Imperfect Heart

Jeff Holden
Imperfect Heart

Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge. The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.

  1. 12 DE DEZ.

    Episode 45: Robotic’s Revolution in Cardiac Care. Dr. Johannes Bonatti Shares Myocardial Bridge Unroofing From the Operating Room.

    This episode includes graphic video and a detailed explanation of the "unroofing procedure" from the operating room and is best when viewed on the "Imperfect Heart" YouTube Channel. In this, the third in a series on the "Vollmer Journey", we uncover the transformative potential of robotic myocardial bridge unroofing surgery as we bring you an insightful conversation with Dr. Johannes Bonatti, a pioneer in the field now practicing at University of Pittsburgh Medical Center, and David Vollmer, the patient who experienced its benefits firsthand. Hear how robotic techniques are redefining unroofing surgery, offering significant advantages over traditional methods, including quicker recovery times. David shares his remarkable journey back to full physical activity in just three months, shedding light on the decision-making process and the crucial role of provocative testing in determining the necessity of surgery. Step into the state-of-the-art hybrid operating room where technology meets surgical expertise. Dr. Bonatti reveals how the DaVinci robot enhances the precision of procedures like robotic unroofing of myocardial bridges. Gain an understanding of the importance of work on a resting heart and the process to make that happen. Additionally, explore the vital function, in detail, of the heart-lung machine in maintaining circulation during surgery, providing insights into the meticulous care involved in these advanced procedures. We'll discuss the complexities and risks of robotic heart surgery, with Dr. Bonatti as he details the nuance and novelty when compared to thorocotomy or sternotomy. We discuss the subject of myocardial bridges and their potential links to sudden cardiac events, highlighting the growing recognition of these conditions in the medical community. As we close this third episode of the series, it truly is a celebration of patient recovery and the dedication of Dr. Bonatti and his team, inspiring confidence in the future of myocardial bridge repair both robotically and traditionally. We continue to provide evidence of successful outcomes of this somewhat controversial procedure to provide hope for those with the condition and looking for solutions. To learn more about UPMC and their innovative robotic cardiac care, you can find more by cliking on this LINK You can also call the department at 412-648-6200, option 7 when prompted. CHAPTER SUMMARIES (00:00) Robotic Heart Surgery Dr. Bonatti and David Vollmer discuss the decision-making process and benefits of robotic cardiac surgery, including quicker recovery times. (15:37) Robotic Heart Surgery Robotic totally endoscopic unroofing of LAD myocardial bridge using DaVinci robot in hybrid OR with CO2 insufflation and heart-lung machine support. (35:20) Managing Risks in Robotic Heart Surgery Cardioplegia and hemostatic agents are used in robotic heart surgery, with a focus on patient safety and positive experiences at UPMC. (40:28) Myocardial Bridges and Robotic Surgery Nature's risks in cardiac surgeries, including pericarditis and atrial fibrillation, and the role of myocardial bridges and advancements in robotic technology. (52:04) Robotic Heart Surgery Success Story Successful recovery from surgery, addressing mineral deficiency and absence of AFib, with innovative approach by Dr. Bonatti at UPMC.

    58min
  2. 4 DE DEZ.

    Episode 44: Describing in Detail the Myocardial Bridge Provocative Test Procedure with UPMC’s Dr. Jeffrey Fowler.

    Unlock the secrets of properly understanding and diagnosing myocardial bridges with insight from Dr. Jeffrey Fowler, a leading interventional cardiologist at University of Pittsburgh Medical Center. Our conversation promises to illuminate the often perplexing process of diagnosing these cardiac anomalies and their impact on heart function. Through the lens of minimally invasive procedures and advanced imaging techniques like coronary CT angiograms, Dr. Fowler demystifies why myocardial bridges are not always the main culprits behind chest pain and the definitive testing now being done to ascertain the significance of the myocardial bridge. We're going to explore the intricate world of invasive testing, as we detail the provocative testing process used to evaluate myocardial bridges, their severity and their contribution to angina, or chest pain. Dr. Fowler explains how starting with an empiric trial of medications can lead to more invasive procedures like heart catheterization if necessary. Learn about the steps of the provocative test and the role of acetylcholine in testing for endothelial dysfunction and vasospasm, with reassurances about the safety and reversibility of these tests. This episode is our first on the detail and best practice for diagnosis of the bridge through the provocative test we've heard so much about. It's meant for the education and knowledge for both patients and professionals, enhancing understanding of the nuanced approaches in relatively rare process of diagnosis. Celebrate the spirit of collaboration among cardiology experts as Dr. Fowler shares the necessity of communication and advice. He's consulted with many others along the way including Dr. Shaw at Yale and Dr. Tremmell at Stanford, highlighting real-world case studies like that of patient David Vollmer. Join me in this compelling narrative of breakthroughs and dedication in the realm of cardiac care, and discover how ongoing advancements promise a brighter future for patients everywhere. This episode also has a video component that can be found on the Imperfect Heart YouTube channel or by clicking on the link HERE. To reach Dr. Fowler call 412-647-6000 and ask for him specifically. Or you can visit the hospital website HERE . Dr. Fowler's email is: fowlerja@upmc.edu You can learn more about the Microvascular Network in the link HERE.

