66 episodes

2020 WINNER BEST PODCAST - New Media Film Festival. Caregivers have one of the hardest jobs in the world. Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Don Priess both know this is a disease that cannot be faced alone. In fact, their Oscar Qualified film based on Susie's Mother, MY MOM AND THE GIRL starring Valerie Harper in her final performance - has and continues to touch people all over the world. Their goal was to let others know they are not on their own and to help them find the JOY in the journey. And that's just what they do in their Podcast "Love Conquers Alz".

Love Conquers Alz Susie Singer Carter and Don Priess

    • Health & Fitness
    • 5.0 • 12 Ratings

2020 WINNER BEST PODCAST - New Media Film Festival. Caregivers have one of the hardest jobs in the world. Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Don Priess both know this is a disease that cannot be faced alone. In fact, their Oscar Qualified film based on Susie's Mother, MY MOM AND THE GIRL starring Valerie Harper in her final performance - has and continues to touch people all over the world. Their goal was to let others know they are not on their own and to help them find the JOY in the journey. And that's just what they do in their Podcast "Love Conquers Alz".

    DR. ANNE KENNY: YOUR End of Life Choices in Alzheimer's and Any Disease

    DR. ANNE KENNY: YOUR End of Life Choices in Alzheimer's and Any Disease

    In episode 65, Love Conquers Alz hosts, Susie SInger Carter and Don Priess dive deep into the world of Palliative and Hospice Care with their guest, Anne Kenny MD, Professor of Medicine with specialty training and board certification in Geriatric Medicine, and Palliative and Hospice care.
       Dr. Kenny has found immense joy in her work with individuals and their families managing issues related to the diagnosis of dementia. Her experience in partnering in the care of these families touched close to home when her own mother was diagnosed with dementia. Dr. Kenny’s shares her expertise and experience in
    inpatient and outpatient Palliative and Hospice care which were called on when
    her mother reached the final stages of living with dementia.
       The Kenny family worked together for their mother’s graceful exit from this planet Dr. Kenny has been a practicing physician for nearly 30 years and has been recognized by her peers as a “Top Doc” in Geriatric Medicine. She has been honored with a Brookdale National Fellow and the prestigious Paul Beeson Physician Faculty Scholar awards.
       In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging related issues such as osteoporosis, exercise, nutrition, hormone therapy, death and dying, and frailty. She is an educator of medicine and research skills. She taught and mentored clinical and research skills to all levels of trainees including medical students, post-graduate residents and fellows, and early faculty members. She has been active investigator participating in clinical research focusing on various aspects of aging. She has over 100 scientific publications
    and presentations focused on improving the care and functioning of older adults.

    You can connect with Dr. Kenny here:
    WEBSITE
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    • 1 hr 12 min
    BRITTANY LAMB, MD: ER Doctor Helping Dementia Caregivers Make Confident Medical Decisions

    BRITTANY LAMB, MD: ER Doctor Helping Dementia Caregivers Make Confident Medical Decisions

    In EPISODE 64,  Co-Hosts Susie Singer Carter and Don Priess chat with Dr. Brittany Lamb, an ER Physician, Dementia Family Caregiver, Educator and Advocate.

     In medicine, there is a saying, "You don't know, what you don't know." Dr. Lamb is on a mission to inform Dementia Caregivers so they can make competent medical decisions on their person's behalf through anticipation and planning. Her enlightening services include such matters as advanced directives, planning for medical emergencies, how to talk to your family and determining goals of care just to name a few. So if you are someone's power of attorney, health care proxy, surrogate or default decision maker, Dr. Lamb can help create a plan to help you make informed future medical decisions and focus on spending quality time with your loved one now.

    Dr. Lamb openly discusses the challenges and stress doctors and healthcare workers face working within the current healthcare system. You don't want to miss this episode.

    You can connect with Dr. Brittany Lamb here:
    Facebook Group 
    Online Group Program
    Phone Consultations
    LinkedIn
    Instagram
    Facebook
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    • 57 min
    AUTHOR CINDY WEINSTEIN: "Finding the Right Words: A Story of Literature, Grief, and the Brain"

    AUTHOR CINDY WEINSTEIN: "Finding the Right Words: A Story of Literature, Grief, and the Brain"

    Hosts, Susie and Don are joined by Professor/Author/Caregiver, Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies - including literature -  that she used to stay connected and to manage her sadness.

