Mind Over MRKH

The MRKH podcast
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Mind Over MRKH Podcast

THE MRKH PODCAST Mayer Rokitanksy Küster Hauser Syndrome Bought to you by Ellamae, founder and director of Va Va Womb and MindOverMRKH.org for the MRKH community, by the MRKH community. MRKH is a congenital condition that 1 in 5000 female babies are born with. This podcast is about ALL THINGS MRKH, the people that live with it, the experts that can help us understand our bodies more. Think worldwide MRKH voices. Expect real, honest, raw content with plenty of resources and regular unique episodes! This is a podcast for the community, by the community. Sponsorship: MRKH Connect

  1. Elsie- Dilation and Tiktok Advocacy PART 1

    16/07/2023

    Elsie- Dilation and Tiktok Advocacy PART 1

    THE POD IS BACK! With some older episodes that I have never got round to editing! Elsie is an amazing advocate of MRKH, having gone viral on TikTok talking all things vaginal dilation! Due to some tech difficulties last year when recording this episode, we will be re-recording some of the later questions and answers. I am in so much awe of Elsie's advocacy journey online, she will be helping so many people! vavawomb.com/mindovermrkh

    33 min
  2. Frost Martin - MRKH Documentary

    28/04/2023

    Frost Martin - MRKH Documentary

    WE ARE BACK WITH AN MRKH POWER HOUSE! A big welcome to Frost! During her youth, she performed opera at Carnegie Hall, Lincoln Center, Sydney Opera House, and others, as the youngest member in the concert ensemble of Grammy Award winning Choir, Brooklyn Youth Chorus. Now, she lives in Brooklyn, New York, as a second year student at PRATT Institute, obtaining her Film BFA and minor in entrepreneurship while actively pursuing several projects, such as her LLC freelance company. Born in San Francisco, raised in New York City. Global Traveler, Avid explorer, and multilingual. She aspires after the works of Barbara Kopple and Agnes Varda, with a strong interest in documentary filmmaking. Follow the documentary @mrkhdocumentary and Frosts main instagram @frosttmartin. Big thanks to MRKH Connect for sponsoring this Podcast.

    1h 10m
  3. Elizabeth MRKH Nigeria

    09/05/2022

    Elizabeth MRKH Nigeria

    Elizabeth is an MRKH advocate in Nigeria, one of the first women with MRKH in Nigeria to raise awareness and form a support network. Elizabeth is 26 and was only officially diagnosed with MRKH last year. Read a short blog from Elizabeth she did for MRKH Connect here and listen to the full episode to hear her story! This Podcast is sponsored by our wonderful friends @MRKHCONNECT who are raise funds to connect, research and fund MRKH support and awareness.  Listen to our full trailer here!  Find out more about Mind Over MRKH

    52 min

  4. 14/04/2022

    Marianne Woodclark - Womb Transplant Journey

    Sorry about my intro, issue with the sound and will resolve ASAP! An extra special long episode because Marianne has a big story to tell. On this episode we cover: Marianne's diagnosis in the USA and in actual fact, not getting a diagnosis! Being part of the Dallas Womb Transplant trial Being pregnant and giving birth, after growing up without a womb.  Redefining Womanhood throughout the process, and becoming a Mother.  We get to meet a very special guest, her daughter Lydia. And this is a fully candid episode with minor edits for anyone considering womb transplants, picked for trials, to hear an honest, raw account of womb transplants from someone that's been through them. From her voice, not through a media lense. From her heart, not through click bate.  If you have any questions for Marianne, let us know!  This Podcast is sponsored by MRKH Connect

    2h 9m

  5. 08/04/2022

    14- Purbi MRKH India

    Archana AKA Purbi is an MRKH warrior from India. She is the founder of Indian MRKHers Corner and MRKH India Facebook group. She is also a BYMRKH Ambassador representing India Globally. For a living she works at PepsiCo and has 13 years experience in social media analytics, consumer insights and strategic consulting with different companies and industries.  Find out more about Purbi over on Instagram @purbi_mrkh_india Sponsorship: This Podcast is receiving regular sponsorship from our friends and charity MRKH Connect.  Listen to our full intro here MRKH Connect is a UK charity designed to connect those with MRKH and provide support to those with MRKH and their families through events, resources and public outreach to raise awareness for MRKH.  Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like.

