Schizophrenia: Three Moms in the Trenches Randye Kaye

A new book, Awakenings, has just been released. It describes the journeys of 28 remarkable people who are now thriving despite being diagnosed with SZ. The authors and contributors hope to show that with newer treatments, and also social support and therapy, recovery is possible.
Guests: 
Bethany Yeiser, President of CURESZ Foundation (https://curesz.org/) and co-author of the book. The CURESZ Foundation offers advocacy, information, advice, as well as educational and supportive resources to enhance the understanding of schizophrenia as a treatable neuropsychiatric illness 
Leif Gregersen, from patient to hospital faculty 
Lesley McCuaig, athlete and mental health counselor 
J Peters, author and social worker
Each guest will share their stories, and the moms will ask questions.
Links:
Awakenings Book:
https://a.co/d/9fMt9oz


CURESZ:
https://curesz.org/
Bethany TEDx Talk:
https://youtu.be/iPGd6l76l9A?si=ZZI42ecdh24MxZkS


CURESZ YouTube channel:
https://www.youtube.com/@cureszfoundation7671


Here is Lesley's website:
www.lesleymccuaig.com


Leif's blog:
www.edmontonwriter.com


J Peters' blog
https://mentalhealthaffairs.blog/


Mindy and her book: https://mindygreiling.com/
Randye and her book: https://www.randyekaye.com/
Miriam and her book: https://www.miriam-feldman.com/





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Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Guest: 
Annie Slease, Co-Founder of the Mental Health Literacy Collaborative
Do you have a loved one with Serious Mental Illness?
Do you wonder why it took so long for someone to recognize the symptoms?
Mental Health Literacy would have helped prevent the crises we have dealt with.
The mission of the MHLC is to make evidence-based mental health literacy a foundational part of PK-12 education and communities.
Annie Slease, M.Ed. (she/her) is co-founder and Advocacy Director of the Mental Health Literacy Collaborative (themhlc.org), a national non-profit dedicated to making evidence-based mental health literacy foundational in PK-12 schools and communities.
When her child’s mental health crisis emerged over a dozen years ago, Annie was a classroom teacher unaware of mental health literacy. Inspired by her experience navigating family mental illness without information or support, and eventually navigating the criminal justice system as well, Annie repurposed her 25-year teaching career into advocacy.


We ask:
What is the MHLC doing?
Who are you serving?
What are your priorities?
What can people do to get involved, or get information and help?


Links:
https://www.themhlc.org/
https://stillhopefulmom.blogspot.com/


Mindy and her book: https://mindygreiling.com/
Randye and her book: https://www.randyekaye.com/
Miriam and her book: https://www.miriam-feldman.com/



Hosts:
Who:
Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)
Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.
Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.



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Randye Kaye
Mindy Greiling
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Guest: 
Lauren Yasuda Rainey , DDS
We ask about getting people with schizophrenia to care for their teeth, if/how medications affect teeth, the effect of Medicaid only paying for annual cleanings and check ups, compared to private insurance that pays for twice a year. Many of our listeners have asked for a show on dental issues and of course we are interested too!
Dr. Lauren Yasuda Rainey completed a General Practice Residency at Tufts University School of Dental Medicine.
 At Tufts, a majority of her time was treating persons with medically complex needs and managing patients with her co-residents that came through Tufts Medical Center Emergency Department.
Currently she teaches dentists in the US & Canada minimally invasive restorative techniques. 
We ask:


1. What do you recommend to patients and/or their families for getting people with schizophrenia and other serious mental illnesses (SMI) to care for their teeth?
2. Do medications, especially psych meds, affect teeth? If so, how?
3. What is the effect of Medicaid only paying for annual cleanings and checkups, compared to private insurance that usually pays for twice a year?
4. What challenges have you encountered in caring for people with SMI? 
Links:


www.laurenrainey.com
@raineydds
https://www.catapulteducation.com/blog/laurenyasudarainey

Randye on Lisa Wexler show re incarceration and SMI:
https://shows.acast.com/6398bb70ee249200127c1182/episodes/randye-kayes-personal


Products:
https://carifree.com/
https://cocofloss.com/

(The founder of Cocofloss, another mom dentist, is providing the PROMO code for your podcast listeners to purchase pH 8 toothpaste!

THREEMOMS for 15% off sitewide thru 6/30 on Cocofloss.com)


https://www.voco.dental/us/home.aspx

To purchase pH balanced anti-cavity products visit: https://carifree.com/shop/
To find a dentist that carries & is knowledgeable about those pH balanced products in-office visit: https://carifree.com/find-a-dentist/
Other products mentioned:
RiseWell Scrubby floss infused with hydroxyapatite to remineralize teeth
https://risewell.com/products/scrubby-floss


Cocoshine toothpase, pH 8, whitening and remineralizing, mint and lychee breeze flavors:
https://cocofloss.com/collections/brush-and-shine


ReminPro, pH 7 (neutral), remineralizing and anti-sensitivity:
Information here: https://www.voco.dental/us/products/preventive-care/protective-dental-care/remin-pro-not-available-in-canada.aspx
Not available for purchase unless through a dental distributor. Ask your dental office!
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Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Guests are: Karlyn Nelson and Michelle Post


Karlyn Nelson
Survivor of Suicide Loss | Breast Cancer Warrior | Realtor

Michelle Post, M.A., is a Licensed Marriage and Family Therapist (MFC 40198) with nearly 20 years of experience providing counseling and psychotherapy to clients in the greater Los Angeles area


According to the NIMH, People with schizophrenia have a much higher rate of suicide than the larger population: People with schizophrenia have a 10% rate of suicide compared with the larger population’s 1.3%rate of suicide. 


