The Pituitary World News Podcast

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  • 4.9(8개의 평가)
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The Pituitary World News Podcast

Knowledge and information are critical tools to affect early diagnosis in pituitary disease. Join Dr. Lewis Blevins and Jorge D Faccinetti cofounders, as they navigate the wonders and complexities of pituitary conditions. Each episode brings conversations with information and experiences from expert professionals and people living with these challenging disorders.

  1. 2월 27일

    Acromegaly: a discussion about psychological and emotional health support initiatives

    Today's podcast is about an important Chiesi Rare Diseases initiative to learn more about the psychological, social, and emotional health issues facing acromegaly patients.  We talked to Stuart Siedman, Chiesi's Vice President of advocacy.  Stuart has an extensive background in rare diseases and a personal connection as an advocate.  This is an important subject. We hope you will help by participating in the survey.  Click here to take the survey.

    33분

  2. 1월 7일

    S11E1: Two leading acromegaly experts discuss promising treatment options

    In today's podcast, we are excited to welcome Dr. Joanna Spencer-Segal, a research assistant professor at the Michigan Neuroscience Institute and an assistant professor in the Department of Internal Medicine, Division of Metabolism, Endocrinology, and Diabetes at the University of Michigan. She joins Dr. Lewis Blevins and me to discuss the promising new treatment options for acromegaly. Our conversation delves into the latest therapies, the challenges faced by practitioners, and the groundbreaking developments nearing final approval that could soon bring more exciting options to those living with this complex condition. You don't want to miss this insightful discussion!

    34분

  3. 2024. 11. 14.

    S10E8: Podcast series with industry leaders: meet Dr. Scott Pescatore, Head of Global Head of Global Operations at Recordati Rare Diseases.

    I am pleased to welcome Dr. Scott Pescatore to the Pituitary Podcast.  In today's podcast, we discuss some of the work being done in the pituitary and adrenal space.  Dr. Pescatore's - and other industry leaders we've featured on the Pituitary Podcasts - opinions and points of view are essential to developing current and future therapies and potential new treatments affecting access to medications for pituitary disease.  By and large, these are the people who make the ultimate decisions on what medications are brought to market and how they support the people who need those therapies.  We are delighted to bring you Dr. Pescatore's perspectives. Don't miss this fascinating discussion.   Available Dr. Lewis Blevins new book Cushing's; a comprehensive guide to understanding a devastating disease.  Click here to buy your copy today

    37분

  4. 2024. 07. 11.

    S10E7: A conversation with Recordati's Dr. Mario Maldonado

    Today's podcast features my chat with Dr. Mario Maldonado, Head of Development and Global Endocrinology atRecordati Rare Diseases.  Dr. Maldonado brings a wealth of experience and a great perspective on drug development. He was involved in developing both pasireotide and osilodrostat, two essential compounds used in drugs to treat Cushing's.   Listen to this fascinating talk with one of the most dynamic experts in endocrine drug development today. He talks about endocrinology, the science of cortisol production, the art and science of endocrine medicine, and the opportunities for new drugs and therapies in the US and Europe.  We also focused on the findings from a Recordati new study, LINC-7,  - read more about the study here -  potentially leading to new indications (uses) for osilodrostat (Isturisa®). Click here for more information and content on Cushing's and hypercortisolism from Pituitary World News. Now available, Dr. Lewis Blevins new book "Cushing's; a comprehensive guide to understanding a devastating disease".  Click here to buy your copy today or click on the book graphic below.

    39분

  5. 2024. 06. 11.

    S10E6: Mental Health challenges and opportunities in pituitary disease

    Mental health is an ongoing challenge for people dealing with Pituitary conditions, from brain fog to anxiety to downright depression. These and other emotional issues are some of the most talked about and commonly related when people talk about what it's like to live with one of these devastating conditions.  Today's podcast brings together two leading experts in mental health and pituitary disease for an in-depth round-table discussion of mental and emotional issues that affect people daily.  Click here for more helpful articles on mental and emotional health.

    46분

  6. 2024. 04. 29.

    S10E5: The FDA listens to acromegaly patients

    Today's podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications.  Our conversation focuses on the original meeting held in 2021 and a recent listening session where the AC provided additional feedback to the FDA.  These meetings help ensure the FDA considers patient's experiences, needs, and expectations as they provide drug development guidance to pharmaceutical companies.  You can read the original report here. Jill also briefly mentioned during our chat the "Faces of Hope" initiative they undertook a few years ago.  Here's a link to that photographic essay.  Worth a look!

    30분

  7. 2024. 04. 08.

    S10E4: Amplifying knowledge of Cushing's; every day, every month, every year.

    On today's podcast and  Cushing's awareness day and month, we bring you a few excerpts from our soon-to-be-released new book on Cushing's. The book's author and Pituitary World News cofounder, Dr. Lewis Blevins, reads from a few selected chapters to give insight into the book's content. We are delighted to present these excerpts to join the many organizations, patients, and healthcare professionals in recognizing Cushing's disease awareness month and day. The book is well underway, with over 37 chapters on the editor's and publisher's desk. The book's release date will be announced shortly. Stay tuned for more information about this exciting project from Pituitary World News. You can read more about the book in this article.

    10분

  8. 2024. 02. 07.

    S10E3: A remarkable acromegaly story of transformation.

    Today’s podcast is about our super athlete friend Risa August and her new book, “The Road Unpaved.”  We first met Risa in 2019 when she came to the Pituitary World News/UCSF patient gathering. We chatted about her experience and and her plans to ride her bike from Canada to Mexico. We followed her herculean effort to ride 1845-plus miles to get from Canada to Mexico on the Pacific Coast Highway, which, as you can imagine, is no picnic for anyone, let alone if you are fighting acromegaly symptoms. It is downright amazing she did it at all. Now, she has written a book about her experience with acromegaly, the ride, and life. Learn more about Risa, her practice, her upcoming plans at Risa Unleashed, read her PWN articles search for Risa or Marisa here, or go to – www.risaaugust.com

    25분
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Knowledge and information are critical tools to affect early diagnosis in pituitary disease. Join Dr. Lewis Blevins and Jorge D Faccinetti cofounders, as they navigate the wonders and complexities of pituitary conditions. Each episode brings conversations with information and experiences from expert professionals and people living with these challenging disorders.

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