmed it was heard.



    Kathy's experience is more than just a medical case; it's a narrative that underscores the power of patient advocacy and the difference it can make. As she shares her post-surgery life and the joys of being a grandmother of eight, Kathy's story serves as an encouragement to anyone facing health challenges. Her contributions to raising awareness are invaluable, reminding us all to never overlook symptoms and to push for timely intervention. This is a heartwarming episode that celebrates Kathy's journey, the surgical progress to correct a myocardial bridge and the collective power of shared experiences in healing and recovery.

    • 41 min
    Episode 27: Jed Baker's "Bridge to Nowhere" Journey Went Right Where it Belonged.

    Episode 27: Jed Baker's "Bridge to Nowhere" Journey Went Right Where it Belonged.

    Embark on a mission dirven purpose with Jed Baker, as he narrates his battle with enigmatic health symptoms, culminating in the pivotal uncovering of a myocardial bridge—an anomaly that remained undiagnosed for an agonizing duration. This episode threads through Jed's encounters with the labyrinth that is modern healthcare, where he met his "surgery sisters," Kaylin Kellert and Liane Aigner, and concurrently, they braved parallel surgeries. Through his voice, learn of multiple medical opinions, the delicate decision-making in cardiac care, and the profound importance of being an informed and proactive patient.



    With clarity and vulnerability, Jed opens up about his decision to pursue heart surgery over less invasive treatments, guided by Dr. Theodoris Kofidis. His pursuit of multiple medical opinions illuminates the complexities of cardiac treatments and the lifesaving power of perseverance. As we follow his journey, Jed's recovery unfolds as a testament to resilience, offering a beacon of hope to those navigating similar health challenges. His insights into the emotional and physical rigors of heart surgery provide invaluable guidance for those at the crossroads of such weighty medical decisions.



    Concluding with a powerful reflection on the role of hope in confronting health adversities, we draw parallels with Mark Durand's research on parental hope and the impact of community support in fostering optimism. Jed's story is more than a medical case study; it’s a narrative of human tenacity and the shared quest for healing. His candid discussion not only educates but also inspires, emphasizing the necessity of hope, community, and informed choice when facing the daunting prospect of heart surgery.



    To learn more about Jed, you can visit his website -  https://www.socialskillstrainingproject.com/about



    You can see more of Jeds drumming and performance on the FB page: https://www.facebook.com/BigTrainSoul/videos/2052865561543110/?extid=CL-UNK-UNK-UNK-IOS_GK0T-GK1C&ref=sharing&mibextid=w8EBqM



    Be sure to visit "Imperfect Heart" on YouTube   https://www.youtube.com/watch?v=yfqomNr--Rc&list=PLv9422orflyUbG-w1iVfzbzW9LIcgX_Eo    if you would like to see the guests.



    To learn more about Myocardial Bridges visit  https://www.myimperfectheart.com/

    • 54 min
    Episode 26: Dr. T. Sloane Guy Explains His Robotic Unroofing Procedure and Process for Acceptance.

    Episode 26: Dr. T. Sloane Guy Explains His Robotic Unroofing Procedure and Process for Acceptance.

    Have you ever marveled at the precision of robotic cardiac surgery or pondered the moral complexities hidden behind the robot's arm? Dr. Guy, a cardiac surgeon with a unique military background, joins us for a compelling exploration of this life-saving medical discipline, blending his battlefield-honed skills in teamwork and strategic thinking with the meticulous demands of heart surgery. We venture into the nuances of robotic vs. traditional sternotomy in unroofing procedures, weigh the critical balance between patient survival and health resolution, and unwrap the layers of decision-making that guide the evolution of medical practice.



    Our journey through the heart's intricacies doesn't stop at the operating table. Dr. Guy opens up about the rigorous diagnostic process that informs the path to surgery, sharing candid reflections on the ethical tension between alleviating patient suffering and avoiding unnecessary risks. The challenge of accurate diagnosis and the sobering fact that medical science isn't infallible are laid bare, illustrating a surgeon's commitment to ethical practice and the human side of medicine that's driven by a desire to heal, not just to operate.



    As we close, the conversation takes a turn towards the personal, revealing how Dr. Guy's own leisure pursuits provide respite from the operating room's intensity. We also shine a light on the collaborative efforts at the Georgia Heart Institute and the importance of patient-driven care. Our discussion culminates in a tribute to the altruism pervading the medical field where patient empowerment and informed dialogue stand as the cornerstones of quality healthcare.



    For more information visit Georgia Heart Institute by visiting www.NGHS.com



    You can also call Dr. Guy @ 770-219-7099



    To learn more about myocardial bridges or review prior episodes, visit www.myimperfectheart.com

    • 50 min

Customer Reviews

5.0 out of 5
6 Ratings

6 Ratings

inspire78 ,

A necessary examination of an often misunderstood defect

Thank you to Jeff for giving myocardial bridging the attention it needs.

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