20 episodes
The D.A.N.I. Project The D.A.N.I. Project by NeoBilities
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- Education
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5.0 • 6 Ratings
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Greetings Earthling!
Fellow human and disability advocate Tessa Bathauer, LMSW, invites you to tune in each week as we attempt to explore a galaxy filled with disabilities.
This broadcast is classified as The D.A.N.I Project is our way of attempting to enlighten earthlings, like yourself, about the complexities of living with a disability in your world. In this transmission, the universe awaits you! Throughout our exploration, we will amplify the voices of magnetic humans and illuminate the experiences of those living with disabilities.
Our journey will transport us into a universe of disability-centered topics such as disability history, personal accounts, current events, pop culture, advocacy, social justice, and much more.
We hope you tune into our frequency!
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Jay Trivedi | A Personal Account of Social Security Disability and Health Insurance
Hey there Earthlings!
Today we are beaming up rare disease warrior and advocate Jay Trivedi. In this episode, Jay shares his story of living with a rare disease called Congenital Central Hypoventilation Syndrome (CCHS). Jay's story sheds light on the financial implications of being disabled, the struggles of government benefits, and how social issues impact those with disabilities.
Jay's Bio:
My name is Jay, and I am currently 30 years old. I was diagnosed at birth with Congenital Central Hypoventilation Syndrome (CCHS). CCHS impacts our respiratory system and requires a mechanical ventilator when we sleep since we can't breathe normally. I have Bachelors's and an Associate degree in Business Administration. I work as Front End Team Member at Walmart. Also, I advocate for CCHS Family Network Inc.
Jay's Information
Facebook: Jay Trivedi
Instagram: Jt.trivedi
LinkedIn: Jay Trivedi
Keep track of our intergalactic
explorations by following us on The DANI. Project & NeoBilities Socials:
Patreon: https://www.patreon.com/thedaniproject
Instagram: neobilities
Twitter: BilitiesNeo
Facebook: NeoBilities
Episode Transcript: Coming Soon
*This podcast is for educational and entertainment purposes only. NeoBilities LLC. -
Nick Smit | Creating Your Own Destiny Through Purposeful Action
Hey there Earthlings!
Today we are beaming up the Rebel Ninja, Nick Smit. In this episode, Nick and Tessa explore empowerment, entrepreneurship, and creating your own destiny through purposeful action.
Imagine a world in which people are self-motivated to achieve what they are truly capable of; A world where people don't hide behind masks but rather embrace authenticity; A world that is not only capable of change but grows from it. A world that can dance to its destiny. Our next speaker is definitely a rebel ninja with many titles – A teacher and mentor; A professional speaker and entrepreneur and even a dancer. He has presented a variety of workshops and alike, to an array of audiences, including universities and local and international companies. Most relate to disability advocacy, awareness and inclusion; the power of the mind and overcoming challenges. Joining us today is an award-winning speaker who activates, impacts and moves people to make these imaginings a reality.
Nick's Information
Website https://www.therebelninja.com
Instagram: the.rebel.ninja
Facebook: https://www.facebook.com/therebelninja
Youtube: Coming Soon
Keep track of our intergalactic
explorations by following us on The DANI. Project & NeoBilities Socials:
Patreon: https://www.patreon.com/thedaniproject
Instagram: neobilities
Twitter: BilitiesNeo
Facebook: NeoBilities
Episode Transcript: Coming Soon
*This podcast is for educational and entertainment purposes only. NeoBilities LLC. -
Shabnam Rakhiba | Getting Real about Chronic Illness and Disabilities
Hey there Earthlings!
Today we are beaming up the chronic illness warrior Shabnam Rakhiba, GMBPsS, ACT.Accred.(AAAC). Shabnam is an empowerment and resilience coach for women with chronic illness, pain, and disability. Founder of Thorns & Roses coaching. Masters in Psychology. Qualified Life Coach, an Accredited practitioner of Acceptance and commitment therapy (third-wave CBT).
This episode explores what it's like to live with chronic illness and disabilities. We dive into tricky subjects including: toxic positivity, navigating relationships with chronic illness, and honoring the emotional journey of living with chronic illness and disabilities.
Shabnam's Bio:
For 13 years (since my early twenties), I have lived with idiopathic chronic pain, with the latest plausible diagnoses being endometriosis and fibromyalgia. Throughout much of my adult life, I have been through it all – misdiagnoses, failed treatments and surgery, health-related anxiety, suicidal thoughts, being bed-ridden, and losing career prospects. Despite it all, I fought – and today I have expanded my understanding of wellness beyond the physical aspect to include emotional, psychosocial and spiritual healing. Wellness – feeling good in my skin, in body and spirit – is now my priority. Even though I still live with incomprehensible chronic pain after trying a plethora of allopathic and naturopathic protocols, I am now at peace, happy and successful. I thrive despite the pain, using a variety of psychological and practical strategies. As an empowerment and resilience coach, I help other women living with chronic pain and illness look beyond physical symptoms and take a holistic view of their healing. My practice is grounded in mindfulness, compassion, and Acceptance. I have worked with women with cancer, reproductive health challenges, autoimmune disease as well as congenital disorders. I am a co-author of the upcoming book 'Healing Chronic Pain.' My research manuscript on the lived experience of British South Asian women with endometriosis is also currently being prepared for publication in a peer-reviewed medical journal.
Shabnam's Information
Website: www.thornsandrosescoaching.com
Instagram: Shabnam_Rakhiba
Facebook: Unapologetic Women Collective-Chronic Illness Support
Keep track of our intergalactic
explorations by following us on The DANI. Project & NeoBilities Socials:
Website: neobilities.com
Instagram: neobilities
Facebook: NeoBilities
Twitter: BilitiesNeo
Patreon: https://www.patreon.com/thedaniproject
Episode Transcript: Coming Soon
*This podcast is for educational and entertainment purposes only. NeoBilities LLC. -
Nico Meyering | Becoming a Better Disability Advocate and Ally
Hey there Earthlings!
