148 episodes

A podcast about invisible conditions and chronic invisible illness, featuring interviews with survivors, their loved ones, advocates, and experts in varied healing modalities, from medical to holistic. Hosted by Lauren Freedman, a voice actor, writer, and activist, who lives with Hashimoto’s disease and sleep disorders, Uninvisible uncovers real stories of survival and humanity – complete with laughter. In truth and with candor, we offer solutions – and challenge the world to change.

Uninvisible Pod with Lauren Freedman Lauren Freedman

    • Health & Fitness
    • 5.0 • 95 Ratings

A podcast about invisible conditions and chronic invisible illness, featuring interviews with survivors, their loved ones, advocates, and experts in varied healing modalities, from medical to holistic. Hosted by Lauren Freedman, a voice actor, writer, and activist, who lives with Hashimoto’s disease and sleep disorders, Uninvisible uncovers real stories of survival and humanity – complete with laughter. In truth and with candor, we offer solutions – and challenge the world to change.

    148: Getting Sexy with Andrew Gurza

    148: Getting Sexy with Andrew Gurza

    Andrew Gurza is an award winning Disability Awareness Consultant and the Chief Disability Officer and Co-founder of Bump’n, a sex toy company for and by disabled people. Andrew uses they/he pronouns and identifies proudly as disabled. Their work has been featured on BBC, CBC, Daily Xtra, Gay Times UK, Huffington Post, The Advocate, Everyday Feminism, Mashable, Out.com, and several anthologies. He was the subject of an award-winning National Film Board of Canada Documentary, Picture This. Andrew has guested on a number of podcasts, including Dan Savage’s Savage Love and Cameron Esposito’s Queery. He has spoken all over the world on sex, disability and what it means to be a Queer Cripple. He is also the host of Disability After Dark: The Podcast Shining a Bright Light on Disability Stories, which won a Canadian Podcast Award in 2021, was a Queerty Award nominee, and was chosen as an Honoree at the 2020 Webby Awards. The show is available on all platforms. Andrew  is also the creator of the viral hashtag #DisabledPeopleAreHot. You can find out more about Andrew by going to www.andrewgurza.com and connecting via social media @andrewgurza_.
    Tune in as Andrew shares:
    how they were diagnosed with cerebral palsy (CP) at the age of one and a half their more recent diagnosis of IBS, and how it has presented its own challenges how COVID has affected their sex life, and why they hire sex workers where they can see room for disability discourse to grow how they emotionally process ableism from day-to-day the nuances of caregiving, and how bad management can lead to dehumanizing experiences for patients how care management can be improved from the top-down how they have cultivated their mindset — and how their #1 advocate, their mom, was key in encouraging them to develop a thick skin and a sense of humor a nuanced conversation about accessibility — and why it’s more difficult for disabled creators to create accessible content, even if we’d like to how we can work to get out of the public health crisis of bias in healthcare: by hiring those of us who are historically excluded to positions of power, to reshape the system from the top-down why and how they were inspired to create Bump’n — the world’s first disability-driven sex toy

    • 1 hr 39 min
    147: Bipolar Señorita Dailyn Santana

    147: Bipolar Señorita Dailyn Santana

    Dailyn Santana is a first-generation Cuban-American actress, keynote speaker, spoken word poet, and mental health advocate. Her work focuses on eradicating mental health stigma and her personal experience of living with bipolar 1 disorder, depression, and anxiety. Her mission is to be an example that those living with mental illness CAN live a happy, fulfilling life. She believes that living in your truth is the most powerful tool you can have, and performs her spoken word poetry at events and schools/universities across the country. Her work has been featured on or at The Dr. Oz Show, ALL DEF Poetry, Nuyorican Poets Cafe, Swaay Magazine, I and I Outfitters, We All Grow Latina, and Spiritú, and she has collaborated with Mitú, the BeVocal SpeakUp for Mental Health initiative, BeRemarkable Foundation, The Womens Empowerment Network, the American Foundation for Suicide Prevention, and the National Alliance for Mental Illness.
    Tune in as Dailyn shares:
    when she first experienced mania and psychosis — but that she lived without diagnosis for at least a decade how she was haunted by stigma and shame from the early days of her diagnosis how her diagnosis affected her relationship to her creative outlet: poetry the role her cultural background played in her relationship to her diagnosis and care why she came out of her “bipolar closet” how she interviews potential practitioners, and her tips for others looking for a new therapist why her diagnosis doesn’t define her how she became a mental health advocate what a “warm line” is, and how helpful it can be (see the links in show notes for some directories!) why asking for help is a sign of strength

    • 1 hr
    146: SIBO Sisters and Hashi Posse Unite — It’s Phoebe Lapine!