    53min
  3. 27 DE NOV.

    Episode 43: David Vollmer’s Journey Into the Holisitic and Alterntative Therapies. Part 1 of a 3 part series.

    When David Vollmer first felt his heart race unpredictably during a workout, little did he know it would kickstart a journey that would redefine his understanding of health. From grappling with atrial fibrillation (AFIB) and a surprising diagnosis of myocardial bridging, David's unwavering pursuit for answers led him to challenge traditional medical advice and seek holistic paths to wellness. Tune in to explore how David's story highlights the power of self-advocacy and the importance of asking the right questions when navigating complex heart issues. Join us as David recounts his relentless search for an accurate diagnosis and effective treatment options, shedding light on the emotional and physical challenges faced along the way. His experience underscores the necessity of investigating underlying causes, like mineral deficiencies, and considering alternative therapies, including hyperbaric chambers and red light therapy. Through his candid reflections, we learn about the critical balance between conventional treatments and innovative health technologies that supported his recovery and empowered his personal health journey. David's story is a powerful reminder of the importance of being an informed and proactive participant in one's health decisions. As he shares his experiences, from consulting multiple doctors to understanding medical jargon, listeners are encouraged to consider diverse treatment approaches and advocate for personalized healthcare solutions. Whether tackling heart surgery decisions or managing post-operative recovery, David’s insights offer invaluable guidance for anyone navigating similar health challenges. You can reach out to David using the links below: o Https://thevollmerjourney.com o David@thevollmerjourney.com You can follow David on social media at one of his many handles for your preference of outlets below: o Instagram: https://www.instagram.com/thevollmerjourney o Twitter: https://x.com/vollmerjourney o Facebook: https://www.facebook.com/TheVollmerJourney o LinkedIN: https://www.linkedin.com/in/david-vollmer-jr-aa33aaaa/ o Youtube: https://www.youtube.com/@TheVollmerJourney o Rumble: https://rumble.com/user/TheVollmerJourney o Truth Social: https://truthsocial.com/@thevollmerjourney CHAPTER SUMMARIES (00:00) Health Journey David's journey with AFib, his preference for holistic solutions, and his advocacy for investigating deficiencies in his health. (11:38) Health Discovery and Treatment Journey Discovering and addressing myocardial bridging, proactive health management, and integrating alternative health technologies. (16:23) Medical Decision Making Process Choosing a medical path, consulting with doctors, and importance of Stanford protocol in addressing mechanical issues. (28:17) Post-Robotic Surgery Recovery and Herbal Remedies Patient's journey at UPMC highlights importance of convenience, challenges in recovery, and use of herbal remedy. (33:23) Advocating for Personal Health Education David's holistic approach to managing AFib includes medical treatments, alternative remedies, self-advocacy, and lifestyle changes. (42:26) Advocating for Personalized Healthcare Options Navigating medical journey after diagnosis, advocating for oneself, understanding surgical options, and taking control of health journey. (46:45) Navigating Heart Surgery and Recovery Emotional and physical journey of minimally invasive heart surgery, including provocative testing, support systems, and post-operative experiences.

  4. 13 DE NOV.

    Episode 42: How Ben Hunt’s Heart Health was Finally Revealed and Ultimately Repaired.