Today we are beaming up the disability advocate Nico Meyering. In this episode, we discuss how to be a disabled advocate, what it means to be a disabled ally, and what allyship and advocacy look like in different settings.
Nico Meyering has lived in New York, California, Texas, and Pennsylvania. He lives with Congenital Central Hypoventilation Syndrome, a rare nervous system disability with under 2000 cases globally. From 2015 to 2021, Nico was on the board of the CCHS Family Network and has recently launched a series of virtual panel discussions featuring members of the CCHS community. Nico served in AmeriCorps from 2014-2016 and is currently the co-chair for the Philadelphia AmeriCorps Alumni chapter board. Nico is a member of the Philadelphia Mayor's Commission for People with Disabilities, a founding member of the Diversability Leadership Collective, and a member of the National Disability Mentoring Hall of Fame. He has been awarded the Presidential Volunteer Service Award twice. He graduated from Binghamton University in 2013 with his MPA.
Nicos's Information
YouTubehttps: Nico Meyering
Instagram: Namestartswithn
Twitter: Namestartswithn
Mentions:
NORD: https://rarediseases.org
CCHS Family Network: https://www.cchsnetwork.org
Chronically Capable: https://www.wearecapable.org//
Global Genes: https://globalgenes.org
Diversiblitiy: https://mydiversability.com
National Council for Independent Living: https://ncil.org
Please keep track of our intergalactic
explorations by following us on The DANI. Project & NeoBilities Socials:
Patreon: https://www.patreon.com/thedaniproject
Instagram: neobilities
Twitter: BilitiesNeo
Facebook: NeoBilities
Episode Transcript: Coming Soon
*This podcast is for educational and entertainment purposes only. NeoBilities LLC. -
James Geiger | In Pursuit of Creativity in an Able-bodied World
Hey there Earthlings!
Today we are beaming up the innovative James Geiger M. Ed. In this episode, James and Tessa talk about cerebral palsy, creativity, disability representation, disability language, the Lizzo and Beyonce fiasco, and living in an able-bodied world.
It is no coincidence that James Geiger has an unadulterated appreciation for life. This thirty-wight-year-old graduate of the University of South Florida not only boasts a BA in Theatre Arts and an M. Ed. in Instructional Technology but owns his own business specializing in portrait photography. As a multidimensional artist, James strives to open minds, empower hearts, and rekindle the human spirit through film, photography, and the power of words. Watch out for James Geiger; he might just change your life.
Jame's Information:
LinkedIn: https://www.linkedin.com/in/jgeiger
Instagram: jamesability84
Tik Tok: jamesability84
Please keep track of our intergalactic explorations by following us on The DANI. Project & NeoBilities Socials:
Patreon: https://www.patreon.com/thedaniproject
Instagram: neobilities
Twitter: BilitiesNeo
Facebook: NeoBilities
Episode Transcript: Coming Soon
*This podcast is for educational and entertainment purposes only. NeoBilities LLC. -
Chris Mitchell | A Different Perspective on Disabilities in Personal, Professional, & Romantic Life
Hey there Earthlings!
Today we are beaming up author and host of the Successful and disABLED Podcast Chris Mitchell. Chris has a great sense of humor and a positive outlook on life that will leave you smiling and laughing. In this episode, we explore empowerment, accountability, defining yourself, having a positive attitude, how to be a good ally, and romantic relationships.
This podcast is all about elevating disabled voices and learning new perspectives on disabilities. Chris's unique viewpoints highlight the importance of positivity and feeling empowered despite the ablism those with disabilities may face.
Chris is a disability advocate who focuses on helping others achieve their vision of success. He is the founder of #DefineYourself and a motivational speaker and blogger. Mr. Michelle is a self-published author of "It Doesn't Define Me: How I Rebuilt My Life After Surviving an Ischemic Stroke to My Spinal Cord." His book tells how he built an eBay business after surviving an incomplete spinal cord injury has been shared in Entrepreneur magazine Starting an eBay Business. Chris was listed in the Who's Who in American Junior Colleges and has earned the 2000 Co-disabled employee of the year award.
Chris's Information:
Personal Website: https://thechrismitchell.com
Define Yourself Website: defineyourselfers.com *Coming Soon
Podcast: Successful and disABLED Podcast
Facebook: https://www.facebook.com/IMChrisMitchell/
Twitter: https://twitter.com/imchrismitchell
Instagram: thechrismitchellofdfs
YouTube: https://www.youtube.com/channel/UCU0S5EH8YdD3SUBUHiGwc6A
Keep track of our intergalactic
explorations by following us on The DANI. Project & NeoBilities Socials:
Patreon: https://www.patreon.com/thedaniproject
Instagram: neobilities
Twitter: BilitiesNeo
Facebook: NeoBilities
Episode Transcript: Coming Soon
*This podcast is for educational and entertainment purposes only. NeoBilities LLC.
Customer Reviews
D.A.N.I. Project
Just a quick note to mention how informative this blog site is. These topics and interviews are timely and strike the heart of many subjects that have been overlooked. I hope we who have experienced the stories and felt the need to effect change can get behind this young firebrand and support her efforts.
Thanks for talking about the hard stuff!
I just happened across this podcast and wanted to just say thank you for exploring difficult subjects that are rarely discussed or are taboo in our society. After listening to a few episodes, I feel a bit more educated about some subjects and feel like I am able to interact better with people who have disabilities. I’m excited to see what you have in store for your next topic!
Needed this podcast!
Great podcast and so helpful to hear from other people who are like me!