122 episodes
Remember Me Remember Me Podcast
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- Society & Culture
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5.0 • 82 Ratings
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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
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BONUS: Understanding Different Aspects of FTD Research with Dr. Irwin and Dr. Massimo
Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8!
In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center.
Some of the questions we ask:
-What are the different types of research? Pharmacological vs. not?
-How does brain donation support research?
-How do we make research more accessible?
Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!
Check out the companion blog post for this episode which can be read here full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs!
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We want to send big love to the entire Penn FTD Center Team.
To sign up for our e-mail visit our website remembermeftd.com.
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com Thank you for supporting our work and for supporting the FTD community.
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Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support -
BONUS: Understanding Clinical Trials for FTD with Dahlia Kamel, Penn FTD Center
Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8!
In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center.
Some of the questions we ask:
-What is a clinical trial?
-What do the different phases mean?
-What are the considerations for families? Benefit vs. Burden
Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!
Check out the companion blog post for this episode which can be read here full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs!
--
We want to send big love to the entire Penn FTD Center Team.
To sign up for our e-mail visit our website remembermeftd.com.
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com Thank you for supporting our work and for supporting the FTD community.
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Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support -
Season Finale: In Conclusion...with Rachael + Maria
In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end.
And stay in touch, follow us on IG, and keep up to date on all things RM. You never know when you may get an encore *cough* bonus *cough* episode or two...
Thank you all for your support and love. Sincerely, R+M
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We want to thank the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
For more support, resources, events, and all things RM, check out our website www.remembermeftd.com
Special thank you to The Association for Frontotemporal Degeneration for their collaboration and support of our blogs this season! You can read up on all the important information + resources we curated together here.
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
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Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support -
Understanding Guardianship, Power of Attorney + More with Kate Lietz, MSW, LSW
This week we talk all about Guardianship, Power of Attorney, Long Term Care... and other "scary" and confusing terms that can come up when planning care for your loved one. All with the help of Kate, a social worker at the Penn FTD Center.
But before that, we dive into our friend Keri's personal experience getting Guardianship for her father, Mark. We recorded this interview last fall, and in February, Mark passed away after a very long journey with FTD.
We want to take a minute to acknowledge Keri for the amazing job she did caring for her dad...all while being a wife, raising her little kids and being a fierce FTD advocate. You're a superhero, Keri.
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We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
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Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support -
Disease Trajectory with Lauren Massimo, PhD, CRNP, Co-Director of the Penn FTD Center
Are there stages of FTD? What can you "expect"? This week we walk through disease trajectory with Dr. Lauren Massimo (also featured on Episode 2 - Understanding Apathy).
Dr. Massimo breaks down what we know, and how she likes to guide families through these discussions.
And this week's personal stories come from our friends Lauren and Michelle from the Sister Project. Hear their stories told on Season 1 episodes "June" and "June Pt. 2.
This episode is dedicated to June. xx
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We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
---
Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support -
Understanding Hyperorality and Alcohol Use with Dr. Sara Manning, Penn FTD Center
This episode revolves around the symptoms of hyperorality -- with a focus on the very common symptom of alcohol use (and abuse).
Have a listen as the story meets the science with the lovely Dr. Sara Manning.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
---
Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Customer Reviews
The best therapy at home
I found Remember me podcast shortly after my husband was diagnosed. As I listened to a few stories, I felt such relief to know that I was not alone in this terrible experience with FTD. With their charismatic personalities and soothing voices, Rachel and Maria helped me get through those early, rough days. This podcast is a “must listen” for anyone who has a loved one with FTD.
So needed..
So I stumbled on this almost exactly two years ago to the day. It was during a time when I was struggling, heartbroken and overwhelmed in my newfound role as a caregiver to my mom. My mom was young and I had never heard of FTD before. I even submitted a request to share my story. Maria and Rachel interviewed me, and my mom even made an appearance on camera. Even though it never aired in an episode, I appreciated the time to talk with two people who fully understood. I continued to listen, and those episodes carried me through those really difficult times. They also helped me find some joy throughout that journey. About 6 months after the the interview with them, my mom passed away. The grief episodes really were so relatable.
Apathy podcast
This podcast is so relatable! Thank you once again for sharing your stories, so those of us with loved ones with FTD do not feel so alone. This might be a place where if someone had a loved one who was newly diagnosed I would say start here! This was beautifully communicated….and probably one of the most difficult parts of FTD. Grateful for all your work!
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