    59 min

  6. 30/03/2022

    13- Evie Cliterally The Best - Pleasure & STI's

    Trigger warning: we discuss consent and sexual assault.   "Consider Evie your sexual pleasure fairy godmother" - Zoella  Excited to be speaking to our friend Evangeline (Evie) Plumb, she is a Digital & Creative Strategist + Sex Educator. She has a keen interest in all things pleasure, sex ed and illustration and is qualified in teaching RSE (sex education) through ACET + a proud ambassador for the youth-led charity - Fumble. Evie created Cliterally The Best in July 2020 amid the pandemic in the hope to help others who have also been failed by their sex ed (or lack of) and unlearn all the myths surrounding their bodies and sex in a shame-free way. She was also recently nominated for the Brook & SH24 NHS sexual health awards and has been featured in Forbes magazine for her mental health illustrations! She currently works full-time for the wonderfully sustainable period, sex & bladder care brand, Here We Flo and runs Cliterally The Best as a side hobby! To keep up-to-date with her latest content, follow her on the Sex Positive Instagram + checkout The Sex-Positive Blog for the latest articles. Plus after finding herself allergic to all lubes, Evie created her own all natural, water-based aloe vera lube! Check out this episode for Mind Over MRKH where Evie and Ellamae chat about all things Cliterally The Best, pleasure, orgasms, consent and more!

    60 min
  7. 12 - Joaneva Mwathi MRKH Africa Foundation

    14/03/2022

    12 - Joaneva Mwathi MRKH Africa Foundation

    Episode 12: Joaneva is a woman with MRKH and the founder of MRKH Africa Foundation. She grew up in Kenya and this is a little about her lift with MRKH. After being diagnosed with MRKH as a 23 year old woman, Joaneva began to research MRKH and not long after diagnosis' she was helping others in Kenya to form connections and built her foundation, MRKH Africa.  Joaneva talks about how she felt utterly broken, so much so that to touch her skin would hurt - she was empty and felt alone. She tells us about how faith has healed her, along with connecting with others and climbing her own mountain of advocacy. She tells us what being a woman means to her- so much more than a body! So many beautiful, wise, words. I had shivers and tears as we spoke! Follow Joaneva here on Instagram, and find support in Africa here Sponsorship: This Podcast is receiving regular sponsorship from our friends and charity MRKH Connect.  Listen to our full intro here MRKH Connect is a UK charity designed to connect those with MRKH and provide support to those with MRKH and their families through events, resources and public outreach to raise awareness for MRKH.  Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like.

    59 min
  8. Your Pace DSD- Gabs (MRKH) and Esme (CAIS)

    28/02/2022

    Your Pace DSD- Gabs (MRKH) and Esme (CAIS)

    DSD stands for differences in sex development. MRKH is one type of DSD, but there are hundreds of other variations and people with different DSD (AKA Intersex) traits. Listen in to learn a bit about different types of DSD's and check out the resources below to learn more.  On this episode Ellamae speaks to Gabs and Esme who manage the Instagram community and support page for all types of DSD's called @yourpace.dsd which is managed by U.K. Charity and the most in depth resource for all types of DSD's - DSD Families.  https://www.dsdfamilies.org/charity  Gabs has MRKH and Esme has CAIS Complete Androgen Insensitivity Syndrome, they are working to ensure no one with a DSD feels alone and we can't thank these two DSD warriors enough for coming on to share their personal stories. They work they do is so admirable and I am so glad to have had them on the Pod. Gabs shares what it has been like having a DSD (MRKH Syndrome) and being a black female, she says there has been an additional stigma growing up and lots more representation is needed in the DSD community as to make sure no one feels alone, you must be able to find someone that looks like you so her involvement in advocacy and feeling part of a bigger community after joining with DSD families is so lovely to hear about. Esme shares with us her story of knowing she had a DSD her whole life, she talks about the surgery she had when she was born to growing with confidence as a young girl with CAIS - through relationships, friendships, mental health and more!  Please note- as I am not a medical expert if I have incorrectly explained anything on this Pod please get in touch mindovermrkh@gmail.com and please use DSD families website as your medical resource. Our Podcast is to raise awareness, chat informally and ensure no body feels alone but we are not a medical podcast.  To learn more:  CAIS https://www.nhs.uk/conditions/androgen-insensitivity-syndrome/ MRKH https://www.mindovermrkh.org/mrkhanatomy https://www.mrkh.org.uk/mrkh.html  Turners syndrome https://tss.org.uk/  Other DSD's: https://www.dsdfamilies.org/charity   Sponsorship:  This Podcast is receiving regular sponsorship from our friends and charity MRKH Connect.  Listen to our full intro here MRKH Connect is a UK charity designed to connect those with MRKH and provide support to those with MRKH and their families through events, resources and public outreach to raise awareness for MRKH.  Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like.

    1h 9m
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About

THE MRKH PODCAST Mayer Rokitanksy Küster Hauser Syndrome Bought to you by Ellamae, founder and director of Va Va Womb and MindOverMRKH.org for the MRKH community, by the MRKH community. MRKH is a congenital condition that 1 in 5000 female babies are born with. This podcast is about ALL THINGS MRKH, the people that live with it, the experts that can help us understand our bodies more. Think worldwide MRKH voices. Expect real, honest, raw content with plenty of resources and regular unique episodes! This is a podcast for the community, by the community. Sponsorship: MRKH Connect

Information

  • Creator
    The MRKH podcast
  • Years Active
    2019 - 2023
  • Episodes
    19
  • Rating
    Explicit
  • Copyright
    © The MRKH podcast
  • Show Website
    Mind Over MRKH

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