    The narratives of the authors alternate in the book. Cindy tells the story of her father's illness, and how 30 years ago scant information was available to families about this vicious disease. She also tells the story of his life, and along the way, weaves in observations about literature and the insights she has gained from her favorite books. Bruce takes over certain sections of the text offering in-depth explanations of the science behind neurological topics including the brain, Alzheimer's and language.

    Cindy was born and raised in Verona, New Jersey. She received her B.A. in English and American Literature from Brandeis University, after which she went to UC Berkeley for her Ph.D. in English. She is currently the Eli and Edythe Broad Professor of English and has been at the California Institute of Technology since 1989, during which time she has published three monographs on American literature, edited several volumes, and taught classes on Herman Melville, Edgar Allan Poe, Women’s Fiction, and African-American literature. She has had several administrative roles at Caltech, including Vice Provost and Chief Diversity Officer. In 2018-19, she was an Atlantic Fellow in the Global Brain Health Institute based at UCSF and Trinity College Dublin, where she studied neurology with an interdisciplinary group of scientists, artists, social scientists, and physicians. During this time, she worked with Dr. Bruce Miller on Finding the Right Words.

    WEBSITE
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    LINKEDIN
    AMAZON
    CALTECH
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    • 56 min
    NO COUNTRY FOR OLD PEOPLE - Susie and Don Talk About Their Upcoming Important Documentary

    NO COUNTRY FOR OLD PEOPLE - Susie and Don Talk About Their Upcoming Important Documentary

    In Episode 62,  Love Conquers Alz Co-Hosts and award-winning filmmakers, Susie and Don  discuss what motivated them to produce their upcoming film, NO COUNTRY FOR OLD PEOPLE (NCFOP).  An important documentary that will be the required punch to the gut that forces people to take a good hard look at the Long Term Care crisis that has been going on for decades and the health-care system that is literally collapsing around us.

    NCFOP will be a cautionary tale that exposes the dangerous façade of stability and safety held tightly by Long Term Care (LTC) nursing facilities. A pretense propagated by a system that subscribes to the notion that honesty is far less profitable than dishonesty and cavalierly regards human beings as commodities. A system that relies on deceitful marketing to successfully divert most Americans away from the fact that decades of underfunding has left the nursing home system in dire need of a seemingly unachievable overhaul.

    In a case of every cloud having a silver lining, we have Covid-19 to thank for pulling the curtain back on this nationwide crisis. Still, without comprehensive and accurate data, interventions to improve outcomes and quality are limited and consumers have a difficult time discerning how risky a particular facility might be.  According to their producing partner, former Assistant Attorney General of Virginia, Rick Mountcastle (portrayed in the Hulu miniseries Dopesick by Peter Sarsgaard), it all comes down to understaffing. "With most not-for-profit nursing homes offering low pay, limited benefits, and not nearly enough training, and for-profit companies (that dominate the industry) having incentives to keep their costs low, neglect has regrettably become the industry standard."
    In the first six months of 2022, Susie was witness to this systemic crisis. She saw things she cannot unsee. Things  she won't unsee.  Her mother had been a resident at a 5-Star Nursing Facility in Los Angeles for 5 years – a place where she took solace in believing her mother was receiving the very best care possible.  And as it turns out, she was. Unfortunately, the “best” turned out to be the worst. 

    Susie had been on the front lines of what she calls a systemic catastrophe daily for the first six months of 2022.  And despite her relentless advocating, her mother died July 17, 2022 from what was inarguably egregious nursing home neglect and abuse. It's unimaginable to think what happens to residents without advocates. 
    This is Susie's mother’s story. But it could be yours

    For more information: No Country For Old People
    ** If you've been a victim of Nursing Home Neglect and/or abuse, and would like to share your story in this documentary, please contactus at LoveConquersAlz.Susie@gmail.com.
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    • 37 min
    ADRIA THOMPSON: The `VITAL Role Speech Therapy Plays in The Quality of Your Loved One's Life

    ADRIA THOMPSON: The `VITAL Role Speech Therapy Plays in The Quality of Your Loved One's Life

    In Episode 61, Don and I had the pleasure of speaking with Adria Thompson, a speech language pathologist, dementia educator, and owner of Be Light Care Consulting. Adria has over 8 years experience in working with individuals one on one providing speech therapy services for those with dementia.

