8 episodi
The fault in our genes Maggie Moore
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- Salute e benessere
Spinal Muscular Atrophy and my experience as a mother of a type 1 baby. A mother to a kid with a rare genetic disorder.
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Rare Disease Day
On this episode I talked about Rare Disease Day that was held on February 28th 2021.
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Newborn Screaming in ALabama
On this episode, I talk about what is new born screening and our efforts to implement it in the state of Alabama.
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Self care and caregivers.
On this episode I talked about the importance of self care as a caregiver and my journey, as well as tips of what has worked for me.
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Illnesses and underlying conditions
On this episodes I talk about our experience with illnesses and how they affect people with underlying conditions.
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Care and support for diagnosis
On this episode I talk about care and support, and what we do in a day to day basis.
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Treatment Options
This episode is a celebration for the approval of a new treatment for SMA. I will be talking about the different treatment options and our experience with them!