1 hr 13 min
9. Huntington's Disease ft. Ashley Pesi R is for Rare
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- Health & Fitness
This week's episode features Ashley Pesi, a social worker at the HDSA National Youth Alliance, a PhD student, a mom, and a rare disease patient! Both she and her mom have Huntington's Disease, which is a genetic, neurodegenerative disease that is said to be a combination of ALS, Alzheimer's, and Parkinson's. Ashley discusses the reality of never really accepting a diagnosis, the welcoming embrace of the HD community, her and her mom's diagnosis stories, family planning, and much more!
Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! Leave a review letting me know what you think about the podcast, and share the podcast on social media (you can post episodes from Spotify to your Instagram story)!
Huntington's Disease Society of America - https://hdsa.org
HDSA's National Youth Alliance - http://nya.hdsa.org
Follow me on Instagram - @risforrarepodcast
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Send in a voice message: https://podcasters.spotify.com/pod/show/annie-watson/message
This week's episode features Ashley Pesi, a social worker at the HDSA National Youth Alliance, a PhD student, a mom, and a rare disease patient! Both she and her mom have Huntington's Disease, which is a genetic, neurodegenerative disease that is said to be a combination of ALS, Alzheimer's, and Parkinson's. Ashley discusses the reality of never really accepting a diagnosis, the welcoming embrace of the HD community, her and her mom's diagnosis stories, family planning, and much more!
Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! Leave a review letting me know what you think about the podcast, and share the podcast on social media (you can post episodes from Spotify to your Instagram story)!
Huntington's Disease Society of America - https://hdsa.org
HDSA's National Youth Alliance - http://nya.hdsa.org
Follow me on Instagram - @risforrarepodcast
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Send in a voice message: https://podcasters.spotify.com/pod/show/annie-watson/message
1 hr 13 min