    Adria has also created a dementia training program to teach therapists in 13 states how to increase their creativity, efficiency, and compassion. She creates daily content for over 200,000 professional and personal caregivers of individuals with dementia on social media platforms in a relatable, positive way that makes the condition seem a little less scary.

    I was particularly interested in talking to Adria about dysphagia (difficulty in swallowing) which often presents in late-stage dementia patients. Although dysphagia can only truly be diagnosed via Videofluoroscopy (VFS), also called a modified barium swallow study (the gold standard),  many Long Term Care Facilities use antiquated ways to make their official assessment based on budget and man-power.

    This is what happened to my mother in the last 6 months of her life. Without having her properly tested, the facility that she was at claimed she could no longer swallow safely and insisted she be fed via a G-Tube. They also refused to allow her to have anything orally for fear she would aspirate. But the truth was, my mother was not only able to swallow, she wanted to desperately.  Despite my advocating, they forbid it. I was finally able to convince them to have her assessed by their speech therapist who proceeded to diagnose her with dysphagia by watching her and placing a finger on her throat.

    I implored the therapist to watch me give my mother liquids from one of the sponges used for oral care. She agreed that my mother was able to swallow...for me. Her final decision was that I would be allowed to give liquids to my mother via a sponge on a stick. No one else would be given permission. Let's be honest - the decision was based on the fact that they were understaffed.  And potential liability.  Consequently, my mother suffered for 6 months from an unnecessary G-Tube,  solid chunks of mucus that formed daily which happens when liquid is withheld from a person, and the monotony of almost zero oral gratification! Can you imagine?

    I say almost zero, because everyday for 6 months, I brought my mother "something to drink". I was restricted by their edict that it could only be provided by a sponge that my mother had to suck. It was heartbreaking.

    Their attempt to keep my mother from aspirating and developing pneumonia GREATLY affected her quality of life. In truth, it was an exercise in futility and really a distraction from the stage 4 pressure sore they allowed to develop and neglected to care for properly  which ultimately resulted in sepsis and pneumonia several times during her last six months.

    We must protect our LOs from decisions based on policy that benefit the establishment and
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    • 1 hr
    DR. DELON CANTERBURY, Geriatric Pharmacist: DEPRESCRIBING - Saves Lives and Money

    DR. DELON CANTERBURY, Geriatric Pharmacist: DEPRESCRIBING - Saves Lives and Money

    Don and I had the pleasure of speaking with  DR. DELON CANTERBURY, Board Certified Geriatric Pharmacist and Founder of GeriatRX, a Deprescribing Accelerator Program based on the premise that the majority of patients taking 15-18 medications annually are aged over 65, preventable medication errors cost nearly $21 billion dollars annually, and the ongoing inappropriate , HARMFUL, use of medications in the senior population.

    Too many Americans are dying from harmful medications and wasting thousands of their hard earned dollars on unnecessary prescriptions. Over 275,000 people die each year due to medication mismanagement. While other American's are wasting over $6,000 per year on unnecessary medications.
    GeriatRX  is a pharmacist-lead consulting service that identifies that there is a lack of support for caregivers advocating for the elderly who need help in maneuvering a very difficult health care landscape by providing high quality evidence-based medication management for our most vulnerable patients, the elderly.  
    Connect with Dr. Delon Canterbury:
    Facebook
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    • 1 hr 2 min

Customer Reviews

5.0 out of 5
12 Ratings

12 Ratings

Maria-MMR ,

Love this Podcast!

Entertaining and informative, Susie and Kassi help navigate the Alzheimer’s world. I especially enjoyed the interview with Leeza Gibbons.

EsDubbs ,

An inspired take on an important topic

With heart and humor, Susie and Kassi tackle one of the most important and difficult subjects of our time. For those who love someone with Alzheimer’s, or know someone who does (which is just about everyone), Love Conquers Alz is invaluable support. The hosts take a devastating illness and approach it with an empathetic and inspired perspective, not denying the heartache, but finding joy and strength in their shared experience.

ThatDawnMarie ,

A podcast with heart 💜

Sharing vital information not only for caregivers but for the friends and the family members of the caregivers. Explaining the “compassion fatigue” really highlights the support that is needed from out government. Support not only in the race for the cure but also to help the day by day fight these caregivers go through.

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