International Albinism Awareness Day Special

In this very special extended live episode, we celebrate the 10th International Albinism Awareness Day, established by the United Nations.

Dave Brown, of AMI-tv’s NOW with Dave Brown, comes all the way to Halifax to co-host.

Jennie and Dave connect with prominent guests from the albinism community, joining from all over the world.

They compare experiences, discuss important advocacy work, and shine a light - but not too bright - on guests’ talents.

Prepare for some laughs, poignant moments, and even some music with Outtacontroller, the band behind our theme song performing live in studio.

Highlights

• Outtacontroller – Low Vision Moments Theme Song (00:00)
• International Albinism Awareness Day Introduction (00:40)
• Cassandra Mendez & Casey Greer of “Rare with Flair” (05:59)
• What is Albinism? (12:45)
• Hermansky-Pudlak Syndrome (HPS) (13:31)
• Kristina Venning-Rose – Co-Chair, Albinism Fellowship UK (16:50)
• Albinism Fellowship UK (20:38)
• The Importance of Community (23:27)
• Getting Involved – Group Discussion (25:24)
• Outtacontroller - “Too Soon” (36:04)
• I.K. Ero - Director, Human Rights Advocacy at Under the Same Sun (39:24)
• Under the Same Sun (41:47)
• WHO Essential Medicines List Sunscreen Petition (43:41)
• Xueli Abbing - Founder of Open Eyes Foundation, UN Goodwill Ambassador & International Model (47:43)
• Open Eyes Foundation (50:41)
• Power of Representation (51:59)
• Institutional Change – Group Discussion (55:21)
• Outtacontroller - “Cheap Leather Jacket” (1:06:35)
• Jennifer Renee - Inclusive Beauty Influencer, Performing & Visual Artist (1:08:40)
• Danielle Moulds - Accessibility Consultant, Content Creator, Gamer & Streamer (1:19:37)
• Music Video - “Pure” by RobenX (1:26:51)
• RobenX – Musician, Advocate & 2024 UN Champion for International Albinism Awareness Day (1:32:38)
• Albinism in Arts & Entertainment – Group Discussion (1:40:10)
• Dave Brown - The Importance of Platform (1:53:51)
• Jennie Bovard - Closing Remarks (1:55:40)
• Outtacontroller – “Come Alive” (1:58:16)

Set and Hosts Description:

Jennie and Dave appear on a set, both seated in oversized red armchairs on an area rug. A TV monitor is on the left and displays guests during interviews & group discussions. The backdrop is a screen with various slow-moving drone videos of Nova Scotia landscapes. Jennie wears an oversized floral pattern blazer, jeans, and sneakers. Dave wears a dark blue blazer, jeans, and sneakers.

Co-Host Info:

Dave Brown - Host of NOW with Dave Brown on AMI tv, co-host. Find NOW with Dave Brown on YouTube

Guest Info:

Cassandra Mendez - Rare With Flair Podcast, Accessibility Specialist, from Ohio, USA.

• Find Cassandra Mendez on LinkedIn

Casey Greer - Rare With Flair Podcast, NOAH, Descriptive Video works, from Tennessee, USA.

• NOAH (National Organization for Albinism and Hypopigmentation)  Website
• Rare with Flair Podcast - Website / Instagram

Kristina Venning-Rose – Co-Chair Albinism Fellowship UK, from London, UK.

• Albinism Fellowship UK Website

Ikponwosa (I.K) Ero - Director, Human Rights Advocacy at Under the Same Sun, Former United Nations Independe