    Imagine growing up on a rural desert farm, surrounded by sports and discovering pickleball before it became a sensation. That was Benjamin Hunt's life until an unexpected health crisis turned his world upside down. Ben shares his journey from an active lifestyle to facing alarming symptoms like exercise intolerance and chest pain, experiences initially dismissed by doctors. Despite leading a busy life as a teacher and coach, he found himself in a frustrating odyssey for answers, battling severe exhaustion and undiagnosed symptoms for years. Ben's relentless quest for a diagnosis unfolds as he talks about the cognitive challenges that demanded self-education and advocacy. Through sheer determination, he identified a constriction in his artery, a crucial finding overlooked by several cardiologists. His perseverance eventually led him to Professor Kofidis, whose confirmation of the need for heart surgery marked a significant turning point. This episode also highlights Ben's belief in divine inspiration, emphasizing the power of persistence, even when traditional medical avenues appear exhausted. Travel with Ben to Greece as he recounts his solo journey to recovery, filled with anxiety and hope. Alone in a foreign land for heart surgery, he found support in a local named Gregory, and technology kept him connected to loved ones back home. The "unroofing" procedure performed by Dr. Kofidis brought a renewed sense of life and joy upon reuniting with his family. Ben's story is a testament to the importance of community, faith, and prayer, encouraging us to share our unique experiences to inspire and support one another through life's unpredictable challenges. To get the documents we discuss in this episode, email me at Jeff@hearmenowstudio.com and in the subject line put "Ben's Homework". I'll get them out to you immediately. CHAPTER SUMMARIES: (00:00) Heart Health Journey Through DenialBenjamin's journey from an active lifestyle to dealing with an undiagnosed health crisis, despite multiple medical evaluations. (14:36) Personal Journey to Heart SurgeryOvercoming challenges in understanding a complex medical condition through self-education and self-advocacy, leading to successful surgery. (25:18) Recovery and Relationship RenewalA solo traveler's transformative trip for heart surgery in Greece, overcoming challenges and finding support, and returning home with gratitude and renewed appreciation for life. (37:18) Personal Journey of Faith and HealingSharing personal medical journeys highlights the uniqueness of experiences and the power of community support, faith, and gratitude.

    44min
  5. 30 DE OUT.

    Episode 41: My (Your) First Meeting With a New Cardiologist Post Unroofing Surgery.

    Knowing I needed to find a cardiologist in my home community post surgery, left me a little disappointed to leave the confines of Stanford's outstanding care. After two years it seemed a good idea to reach out to see who might be the "lucky" doctor to get a patient like me. I'm pleased to say that the gentleman I was fortunate to be introduced to turned out to be very knowledgable about our condition and we had a very nice first consultation. Meeting Dr. Diwakar Lingam was a breath of fresh air as you're going to hear in this episode. His expertise offered reassurance, reminding me what a crucial role a well-informed cardiologist plays. This episode unfolds my first encounter with Dr. Lingam, a cardiologist who not only understood the complexities of our condition but also embraced the opportunity to share insights with our listeners. With his guidance, we explore what patients should seek in their healthcare providers, especially when navigating the oft-overlooked terrain of myocardial bridges. You'll hear me explain my personal medical narrative, from the initial bewildering diagnosis to the life-changing care I received at Stanford. Myocardial bridges are not just a medical anomaly but involve genetic factors and precise surgical interventions like unroofing surgery, which we dissect in our first discussion. Dr. Lingam understood the value of proper diagnosis, the role of advanced imaging techniques, and the often-missed symptoms that can complicate the path to treatment. This is a call to action for the cardiology community to bolster awareness and refine diagnostic approaches. Not many doctors would feel comfortable with a new patient, walking in with a recording device and asking to record the conversation in that very first meeting. Dr. Lingam was and I applaud him for his acceptance as this very simple gesture alone may allow this episode to be shared with other cardiologists who may not be as astute and aware of the need to treat a diagnosed MB patient differently. You can reach out to Dr. Lingam or share his contact information with a cardiologist you may want to connect with him at Roseville Cardiology Group. BIO Diwakar Lingam, M. D. graduated from Siddhartha Medical College, NTR University of Health Sciences, Vijayawada, India in 1994. He completed his residency at State University of New York (SUNY) Downstate Medical Center in Brooklyn, NY where he served as a Chief Resident of Internal Medicine. He completed his fellowship in Cardiovascular Disease from Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire. Dr. Lingam strongly believes in solid patient education to improve patient compliance with treatment and better health outcomes. He strives hard to help patients understand clearly the rationale behind all the tests, treatment choices and medications prescribed. He focuses his patient education on lifestyle changes and the value of diet and exercise in the management of many cardiac and medical issues of the patient. Dr. Lingam’s clinical interests are preventive cardiology, cardiac imaging, and cardio-oncology. He loves to help patients with cancer treatment-related cardiac issues and patients interested in preventing cardiac and vascular problems. He lives in Folsom with his wife and two children. During his free time, he enjoys biking, playing chess, and spending time with family. (00:11) New Cardiologist Discusses Myocardial Bridges Meeting a new cardiologist after myocardial bridge surgery, discussing the importance of informed and empathetic care in cardiology. (04:51) Myocardial Bridges Myocardial bridges, unroofing surgery, genetic nature, accurate diagnosis, specialized care, radiation exposure, contrast use, diabetic patients, continued research.

