138 episodes

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount!
Visit: www.WeHaveAFace.org/Radio for more information.

WeHaveAVoice WeHaveAVoice

    • Education
    • 5.0 • 4 Ratings

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount!
Visit: www.WeHaveAFace.org/Radio for more information.

    WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!

    WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!

    Please listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-year waiting period for Medicare and SSDI! We must communicate the dire need of these medical supports and services to the US Congress!

    • 31 min
    WeHaveAVoice Radio - HD Warrior, John Howard Poetry!

    WeHaveAVoice Radio - HD Warrior, John Howard Poetry!

    #WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howard! John recites his powerful poetry! #iHeartRadio #LetsTalkAboutHD #YouAreLoved

    • 8 min
    WeHaveAFace PSA - HDSA: HD Parity Act with Jennifer Simpson!

    WeHaveAFace PSA - HDSA: HD Parity Act with Jennifer Simpson!

    On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act! ALS just recently made drastic changes to the description of what ALS is. They furthered their efforts by having unanimous consent by Congress to pass their bill for patients to obtain immediate access to benefits. The HDSA wishes to have the HD Parity Act pass by unanimous consent by Congress for individuals with Huntington's disease to receive the same benefits as our friends with ALS. Act today! - Join the HD Acvocacy Act: https://cqrcengage.com/hdsa/Caucus

    • 3 min
    Kas Rodriguez: A Juvenile Huntington's Disease Story of Daniel

    Kas Rodriguez: A Juvenile Huntington's Disease Story of Daniel

    Kas Rodriguez talks about her experience with JHD in regards to her 8 year old son Daniel.

    • 42 min
    Jimmy Pollard - Finding Nana's Smile

    Jimmy Pollard - Finding Nana's Smile

    Jimmy Pollard talks about his new children's book, Finding Nana's Smile

    • 33 min
    James Valvano: Season 1 of WeHaveAFace TV

    James Valvano: Season 1 of WeHaveAFace TV

    Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV

    • 1 hr 4 min

Customer Reviews

5.0 out of 5
4 Ratings

4 Ratings

Emily Nana ,

Great show!

I’m so happy that this show exists. We need to educate the world about Huntington’s disease!

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