    146: SIBO Sisters and Hashi Posse Unite — It’s Phoebe Lapine!

    Phoebe Lapine is a food and health writer, gluten-free chef, culinary instructor, recipe developer, wellness blogger, Hashimoto's advocate and speaker, and the voice behind the award-winning blog Feed Me Phoebe. Named by Women’s Health Magazine as the top nutrition read of 2017, Phoebe’s debut memoir, The Wellness Project, chronicles her journey with the autoimmune disease, Hashimoto’s thyroiditis. She is the host of the SIBO Made Simple podcast and author of the new book by the same name which helps those newly diagnosed or chronically fighting small intestinal bacterial overgrowth. Phoebe’s work has appeared in Food & Wine, Marie Claire, SELF, Glamour, Cosmopolitan and Mind Body Green, who named her one of 100 Women to Watch in Wellness. She was born and raised in NYC — where she continues to live and eat.
    Tune in as Phoebe shares:
    how she was first diagnosed with Hashimoto’s thyroiditis how her health has impacted her relationship with food how much work it takes to be well, especially when one is impacted by chronic illness what SIBO is, and how she was diagnosed how the symptoms of SIBO can manifest in the body about the state of SIBO research and clinical practice what it was like to humble herself with her own advice after writing The Wellness Project how big a role stress can play as a root cause in chronic illness about the close correlation between IBS, SIBO, and autoimmune disease what a low-FODMAP diet is all about how she accesses and optimizes her own wellness what she thinks the next frontier of gut health will be

    • 57 min
    145: Crafted to Thrive: Mindset Business Coach & Spoonie Nikita Williams

    145: Crafted to Thrive: Mindset Business Coach & Spoonie Nikita Williams

    Nikita Williams is a mindset business coach and the host of the podcast, She’s Crafted to Thrive. She was diagnosed with endometriosis in 2009 and fibromyalgia in 2010. These diagnoses inspired her to use the training she received from previous jobs to jump-start her career as a business coach. Nikita learned that having a chronic illness did not limit her potential. In fact, it helped her to see the possibilities for herself and for her clients. Her aim is to help all creative women — especially those who live with chronic illness — to go from feeling limited to limitless so that they can create a life and business that thrives, in their unique way.
    Tune in as Nikita shares:
    that she first noticed debilitating pain on her honeymoon, but noticed irregularities in her cycle from its appearance at the age of 15 the learning curve of “not knowing what you don’t know” that she’s been additionally diagnosed with PCOS (polycystic ovarian syndrome), adenomyosis, IC (interstitial cystitis), and vestibulitis (which she now has as a result of medical trauma caused by a healthcare provider) why she decided to take a year off all medications that she has never been offered mental health support for her conditions how she discovered she was a highly sensitive person (HSP) why she only sees female doctors how seeing a urogynecologist was a life-changing experience for her why self-advocacy is so vitally important why finding a way to cope with her pain has always been her first priority — and yes, even before the question of her fertility that the depth of her chronic pain and surgical intervention forced her to face her mortality how essential oils and EFT (Emotional Freedom Technique) have helped her manage her pain and anxiety why her hysterectomy triggered depression and anxiety how sharing about her chronic illnesses helped her find healing why she chooses to be intentional with her energy that in order to embrace your future, you have to face your past