    29min
  6. 3 DE OUT.

    Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid Discussion.

    What if the very medication meant to ease your post-surgery pain ends up causing a whole new set of problems? This episode pulls back the curtain on the real-life challenges of post-surgery recovery, starting with the digestive issues caused by pain medications like oxycodone. You’ll hear firsthand accounts of the shift from relying on narcotics to managing pain with ibuprofen & Tylenol to minimize constipation, including the embarrassing and frustrating moments that come with it. We explore not just the physical ramifications but the emotional toll of trying to balance effective pain relief with uncomfortable side effects. Celebrate the small yet significant victories of recovery with us, from walking around the block to taking a shower independently, or just getting a shirt on or off! We dive into the emotional rollercoaster that accompanies healing, marked by fluctuating health, unexpected setbacks, and the importance of mental health support. Sharing practical tips for managing back pain and finding comfortable sleep arrangements, this episode underscores the need for patience and resilience. Each personal story highlights the non-linear nature of recovery, reminding listeners that healing is a process with both triumphs and setbacks. The trendline is not linear but as long as it continues upward, that's a good thing. Finally, join us as we explore the path to reclaiming normalcy during cardiac rehabilitation and the quest for post-hospital independence. Hear about the emotional and physical struggles faced in rehab, the anxious moments of driving again, and the cautious steps taken to regain independence. Personal stories bring to life the feelings of vulnerability and reliance on others, providing reassurance and support to anyone on this challenging journey. Listen in for a candid, heartfelt discussion that aims to provide hope and encouragement to those navigating the difficult path of recovery. As the host, I have to admit reliving this experience had it's highs and lows but having the discussion amongst friends who have been through the same things, was not only comforting, but sad to see it end. This was the last session of the day before everyone left to return home to wherever that was. Putting the episode together reminded me again that we need others to support us, we need to share our stories and there is nothing like being together in-person to discuss our situations.  Thank you all again for your participation and I sincerely hope that as you listen, you get some comfort, hope and awareness that we are all unique individuals and that everyone who has the surgery is going to have a different outcome than the person before or after them.  Continued success on your journeys and welcome each day with positivity and gratitude. (00:00) Post-Surgery Recovery and Pain Management Post-surgery experiences with pain management, digestive challenges, and balancing medication side effects while recovering. (11:23) Challenges and Triumphs in Recovery Recovery after a medical procedure involves celebrating small victories, dealing with setbacks, and seeking mental health support. (21:34) Challenges of Cardiac Rehab Challenges and experiences in cardiac rehab and recovery, including delayed start, physical struggles, and milestones achieved. (27:02) Adjusting to Post-Hospital Independence Recovery after a medical event involves regaining independence, facing fears, and taking cautious steps towards normalcy.

    31min
  7. 25 DE SET.

    Episode 39: Meetup Session-The Caregivers Perspective On Living With a Myocardial Bridged Partner.

    Live from the Imperfect Heart meetup, this episode features an intimate and heartfelt roundtable discussion among the patients and their caregivers who have all experienced the effects of a myocardial bridge on their loved one. Participants share their personal stories, their reactions to the diagnoses, treatments, and ongoing struggles post surgery. They discuss the emotional and physical impacts of their journeys side-by-side with their loved one, the importance of a being supportive partner, and the value a caregiver provides in simply getting comfortable with a new life. Special attention is given to the dynamics of relationships under stress, the role of caregivers, and the significance of faith and perseverance. Some participants also share the specifics of various medical procedures they have undergone, including traditional and robotic heart surgeries, and the impact on their lives post-surgery as well as the changes in relationships once the procedure is complete. These candid conversations should provide a backdrop for others to see what success looks like in both the journey up to and post surgery. What an incredible group of partners everyone of the patients were so blessed to have. Episode Chapters 00:00 Introductions and Initial Thoughts 00:48 Jeff's Health Journey 02:50 Caregiver Experiences and Challenges 06:05 Decisions and Reflections on Surgery 09:13 Post-Surgery Realities and Adjustments 12:30 Unique Experiences and Perspectives 24:32 A Heart Attack Experience 24:48 Medical Journey and Challenges 27:25 Exploring Treatment Options 32:39 Family Impact and Discussions 39:41 Reflections and Realizations

    57min

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Sobre

Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge. The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.

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