Lupus: The Expert Series

Lupus Foundation of America
  • 5,0 (27)
  • MEDICINA
Lupus: The Expert Series

The Expert Series is an educational podcast series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Presented by the Lupus Foundation of America, we touch on the daily issues that affect those with lupus: flares, health, medical care, exercise, managing doctor's appointments, diagnosis, and much more.

  1. 7 DE NOV.

    The Expert Series S7E2: Race-free eGFR Calculations and Implications for People Living With Lupus Nephritis

    Drs. Ashira Blazer and Denise Kimbrough discuss the recent removal of the African American/Black race coefficient from the Kidney Donor Profile Index (KDPI) by the Organ Procurement and Transplantation Network (OPTN). Learn about the implications for lupus patients with kidney disease and the potential impacts on health equity. Episode Takeaways: Lupus-related kidney disease (lupus nephritis) disproportionately affects African American/Black, Hispanic, Indigenous, South Asian and Latino/a populations, who face longer transplant wait times due to systemic inequities and social determinants of health. Biases in medical algorithms, such as race-based estimated glomerular filtration rate (eGFR) calculations, can harm patient outcomes. Recent removal of race from eGFR calculations could potentially improve access to transplants for communities where previous opportunities for transplantation were significantly lower. Enhancing education and awareness related to kidney health is essential for addressing these health disparities and improving outcomes. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published. Related Resources: New Policy Will Remove Race, Improve Equity in Transplantation (National Kidney Foundation) Kidney transplant for lupus: Your essential questions answered (LFA) Lupus Nephritis Information Center (LFA) Lupus and the Kidneys (LFA) What is lupus nephritis? (LFA)

    29min

  2. 4 DE MAR.

    The Expert Series S7E1: Lupus Nephritis

    March is Kidney Month! Join us for a conversation with Dr. Brad Rovin, an expert in autoimmune kidney disease, where we talk about lupus nephritis and kidney health for people with lupus.

    43min

  3. 20/11/2023

    The Expert Series S6E6: Lupus and Cancer

    In this episode, we talk with Dr. Sasha Bernatsky, about lupus and cancer, if there’s a link between lupus and cancer, and a new abstract about cancer incidence and risk factors in a large SLE cohort.  Dr. Bernatsky is a rheumatologist, a James McGill professor and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the McGill University Health Centre. Her expertise lies in using ‘big data’ from health services, linked to additional clinical sources of information. Read more about lupus facts and statistics Learn how doctors diagnose lupus FAQs about participating in clinical trials Help expand lupus research through RAY (Research Accelerated by You) Read the mentioned abstract: Updated analyses  of cancer incidence and risk factors in a large international SLE cohort SUBSCRIBE to receive an email update when new episodes of The Expert Series are released.

    15min

  4. 19/10/2023

    The Expert Series S6E5: Stress and stress management

    In this episode of the Expert Series, we speak with Dr. Christie Bartels about stress and stress management for people with lupus. Dr. Bartels covers how to manage stress, resources to manage stress and the difference between stress symptoms and lupus symptoms.  Dr. Bartels is Division Chief of Rheumatology at the University of Wisconsin School of Medicine and Public Health and Chair of the American College of Rheumatology (ACR) RISE Registry Health IT Committee. As a rheumatologist health services and implementation researcher, Bartels’ work aims to improve cardiovascular health and reduce disparities among patients with lupus and rheumatic diseases.  For more resources on stress and stress management: Managing stress when you have lupus Managing mental health with lupus Find Support Near You Other resources mentioned in the episode SELF Insight Timer Arthritis Foundation’s Walk with Ease program

    20min

  5. 21/09/2023

    The Expert Series S6E4: Lupus and teens

    In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older.  Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded by the Lupus Foundation of America, the Rheumatology Research Foundation, the Childhood Arthritis and Rheumatology Research Alliance (CARRA)/ Arthritis Foundation, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH. Resources: Find out more about lupus and teens School survival guide for teens with lupus Helping teens learn to cope with lupus SELF app, for people 18+ in the U.S. Mentioned resources: Take a pain check, a chronic disease podcast meant to support youth with rheumatic diseases

    41min

  6. 21/06/2023

    TES Bonus Episode: The Awakening: When lupus looks like mental illness

    In this episode of The Expert Series, Dr. Anca Askanase, professor of medicine, the founder and director of Lupus Center and director of Rheumatology Clinical Trials at the Division of Rheumatology of the Columbia University Irving Medical Center in New York City, will be sharing about her role in the successful treatment of a catatonic woman who awakened after 20 years. Read the article on April’s case and others on the Washington Post, How autoimmune disease can attack the brain, cause psychiatric symptoms Lupus resources: Coping with the cognitive symptoms of lupus What is inflammation? How lupus affects the body

    23min

  7. 15/06/2023

    The Expert Series S6E3: Lupus in the LGBTQ+ Communities

    In this episode, we talk with Dr. Jillian Rose-Smith, vice president and chief equity officer at the Hospital for the Special Surgery, about lupus in the LGBTQ+ communities. We discuss what it means to have gender affirming care, how to protect yourself from implicit bias in the healthcare space and  how to get the support you need. Review these resources to learn more: What role do sex and gender play in lupus? Lupus facts and statistics What is self-advocacy Speak with a health educator Fenway Health - A health organization dedicated to helping LGBTQ+ communities SUBSCRIBE to receive an email update when new episodes of The Expert Series are released.

    32min

  8. 20/04/2023

    The Expert Series S6E2: Visible Symptoms of Lupus

    In this month’s episode, we learn more about visible symptoms of lupus with Dr. May Choi. Dr. Choi will discuss the difference between visible and invisible symptoms, treatment options, and ways to cope with visible manifestations of lupus. Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary. Resources Check out our previous episode about invisible symptoms with Dr. Cynthia Aranow Use this sheet to keep track of your lupus symptoms Learn how lupus affects the body

    18min
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Classificações e avaliações

5
de 5
27 avaliações

Sobre

The Expert Series is an educational podcast series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Presented by the Lupus Foundation of America, we touch on the daily issues that affect those with lupus: flares, health, medical care, exercise, managing doctor's appointments, diagnosis, and much more.

Informações

  • Criado por
    Lupus Foundation of America
  • Anos de atividade
    2020 - 2024
  • Episódios
    46
  • Classificação
    Livre
  • Copyright
    © Lupus Foundation of America
  • Site do podcast
    Lupus: The Expert Series

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