Suicide is the biggest reason for the decreased life expectancy of people with schizophrenia. 
                                                                                                                        
A larger number of people with schizophrenia contemplate suicide. Around 40–79% of people with schizophrenia have reported having suicidal thoughts.


Saddest fact is that it is at the time of improved insight that most attempts are made. ie. when the person has finally moved past anosognosia and realizes his plight it is with improved understanding that this decision is made.


We Ask:
What is an “emotional heart attack”/What are "The Five Things" when dealing with suicide loss in the family?:

Get help yourself (best indicator of how well a child does after the death of a parent is how well the surviving parent copes… so if only one can get help, needs to be the parent).Use truthful and clear info about the cause of death and explain it in child terms – let the child lead with questions – do not over load them with info.  They will need different info as they ageAcknowledge and validate a child’s feelingsReassure them they are not to blameAddress their fears and anxietiesEncourage them to continue routine activities, structure gives them a sense of securityInclude them in as many memorial / activities around the illness, injury, and death as they choose.Prepare themLet them make an informed decisionShare info and allow participationDebrief with them.3. What can be done for suicide  prevention?


LINKS:
Suicide hotline: 988

https://postfamilycounseling.com/
https://www.instagram.com/karlynnelson/
https://didihirsch.org/wp-content/uploads/Manual_for_Support_Groups_for_Survivors_of_Suicide_Attempts.pdf
 
This is the link to the manual for survivors of suicide attempt groups, and training can be made available throug
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Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

We’re  delighted to welcome a return guest, Jerri Clark.
Jerri first joined us on Episode 32, “Channeling Grief and Anger into Advocacy and Acceptance”, and is now working with TAC (Treatment Advocacy Center-, see Episode 71 with Kathy Day. Episode 31  with Lisa Dailey, Episode 35 with Sabah Muhammad ), ) as Family Resource and Advocacy Manager. She has a fellowship as TAC’s DJ Jaffe Advocate this year. Jerri is a family member whose son with SMI died from suicide.


The six coping strategies (not linear)
Normalize AmbivalenceFind MeaningAdjusting MasteryReconstruct IdentityRevive AttachmentDiscover New Hope

We Ask:


1. Tell us a bit about your story, Calvin and how you came to your present job at TAC.


2. Tell us about your fellowship as TAC's DJ Jaffe Advocate


3. Who coined the term Ambiguous Loss, and what does it mean?


4. How does one process this complex form of grief when there is little recognition of its impact?


5. How are you developing strategies for dealing with Ambiguous Loss? - what is the  
ambiguous loss family training project ? 




Links:
https://www.treatmentadvocacycenter.org/


help@treatmentadvocacycenter.org


Dr Pauline Boss books


Facebook: TAC Family Support Group:
https://www.facebook.com/groups/tacsupport




Mindy and her book: https://mindygreiling.com/
Randye and her book: https://www.randyekaye.com/
Miriam and her book: https://www.miriam-feldman.com/



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Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

We’re  delighted to welcome a return guest, Eric W.T. Smith. He was also interviewed  in Season 1 of 3 Moms (episodes 15 and 16, an AOT Success Story)
In Eric’s words:
“There are peers and supports in large numbers for depression, anxiety, eating disorders, and a host of other diagnoses, but nothing much available in the world of anosognosia and psychosis where a person in recovery and/or their parents/caregivers can regularly reach out and schedule a meaningful block of time to discuss their individual and/or family needs related to anosognosia and psychosis with a person who successfully went through all of that.


 I'm here for people to connect with and help them accomplish what meaningful recovery means to them, and to build a bridge of trust and communication between them and treatment providers, within their own families, and with me as someone who lived much of what they are going through or have gone through. That should be part of what we do for appropriate policy and practice, but it isn't.”
Over the years Eric Smith has spoken publicly about his journey through mental illness and addiction to a wide variety of audiences. Now he is a nationally recognized mental health advocate, public speaker, and consultant. 
He is a Commissioner at Texas Judicial Commission on Mental Health and owner of Eric WT Smith Consulting LLC
Part of his story is written about in Bedlam, authored by Peabody Award-winning Kenneth Paul Rosenberg, MD. 
Part of Eric’s journey is included in the book You Are Not Alone: The NAMI Guide to Navigating Mental Health
Eric also wrote a chapter about being incarcerated without treatment for severe mental illness in the 2022 anthology Navigating Bipolar Country -  and was featured in People magazine in 2023.


Links:
 
www.ericwtsmith.com  -- my consulting business, Eric W. T. Smith Consulting, LLC

https://www.youtube.com/watch?v=um-Zb-xr9Bc  -- a link to a presentation about my consulting services with relevant background info that lead to the creation of my consulting business
https://www.texasjcmh.gov/about-us/commissioners/smith-eric/  -- here is a link to my Commisioner bio for the Texas Judicial Commision on Mental Health
https://www.texasjcmh.gov -- here is a link to the main page for the Texas Judicial Commision on Mental Health
eric@ericwtsmith.com -- people can email me directly if they would like to do so
 https://www.facebook.com/groups/www.teamdanielrunningforrecover.org 


Eric on Linkedin:
https://www.linkedin.com/in/ewsmith/


-CURESZ has a new book available for purchase (as of 2/9/24 on Amazon, although it may also be for sale elsewhere), and I cont
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Our websites:
Randye Kaye
Mindy Greiling
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