    • 1 hr 20 min
    144: Endometriosis & Autism Advocate Kendall Rayburn

    144: Endometriosis & Autism Advocate Kendall Rayburn

    Originally launched as a means of sharing her craft projects, Kendall Rayburn’s namesake blog has since evolved into her passionate full-time occupation: a place to pour her heart into content across the lifestyle spectrum (see: plus-size fashion, family-friendly travel and activities, home decor, recipes, and more). It has also become a powerful vehicle for sharing her struggles with endometriosis — all with the token contagious positivity that’s garnered her a devoted following. Add to that her candid takes on being a Spoonie mom to son Wyatt, who lives with autism, and you’ve got an oasis of advocacy and lifestyle like no other. We dare you not to fall in love with the happy, hectic world of Kendall!
    Tune in as Kendall shares:
    how she was gaslighted from an early age to believe her period pain was normal that she became aware her son was on the autism spectrum when he was 18 months old that she also lives with anxiety, depression, and PTSD following adverse childhood experiences that she was diagnosed with endometriosis at 22, and told by her doctors that she was so far advanced in her disease that she needed to consider starting a family immediately if she ever wanted to have one that the pain of her diagnosis forced her to finish college online that after her second child, she was offered a hysterectomy for her pain — and that by the age of 26, she was undergoing menopause that to this day, she has had eight surgeries for her pain — and it is still debilitating why she regrets her hysterectomy that she was never offered therapy as she navigated both her diagnosis and her son’s — and why it plays such an important role in her life now how medical research has failed her as a woman living with stage IV endometriosis how she manages her pain now what her son has taught her about resilience her advice for others living with chronic pain and/or advocating for others

    • 1 hr 23 min
    143: Dr. Akilah Cadet, DEIB Specialist Living with Rare Heart Disease & hEDS

    143: Dr. Akilah Cadet, DEIB Specialist Living with Rare Heart Disease & hEDS

    Dr. Akilah Cadet is the Founder and CEO of Change Cadet consulting firm, which offers a broad array of anti-racism and diversity services including strategic planning, crisis rebuilding, advising, executive coaching, and facilitation. Cadet (her last name) is a French term that means soldier. As it's often an uphill battle for BIPOC, women, and historically excluded communities to achieve success and equity in the workplace, Change Cadet prepares soldiers of change to overcome these continuous battles so individuals and companies can thrive. Akilah has 15+ years of experience working in various organizations, with both private and public sector companies. She literally has all the degrees (Bachelor of Science in Health Education in Community Based Public Health, a Master of Public Health, and a Doctorate of Health Sciences in Leadership and Organizational Behavior), lives in Oakland, CA, has a rare heart condition, and is a proud Beyoncé advocate…and has just been diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS). And on top of all that, she’s the host of the Change Cadet Podcast!
    Tune in as Dr. Cadet shares:
    how her early symptoms first manifested the truth about accurate diagnosis: “in order to be diagnosed, you have to be misdiagnosed” how she was diagnosed with coronary artery spasms, or Prinzmetal’s angina; as well as inappropriate sinus tachycardia, pre-atrial contractions (irregular heartbeat), and orthostatic hypertension how she faced her own mortality during the process of being diagnosed what her long-term care looks like with regard to heart health: ER visits and the risk of heart attack the criteria she holds her care providers to why she is still waiting for genetic testing to determine her hEDS type how she manages her symptoms day-to-day — and how so much of that management involves clear communication what true energy management looks like for her why the “ER is nothing but trauma for [her]” — and why healthcare in America is such a mess a conversation about the concepts of intersectionality and inspiration in chronic illness and disability identities her advice for Spoonies and their loved ones

    • 1 hr 2 min

Customer Reviews

5.0 out of 5
95 Ratings

95 Ratings

Curvy Girl Shel'le ,

Awesome

This podcast was informative, knowledgeable and a game changer for those who are living with any type of disability.

Kimmy E B ,

Powerful storytelling

Lauren is an excellent interviewer, and does an incredible job of bringing her guests’ stories to life. Listening to this podcast has opened my eyes to so many things that could be going on behind the scenes for people. Highly recommend!

Charity51 ,

Wow! Finally not alone...

I really like this podcast with Lauren. I have epilepsy and a hearing problem and connect on multiple levels with this podcast. Thanks so much-keep this update. -Rosaria Kozar LWS

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